Sammy0225

Also for how many months did you take magnesium? I’ll willing to try it for atleast 3months before commenting on its effectiveness.

@Sammy0225 so ridiculous that getting sick can back track, but I have a feeling due to being inflammation and once that settles it will improve so much faster than first time around. Sending you love and support as always!

@ErikaS ugh I know this shit is something else tell you. Thanks for the kind words {:

My main thing is the ttts it’s so annoying I also have a bit of loudness H lingering around it’s a hiss that I’ve been trying to get under control

Yes same here!! The ttts is super annoying!!! It drives me insane

Yup some days it’s completely gone then next day it’s back like, make up your mind lol

I just met with highly recommended functional med doc tonight, been waiting to see him for 3 weeks. He told me I’m his 3rd patient with what Im describing. One girl, her T was so loud she could barely hear. Anyway, he determined high viral load, said my body isnt clearing viruses that caused/worsened this & it’s just cont. the inflammatory process…

So we are detoxing the viral crap & doing cranial nerve work. He said the 2 others notably improved within 2 mos. treatment. Not expecting miracles, but would welcome any improvement. Just very on point to how you and I have discussed an inflammatory viral component and that’s what I tested as.

Oh God this is amazing news!! I'm so damn happy you found a doctor who actually knows what to target! Please keep me updated on what kinda treatments work? Targeting inflammation sounds right on track and I feel hopeful this is going to bring the relief you been needing (:

@Jackson Brady 450mg glycinate I noticed it helps with sensitivity and my ttts

Definitely man I did the same dont beat yourself up I went to grocery stores and work using protection and I guess it just wasn’t cutting it my t was spiking right through the ear protection. Doctors make shit worse by suggesting sound therapy right away when the ears aren’t ready for it yet

@ErikaS your welcome I’m glad to help when I can I wish I knew more about this condition, it’s been a learning experience and I’m thinking of becoming a ENT after going through all this shit lol

If I was a Ear doctor and someone came in with these conditions I would explain the ears need to settle first before starting sound enrichment. Instead they slap hearing aids on you and start pushing more sound into a already overstimulated ear. And if that doesn’t work they push you on meds and say you are paranoid and have anxiety issues which can turn already severe cases into hell. @travishenry

http://www.chronicdailyheadache.com/headache-doctors/

These are two of the first people I talked to about decompression surgery, Dr. Blake is extremely knowledgeable and empathetic to your situation.

She is a bit like the Susan Shore of Occipital and Trigeminal neuralgia. They are also located in Texas so this should make things a bit easier for you than some of the other surgeons.

If you find them too expensive, I have alternatives. The surgery is $15,000 dollars out of pocket. There is another surgeon in Maryland who does it with insurance coverage or for $12,000 out of pocket.

@CarlosEstan thanks so much!! I'll definitely be looking into Dr. Blake I'm glad we have this forum to keep stuff like this circling. Your resources are very much appreciated brother

Wanna trade location?

@CarlosEstan long as it’s not too cold lol

Freeze to death and get rained on where I'm at haha. What a combination.

Exact same thing here dude @Sammy0225, i often go check if i actually have some visitor outside lol. Can you tell what exactly helped with it besides time?

@Jackson Brady unfortunately it’s back I spoke to soon hope it goes away again also wine glass ringing is back also

When it comes and goes, it can be gone for good someday.

@Sammy0225 just had the 2nd one yesterday and I think that will be my last. Tones sound sharper and louder, hoping it fades in the next day or two. Also getting increased random fleeting T moments? Whooo knowws :)

You got this under control! I am so happy for you.

The TSSSSSSSSSSS sounds i have since 2017. I barely notice them anymore.

Hi @CarlosEstan I’ve had tinnitus going on 7 months and I been seeing improvements every 30 days. So I would say monthly. If you just got tinnitus please give it time the ringing may sound loud now but it will get lower or you will learn to ignore it eventually

If anyone stumbles here look at
@ErikaS post https://www.tinnitustalk.com/threads/just-how-far-should-you-push-reactive-tinnitus-should-i-protect-my-hearing-more.50561/

I Went into detail of my progress

Taking magnisium has been changing the tone of the hiss and reactiveness @Stayinghopeful

Oh to feel improved enough to vanish! I hope that day for you is so soon and mine comes in a few months :)

@ErikaS you are in my thoughts and prayers I hope you find relief I know how hard this can be

I’m using natural environmental sounds my main one is running the tap from the sink on low to counter react the hissing I also been going to the park and listening to birds and passing cars about a football length away

@Joe Cuber thats awesome! I’m assuming all this mess will take 12-24 months to fully clear out

@Sammy0225
Can you recommend me any sound therapy? You can look for my sounds i posted on my profile.

Same here this place is packed with knowledge. Learning to deal with my anxiety is something I need to keep practicing. Having more and more moments of silence. The last step would be leaving TT I’m almost to that point

I hope the days only keep going up for you and the moments of silence last longer with minimal to no spikes. So happy to have gotten your knowledge, especially about staying home and in the quiet for a period of time to let things settle. Your improvement is hope for me and others!

@ErikaS thank you so much for the kind words! And your definitely welcome i have hope that your tones will eventually fade away! Let your home be your safe zone hardly use protection unless your vacuuming if you venture into the world just watch out for set backs. You will Over come this (:

I pray for a moment like that. Enjoy the moment of silence, I head when people start having silence moment you will have full silence in the future.

@NYCGuy the only thing I changed in the past 24hrs was taking 250mg of magnesium along with drinking 8 cups of water within 24hrs not sure if it’s a placebo effect I’m
Hoping this is what caused the hiss to settle down

The hissing is definitely awful when its out of control. My family just can’t grasp how this feels. I’m glad you are seeing the doc on the 5th and I’m hopeful the steroid shot will help the inflammation! I took a glance at Marin’s story and she definitely had it bad! Glad she’s in a much better place (:

The ringing did drop substantially low around the 5th month…around that time I also noticed the reactiveness fading away with the multiple tones. Some ppl argue that reactive t isn’t hyperacusis but I think they are one in the same. Please keep me updated on any progress from the doc visits? And I never lost taste but I definitely had family who did with covid ugh

You seem to be on the right track with targeting inflammation as the main thing (: just don’t do what I did.. I made my reactiveness worse by over protecting when it wasn’t necessary. Like being home I feel like this made my ears way too sensitive to everyday harmless noise

Hi brother! Still rooting for you Travis. You’re a warrior bro, don’t forget that!

@Sammy0225 omg that is AMAZING to hear. Was literally just on a walk with my dog, mine spikes with just my heart rate increasing on a walk and ambient quiet outside noise. I was thinking to myself “is this ever going to not react?” Because it doesn’t feel like it would ever just by the sound and what it does, but you saying thus gives me hope.

So you maybe got this from Covid? Did you have ear pressure or pain with it? Wondering if we both are experiencing inner ear inflammation/damage (mine from ear infection and colds) and it’s just going to take time to resolve.

@ErikaS i did actually have covid around the time my ears started ringing and as for the pain I was having like achy ears. Almost like earaches. I feel I over protected my ears too much causing hypersensitivity to my ears I’m working on trying to desensitize them

@SamRosemary i definitely know how your feeling! Ugh just a year ago o had no idea what tinnitus was lol it definitely will settle and I hope you feel better!!! Oh saw you took your exams congratulations!! :D

Oddly enough, I learned about it in one of my classes like a month before it happened. Never heard of it before that tho. Ahh what a time lol. Thank you! All done exams- just waiting on final grades tho.

@SamRosemary oh wow!! You’re going to school for RN?? And I never heard of this sadly I’ve always been in a bubble only concerts I’ve been too was Metallica godsmack and chevelle but I was no where near the stage :0

I’m sure you did great (;

@Nadia231 ah I’m so sorry your are going through this if you don’t mind me asking how did you develop H?

Hi Sammy, I suffered from constant fluttering for over a year. It resolved suddenly. It’s a vicious cycle, the more you focus and worry about it, the worse it becomes. I slept on the less effected ear for a year and thank god it chilled. Distraction is key, get busy on a project etc. easier said than done I know. x

@Sammy0225 my H started a few weeks after my big T spike, which went from a mild T that caused me no issues for 3 years to debilitating T and noise sensitivity. It gradually became worse to the point I wear ear defenders at home for most things. I don't work at the moment ( I'm a teacher so...) and can't go anywhere except a quiet park.

When it’s calm it sounds like a hourglass sand pouring but when it’s spiked it’s like electric zinging traveling from my left ear behind my neck it’s so damn irritating @ZFire or @Joe Cuber maybe y’all know what this is?

Hi @Sammy0225 when I spike I do get something similar like your electric zinging, but i can’t say that I’ve experienced it traveling behind my neck

@Sammy0225 i have this exact same thing

That’s awesome I’m glad he looks after you! They keep us going I gotta always tell myself I gotta be strong for my little man

That’s exactly it. In the beginning, I might not still be here if it wasn’t for him. How olds your son?

I’m glad you have him (: and he’s 3 he’s everything to me he also will hand me my ear muffs when a loud sound is around lol when all this first started I was really agitated for any little noise he made I would just sit and cry cause how I was being with him .. I’ve gotten better at handling everything since then thankfully

@tniuf for sound therapy I’m gradually exposing my ears to noise that would usually cause a spike. Tv, sound of water from The tap, fans.. stuff like that. Not using any devices just gradually exposing my ears to more sound every week and pushing a little more each time. No audiologist

Also I feel using ear muffs 24/7 was holding me back from recovering I started having anxiety about every little noise and dwell on it for days like building a muscle I feel my sound tolerance is building back up slowly

@CRGC thanks bud!

Good to hear! :)

this sounds terrible. My low hum is like an car in idle and gets REALLY loud in siolence. It fills my head fully at night. The other sounds are the typcial EEEE sound and refridgerator.

Thank you for your fast reply. It means the world to me. I was never such low. And i have it for five years.

Oh the hum one is the one bothering you? Yes I’ve had that one it sounded like a car idling outside I know exactly what your talking about yes I got use to that one and the fridge hum it was weird but eventually I just learned to block it out mentally

Thanks for the reply guys @CRGC @Damocles

Just taking it day by day

Ahh yes, the fabled hiss I always hear about. Looks like you’re headed in the right direction. :)

@ZFire thanks for responding it sounds weird almost like a sizzling piece of bacon hmm the reactiveness seems to be chilling out I was playing Nintendo switch earlier and wasn’t reacting I’ll keep updates posted on the progress