Comments on Profile Post by CRGC

  1. CW Dragon
    CW Dragon
    feel the same exact way every waking hour. I'm like what did I do to deserve this?
    Dec 9, 2022
    tpj, ZFire and CRGC like this.
  2. MindOverMatter
    MindOverMatter
    @CRGC I know this feeling, and its human to feel this way. But, in the end, feeling guilt doesn't serve you any good. It just reinforce what you/we already struggle with. Acceptance only happens when letting go of the guilt. Imo, with acceptance, it was easier to look and move forward. One day at a time. For many (me included), this can be a turning point.
    Dec 9, 2022
    tniuf, CW Dragon, ZFire and 1 other person like this.
  3. ZFire
    ZFire
    Hey @CRGC , We’ve all been there man. Blaming ourselves for our own actions and wishing we would do things differently. Try not to get fixated on what if scenarios, what’s done is done. No point dwelling on the past. It’ll only distress you. Look ahead now with everything you’ve learned. Time will help eventually.
    Dec 10, 2022
  4. aura
    aura
    It's not your fault. This disease is such a monster.
    Dec 10, 2022
    CRGC likes this.
  5. CRGC
    CRGC
    @MindOverMatter @ZFire @aura Thanks for the positive comments guys. Working hard with my therapist to accept and move on, but it's difficult. What gets me the most is the several brief moments a day where I realize I don't understand speech around me the way I used to. I've always prided myself on being pretty smart and witty, and feel this condition is changing my personality. So hard to cope with that.
    Dec 10, 2022
    Sammy0225, aura and ZFire like this.
  6. ErikaS
    ErikaS
    Although we cant gain back hearing, there’s enough “noise induced” or some hearing loss T stories that DO improve. They just take much longer. I just discovered that my R ear does not hear 12k hz and above like my L ear does. I had a feeling I suffered some kind of very high freq loss in R ear from infection, but because they don’t test above 8k hz, it was never detected. Thus, never got a shot.
    Dec 13, 2022
  7. ErikaS
    ErikaS
    I know this sounds “out there” but I started Neurofeedback last week that is specific to tinnitus. We are doing “with hearing loss” protocol as opposed to without because they see the best response w/ that. It’s working with slow brain waves as well as memory because our brains “remember” what they heard before this and are still trying to hear it. Living on a prayer with this so we will see.
    Dec 13, 2022
    CRGC likes this.