Ngo13

I'm saying that I think the way medical professionals today treat T/H will be viewed the same as letting out "bad blood" in the future. Basically they have no idea what they're talking about.

@Ngo13 and they want us to believe that we went to the moon. Bah ha ha, doubtful.

Agreed!

From what I’ve seen from those who have taken steroids to treat spikes/tinnitus. Either one of three will happen:

1) you’ll get temporary tinnitus relief at best. Once you begin to taper, your T will return back to the way it was or back to baseline.

2) your tinnitus will worsen. Temporary or semi permanent.

3) Nothing happens to your tinnitus at all. This seems to be the most common occurrence.

Sorry to butt in @ZFire and NGO, I was prescribed fluticasone for etd and seems to make headaches worse and I definitely feels like my hyperacusis is back and the chatter sound becomes more noticeable from my fans, which reminds me do you guys get chatter sound from fans?

I often wonder if the prednisone (for an unrelated issue in my back) I was prescribed in the weeks prior to me taking the Lexapro contributed to my current situation. I didn't even finish off the prescription and was not given a taper!? I had no idea what otoxicity was at the time...

You and me both!

I don't think it's a lesson; I think it's a standard tinnitus curse.

@Ngo13 I wake up many times in the night, but one thing that helps me fall asleep is to focus on the sensation of my belly rising & falling as I breathe, & repeating to myself that I am safe & that this is not forever (even if this may not be entirely true). I think it helps to transition my body to a parasympathetic state.

I'm approaching 17 months since my tinnitus suddenly elevated in volume. I lost hope it would settle back down quickly. And it seems to be squealing a little louder in the last few weeks on the single tone days causing more anxiety for me.

I can relate. I'm approaching my 10-month anniversary of T&H. I feel more exhausted now than I did at the start. It must be the accumulation of daily stress.

Damn.

I almost responded to this thinking it was about bicycles..../disappear

@Tryn2BHopeful I appreciate the thought though! And the laugh was good too ☺️

@Ngo13 My tolerance for the noise goes down and it seems to make the noise louder.

I'm sorry you have the infection but once it clears you shouldn't have the pain. Did your tinnitus spike too? My other ear hurts now too but it's not the radiating burning pain. Doctor said I had fluid in that one too. Never had ear problems before all this!

It is indeed spiking, increased volume and different tones. It’s very annoying! What about yours?

@Hardwell no spiking, just increased sound sensitivity and TTTS. My T fluctuates in volume throughout the day though so sometimes it's hard to tell. I hope the spike passes for you soon!

@Hardwell same. I have been really careful so I hope I wouldn't get nox out of nowhere

@Ngo13 I recently learned that the trigeminal nerve innervates the tensor muscle of the tympanic membranes of the ear. So it may be TTTS related (I've got this too, along with nox).

Diagnosed as an ear infection because of fluid behind my eardrum and redness. But I am not sure if that would cause the facial burning. Worried it's a misdiagnosis and it's actually noxacusis

@Kasia was your onset due to acoustic shock? Mine was and I believe that's why my ears are still full, I have TTTS too. I fully believe that my tinnitus was caused/made worse by the TTTS and am trying to tackle inflammation.

Mine was due to various unfortunate circumstances, I think. I experienced acoustic trauma for sure (very loud concert and speakers in the restaurant day after) but didn't realized that at first. I didn't develop tinnitus right away. My ears started ringing month or so after the incident when I started taking medication prescribed by my firs ENT (vinpocetine)...TTTS interesting. Is it curable?

@Kasia sounds like it was more medication induced then. Maybe you could try anti-inflammatory supplements like curcumin and fish oil.
TTTS can be cured by surgery, but then you lose the function of the muscles protecting the ears so it's a risk.

Unfortunately its still the same. It doesn't bother me too much though, it's more annoying at times then distressing.

I'm so sorry you're suffering for so long. I hope you get relief sooner rather than later!

I don't have any detectable hearing loss, even in my extended audiogram so I haven't tried hearing aids. I'm trying to hold out for the Shore device but I have my doubts it will work

I use the Now Foods brand. 600mg each capsule. It also contains selenium and molybdenum.

I also use the Now brand, 600 mg, just like ZFire does. I like it.

@ECP I think the infection is gone but some fluid remains. Spike is slightly less but have a new tone now. Hoping it goes away.

@Ngo13 do you also notice your ears popping more and feeling a wierd pressure when breathing hard sometimes? My pain is fading but T randomly spikes and i feel a blocked sensation

Hope you feel better soon.

I've been to a few restaurants/brewery with my 20db plugs and been OK. Although these places werent overly loud, topping out at about 75db/80db. Your milage may vary though.

Just an update to say with foam plugs, frequent breaks and being mindful of the speakers, I was ok! Not planning on going again anytime soon though.

Pre T I have been to bars, clubs, concerts, with ear plug and sometimes just z bit of toilet paper. I always was good after. Even if u had a eee it wouldn't last

My t went lower while I had COVID

I had COVID twice and neither time affected my tinnitus! Rest up :)

I spiked when I had a fever but otherwise it seems to be ok, whew! It spiked less than it did when I had a cold in December

Same here :/

Same, never ending cycle that prevents alot of us from being truly free

Same, if I knew with certainty that mine was just going to stay the same I would be feeling so much better and on the road to habituation, but I know too well that anything could make it worse for a long time

@Ken219 no, I don't think so. It changed a lot in the first months but has since settled. Sometimes I feel like it has gotten softer sounding but I'm not sure if that's just the beginning of habituation.

@Ngo13 I really didn't start to feel better until about 18 months.

had it for a decade and i feel you. it ruined my life, but im still hanging on, but barely. whats keeping me going is the hope that one day soon a cure will be found.

Nice. I’m assuming you’re referring to the combination of reading from a kindle and drinking chamomile tea (my personal favorite tea too) while bathing in epsom salts and using sound therapy that you’ve been doing lately?

Not going to lie, I kinda want to try this out too.

You’re so cooL, @Ngo13!

@ZFire yes, I see you saw my post in one of the threads. I think anything that can be done to bring joy to a small part of our day us important.

Yeah definitely agree

Same. It use to work for me, but not anymore after my severe onset.

I wonder why. It seems like it works for most people.

Hopefully it won't be too far away to help :D. It may not cure completely bit if it helps to lower the volume or get rid of some tones I'm all for it :)

34 years Tinnitus and everyday I dream there will come better treatments or cure!

@Ken219 there will be soon!! :)

Really crazy. I have a lot of friends who play in hardcore bands and others that are DJ’s, but the person «presented» with T and H was me…

@ZFire thanks for the reassurance I hope it's the same for me

My spike did subside, finally. Whew!

Great to hear @Ngo13!

Hi @Ngo13, I hope everything is alright with you. Yeah I feel you, I hate this game of Russian roulette and wondering if a medication is going to make T or H worse. It’s so stressing and adds more difficulty to our already difficult lives. That said, I have no experience with benzodiazepines, but have been on ADs. Tinnitus was unaffected while trying Prozac and Nortriptyline. 1/3

I’m in the camp that believe antidepressants are not ototoxic. When antidepressants do cause or worsen tinnitus it’s usually temporary and reversible. There’s no structural damage to the ears being done. It’s likely the brain chemistry(ADs affecting serotonin changes in the brain) is just making the tinnitus more perceptible. Stop the AD and T will go back to baseline. I have seen that to be the case here. 2/3

But anyways, it’s totally normal for people like us to be afraid of worsening. It’s definitely best to take a non-drug route to see if we can safely ease up our limbic system and make dealing with tinnitus a bit more easier. But if nothings helping and your life is still a struggle, then medication should be explored. If you do decide to take medication, look for ones where the side effect profile are pretty low. 3/3

Yes, it will. It took me years to get there, but absolutely makes a positive difference. There are times I don’t think my volume is actually lower, but out of fight or flight it seems to be. If I concentrate it’s as loud as ever. Once the flight or flight stops it’s less noticeable most of the time. It’s a hard phenomenon to describe until you experience it.

@spedgas thank you for that glimmer of hope. I will keep trying to use it and hopefully I will get there one day.

So sorry to hear that, is difficult with people around. My partner sadly got Tinnitus too, we did got it very similar time so she totally understand me and support me from day one. My friend son the other hand, is totally different, nobody understand how difficult is to live with ears issues

These are stupid conditions indeed @Ngo13. It’s so frustrating trying to convey the complexities of our ear issues to close ones only for them to not understand any of it and then downright dismiss it.

I hate how sophisticated tinnitus can get. I wish it were a much more simpler thing for everyone. Something that was constant and never spikes.That way, it’d be much easier to manage at least.

Thanks @CRGC, I will check out those articles.

You’re doing great.