DeanD
Mood:
Last Activity:
Apr 18, 2024 at 9:05 PM
Joined:
Nov 5, 2022
Messages:
344
Trophy Points:
386

Post Ratings

Received: Given:
Like 720 363
Agree 203 55
Helpful 18 6
Hug 100 57
Good Question 37 10
Genius 2 3
Funny 3 11
Winner 40 43
Informative 24 43
Friendly 13 13
Useful 4 1
Optimistic 9 4
Creative 3 1
Gender:
Male

Share This Page

DeanD

Member, Male

Reactive severe T is so much easier to deal with than dysphagia. Never knew or could even imagine that, until I got both. Feb 27, 2024

DeanD was last seen:
Apr 18, 2024 at 9:05 PM
    1. DeanD
      DeanD
      Slept 10 hours with help from Zopiclone. Unfortunately t seems even louder today. Just a wall of sound. Struggling to hear gf normal voice
      1. JPGL, Joe Cuber and Sammy0225 like this.
    2. DeanD
      DeanD
      Not even hearing tinnitus, now feeling it, like ultrasound. Intense hitting ears but so high pitched can't hear it. BP and heartrate normal
    3. DeanD
      DeanD
      Very upsetting. Took Brisoprolol for blood pressure. T Went down by 95%. Tried sleep (no sleep 4 days) and t returned louder than yesterday
      1. JPGL, NYCGuy and Joe Cuber like this.
      2. View previous comments...
      3. Strawberryblonde
        Strawberryblonde
        Stress plays havoc on the body and can be pretty hard to get under control even without T.
        Have you had your cortisol levels checked?

        My body reacts to the littlest things by going into a full blown panic even though it shouldn't till I manage to calm myself down.

        I know this my sound useless but try diaphram breathing a few times a day it helps with blood pressure supposedly.
        Jan 22, 2023
      4. DeanD
        DeanD
        Hey @Joe Cuber - actually I don't get any more ear fluttering. My reactions aren't great admittedly but the last noise was a coke can that somehow must have been so pressurised it blew the top one inch of the can away from the rest of the can. Never seen anything like it. Sounded like a gun shot.
        Jan 22, 2023
        Strawberryblonde likes this.
      5. DeanD
        DeanD
        @Strawberryblonde - Yeah I agree about the stress. Actually I do find diaphragm breathing seems to temporarily take the edge off.
        Not sure if it's the breathing and bringing in calm or, because I'm living in near silence because of the palinacousis and worsening, that the sound of my breathing is causing it to soften
        Jan 22, 2023
        Strawberryblonde likes this.
    4. DeanD
      DeanD
      Even louder. 110db+. Each sleep cumulatively increases the volume. Something very wrong. Did desperately try. Humans shouldn't endure this.
      1. View previous comments...
      2. DeanD
        DeanD
        @Sammy0225 - the blood pressure meds were to control my heart. I would lay in bed calm, drift on to sleep and the moment I hit sleep I had an adrenalin rush throughout my body to wake me. Couldn't sleep for 4 days. Current BP today is 124/90 - a little high but not in the serious hypertension range.
        Jan 22, 2023
        JPGL and Sammy0225 like this.
      3. DeanD
        DeanD
        Doctor thought this medication may settle the adrenalin rush and allow me to sleep. I took yesterday with sleeping tablet and managed 10 hours sleep.
        Jan 22, 2023
        JPGL likes this.
      4. Sammy0225
        Sammy0225
        @DeanD oh,I see okay the reason I ask is cause I have high BP (inherited) but okay I was wondering. I had something similar to that but I think was panic attacks, cause I suffer from bad anxiety
        Jan 22, 2023
    5. DeanD
      DeanD
      Increased again! 100db+ siren. No triggers or noise caused. Maybe med withdrawal. 15 tones. Lost hope now. Just not liveable anymore.
      1. JPGL, NYCGuy and Sammy0225 like this.
      2. View previous comments...
      3. Sammy0225
        Sammy0225
        Hang in there Dean! Don't do anything drastic we are here for you, keep fighting! I remember I had a time when I couldn't hear ppl cause how loud it got I was told I was experiencing something called exploding head syndrome I felt borderline seizure. Your in my prayers
        Jan 20, 2023
        JPGL likes this.
      4. DeanD
        DeanD
        @Leila - thank you for your kind words and positive energy, I need all that I can get :)
        Jan 20, 2023
        Leila likes this.
      5. DeanD
        DeanD
        @Sammy0225 - thanks for reaching out again, it is appreciated. Yeah, I had the exploding head syndrome too which is partly why I had to give up Mirtazapine. I really think it was the meds that took the ringing in to the mess it is now. Tbh it's in part the story of your noise reductions that give me some glimmer of hope - so thank you for that
        Jan 20, 2023
        Sammy0225 likes this.
    6. DeanD
      DeanD
      Tinnitus no longer a 'sound' but ultra high intense tuning fork sound pressure. Head pressurised. Extreme intensity. WTF. Think this is it
      1. View previous comments...
      2. DeanD
        DeanD
        @Jupiterman - desperately trying but the volume increased again. It's now above voices. Just can't stem it. Has to be the meds as I am living remotely and quietly.
        Jan 20, 2023
        Strawberryblonde likes this.
      3. DeanD
        DeanD
        Jan 20, 2023
        Strawberryblonde likes this.
      4. Sammy0225
        Sammy0225
        Your right everything is pointing to the meds
        Jan 20, 2023
    7. DeanD
      DeanD
      Think I'm done. Lived like a recluse for month, tried my best, random coke can exploded out of nowhere 1m away. Catastrophic now. Game over
      1. in_LA and Sammy0225 like this.
      2. View previous comments...
      3. Guywithapug
        Guywithapug
        Sorry to hear, just let it pass.
        Jan 15, 2023
        tpj, Sammy0225 and NYCGuy like this.
      4. Sammy0225
        Sammy0225
        I had a soda release a huge amount of pressure after opening it yesterday, and I’m paying for it today. for us having sensitive ears I always considered setbacks like this a form of shock to the ears. Like NYCguy mentioned give it time. Your ears should heal from the setback mine typically take 7 days to relax again magnisium and NAC might help while it settles
        Jan 16, 2023
        NYCGuy and tpj like this.
      5. Pistolpete
        Pistolpete
        @DeanD I read somewhere you can’t sleep (at all). I think you should discuss with your GP to short-term try a mild benzo instead of Zopiclone. Hopefully it could help you both fall asleep AND stay asleep (at least for a couple of hours).
        Jan 18, 2023
        Sammy0225 and NYCGuy like this.
    8. seppl
      seppl
      Hello, im suffering from the hum tinnitus aswell. Did your hum still exist?
      1. NYCGuy and Sammy0225 like this.
      2. DeanD
        DeanD
        It's there, but it probably is one of my 'easiest' tones to deal with and don't often notice it.
        Jan 10, 2023
        NYCGuy likes this.
      3. seppl
        seppl
        Does it fade with time?
        Jan 10, 2023
    9. Biaxca
      Biaxca
      I have all Ur symptoms which I also got from microsuction. I'm also in survival mode I have had this for now 35 days idk how this can be happening, Ur like the 7th person this week with these symptoms after microsuction that I know of
      1. sakrt and NYCGuy like this.
      2. DeanD
        DeanD
        Hi @Biaxca - I'm so sorry you're also going through this. I've seen so many people on forums who got this through microsuction. Unfortunately there just aren't enough of us getting it this bad to make enough noise for the practice of microsuction to be banned.
        Do you have hyperacusis, as well as tinnitus?
        How was your hearing before and after the microsuction?
        Jan 6, 2023
      3. Ken219
        Ken219
        It saddens me to know a treatment causes tinnitus and the procedure is still performed.
        Jan 15, 2023
        Blue28 likes this.
      4. Blue28
        Blue28
        Happened to me 7 years ago. Microsuction by ent caused hearing loss, hyperacusis and chronic tinnitus. I've struggled for so long now. Completely ruined my life.
        Jul 1, 2023
    10. ErikaS
      ErikaS
      Thought I’d let you know I had a random but bad ETD bout hit me over the summer (before Tinnitus came along) and I will still get random swelling but it has significantly gone down. I take a DAO supplement product before I eat to lower histamine in the body, which I really think helps as histamine reaction often plays a part in ETD.
      1. NYCGuy and DeanD like this.
      2. View previous comments...
      3. ErikaS
        ErikaS
        Hey @DeanD sorry For delay.. it came on as pressure/fullness in the ears and like I couldn’t equalize pressure, always had to yawn to open e tubes. As uncomfortable as that was. I would take that long term over what I have now with reactive T. How are you doing?
        Jan 2, 2023
      4. DeanD
        DeanD
        Hey @ErikaS - mmmm ok, seems a little different to what I have. Unfortunately not too good as of late. Medical system here is not only useless but damaging too. Trying to fight, but the reactivity beats you down and hits you over the head with it - literally. How are you, is the neuromodulation still going in the right direction?
        Jan 2, 2023
      5. ErikaS
        ErikaS
        @DeanD makes me so angry how non responsive the medical system is with regards to this. I am so sorry. Do you have anything on hand to help like an as needed anti anxiety?
        The Neurofeedback clinic was closed last week and this week unfortunately, so I will be going back again next week.
        Jan 2, 2023
  • Loading...
  • Loading...
  • About

    Gender:
    Male
    Tinnitus Since:
    Mild since 1982 - then Severe Oct 2022
    Cause of Tinnitus:
    Microsuction (Oct 2022)