Sammy0225

Awe thanks moni I appreciate the compliment my friend! T and H can't take everything away from us!! Hehe ^.^

@Sammy0225 Have you noticed anything after configuring the equilizer?

Sorry the late reply @Jsm_Joestar been trying to keep busy ^^ and yes big difference!! Changing the higher frequencys made things like glass breaking and gun shots on TV shows less sharp and high frequency. My ears haven't spiked yet so thank you so much for introducing the idea ^.^ no only fans yet but shit it's definitely thinking on it lmao

Great to hear Sammy. Im glad that i could help you. Im going to try and configure my moms tv so it bothers me less aswell. Today i went to a hifi speaker shop and got a whole lesson about quality and what to look for. Check out my page ill write something about it.

@Ryan Scott Agreed. Would eat rocks if it helped.

@Strawberryblonde you work in a open market omg my ears couldn't handle all that :(

@Sammy0225 nopes I don't work in a supermarket. I just use my ear plugs the filtered ones when food shopping as it takes the edge off all the noise.

@Moni97 a bit better today! But shit who knows when it'll be a stubborn child again. It's so unpredictable :(

I've had a 2 hour fleeting tinnitis before too, and like yours it was during the night. Don't think it affected anything. Bill Bauer, a well read and educated sufferer, said that fleeting tinnitus was your brain sending test signals to inner ear (in order to assess fault, to recalibrate?) I don't mind fleeting tinnitus now, in fact I feel assured by it.

@Sammy0225 man, I know .-. Who knew the ears had their own form of PMS.

@Joe Cuber should be a TT trophy lol

Really hope it is calming down, @Sammy0225 !

@ErikaS thanks love hope you are doing okay also I'm so beat from this 9 months is enough

@Sammy0225 any difference with reactivity/spiking?

@ErikaS unfortunately no help with reactivity for me just helps more with the hearing sensitivity that H brings.

Hey @Sammy0225 what ear callers fo you use?

That sounds like H.. I’m trying to remember but didn’t you say right in the beginning you had difficulty hearing “s” and “Sh” or was it sensitivity to those sounds?

@ErikaS yup definitely H now that I've asked around I found a few others who experience the same thing. Thankfully I can hear the s and sh syllables so don't think it's hearing loss but the H makes it's very uncomfortable to hear almost a scratchy ear drum sensation or nails on a chalk board

@Sammy0225 so happy for you and PROUD of you. It takes a very strong person to claw their way through the hells of this condition and strive to be on the other side. I am starting to feel I’ve gotten what I need from TT and may be leaving for a little to really put my mind on positivity and a way forward. I know what I need to know, now I got to do my own thing to try to make my way to the other side.

Your strong @ErikaS don't ever doubt yourself. You will make it through the other side. Our symptoms are very similar and I'm really hoping the best for us both ♥️
I will add on here that I still have mainly 2 tones the hissing and the ringing.

the first few months the ringing turned to a sharper frequency when exposed to sound not the volume but the sharpness. These days it still does but it takes more to get to that point if that makes sense. The sharpness usually resets after sleep to my baseline. I'm coming to terms that If this is how it's going to be then I can live with it. @ErikaS

Thank you brother, much appreciated

@Moni97 he’s probably living a good life

Hi guys hope all is well surviving. I'm Coming here less often. Y'all are always on my thoughts and prayers always {: @Moni97 @Jackson Brady

@ErikaS Have you had covid recently? The wine glass noise is how I was explaining my new noise. I got it from covid. It goes up and down and I’m almost 2 weeks in with it. Praying it goes away. I hate the new noise.

@ErikaS I agree 100% I feel majority of the health care workers are over worked and extremely exhausted. I strongly believe that we can salvage some of the hearing loss in the first 2yrs. If we are careful.

@SamRosemary i did not, I have cought a cold/virus a few times since T onset and it always exacerbated it. Mine is like wine glass mixed in with mosquito sound. It stays at one frequency (high) but becomes pretty intrusive. Then it can be more of a hiss minutes later. Always changing. Not ideal at all.

@Sammy0225 what is this option of getting a nerve burned off??

so some people get the nerve removed to stop TTTS/MEM symptoms of thumping or spasms in the ear. But this comes with the risk of developing hyperacusis cause the nerve that is removed is what protects and dampens your ears from loud sudden sounds.

For me the spasms are not bad, they only happen when something like a remote falls on the ground but unfortunately for others it can be non stop all day with little to no relief @ErikaS some describe the noise as someone constantly tapping a microphone in your ear or for others a loud thump. For me My ears spasms but magnesium has helped alot

What were you thinking? :)

Omg I thought only I did this xD

Lol absolutely Oprah

- Dr Phil

Thank you for checking on me @Moni97 (':

Unfortunately not to good yet another setbacks a loud slam of the broom sent my ears into another shock and Morse code has come back I'm hoping progress I made will not be effected. How are you holding up??

Aw I’m so sorry to hear that. :c I’m hoping so too. And I’m alright, thank you for asking :) had my first ok day since Fri. Hoping it continues cuz I’ve been feeling pretty bad lately.

@Ondine thank you for checking up on me {: the last couple of days definitely tested my patience. I hope your doing okay as well my friend ^•^

Should be fine. Sneezing is something mankind has been doing since the dawn of time. There’s not going to be permanent damage.

@ZFire you are definitely right man I'm usually spreading positivity but this past week phonophobia snuck back up. Thanks for the reassurance my man

@Sammy0225 Thanks for asking. Have had one of my most difficult weeks this past week. Reactivity is still a bitch, and lack of sleep doesn’t seem to help it. I just want to see some type of improvement, not steady standstill or worsening.

Ugh I know how you feel @ErikaS usually I try staying positive on here but this week it kicked my ass the setbacks made the reactivity sky rocket I'm still hopeful you will make good progress keep your chin up it won't stay this way forever

Just documenting progress since writing this my LDL level is sitting about 86DB give or take ( 9 months)

Hi @Sammy0225 all is pretty OK. Just a new tone in one ear like sand being poured onto metal! ugh so annoying.
Glad to here you are having better days though :)

Will try and go through the app store to see if I can see which one you use. :)

Earplugs/muffs certainly amplify an already annoying sound. I feel that if I didn't have to wear ear plugs I'd habituate quicker as I wouldn't always be aware of it and it's forever changing sounds :( @Moni97

Thanks you Guys I hope my bread trails help someone one day {:

Respect....well done!

Is your job noisy?

I've been on leave from work but I plan on going soon @Jupiterman

I don't thankfully it lasted two months before going away how long have your experienced this? It definitely is unsettling I figured it was from anxiety until I discovered the term palinacousis

@ErikaS @Jackson Brady I hope all this info helps! I truly believe most will heal. Remember a big part of healing is emotional response the more you feed it the more it will control you. Using natural white noise for therapy right now the reactivity no longer fights the AC humming and most of the time I can mask it now. God bless

@Sammy0225 - it's amazing you've been able to get to the point of almost quiet. Just read a post of yours from mid Nov in a much different place to now. Amazing progress!

@DeanD thanks Dean you will overcome this man this shit won't defeat you in the end you will survive and be stronger from it

@Jackson Brady My bad I haven't been on much lately right now things have pretty much been back to normal I still do sound therapy but it seems my ears are adjusting back to everyday sound like my kids laughing or my partner cooking dinner not getting Much of a spike so I'm counting my blessings

@Sammy0225 i was actually asking what kind of sound therapy do you do?

I’m still using the AC ( natural white noise) and running the tap a good majority of the day and magnisium Is definitely helping @Jackson Brady hope all is well

@Moni97 its a very powerful method i came across when i started my tinnitus journey, its always in my check list to try it fully soon, its a method by @I who love music which can kickstart habituation

https://www.tinnitustalk.com/threads/back-to-silence.7172/

@Sammy0225 aww you have kids? Jealous :p but seriously, so glad you are at a place where you can have fun with them again ^-^
Oh ok @Jackson Brady I have actually been doing this since about day 5 of my journey. Really helps me with my anxiety and panic attacks.

@Moni97 yea my 3yr old he keeps me busy! Lol and thanks I’ve also gone back to reading hope I can stay on this path and hope your doing good ^.^

I told myself that as soon as I feel better, I’m taking myself on vacation. Rent a beautiful AirBnB somewhere peaceful and calming and just allow myself to feel alive, not this constant struggle for survival that I feel everyday.

@ErikaS @Jackson Brady @Moni97 when y’all have a chance give @Coffeebean last few post a look. He had a very similar case of tinnitus like us. Unfortunately he no longer visits the forum but he made it out with little to no help from any audiologist I’ve been following his past comments as guidance. Click “find all post” his last two post have so much info

@Moni97 yes your body will thank you for it!!! (: it was shortly after the beach house that my ears relaxed and I said okay this is my sign, to start sound therapy! Don’t worry moni a year from now I’m
Sure all of us will be in a much better place then we can all go half on a Air BnB ;p

That's really nice to hear - I hope the new year will hold many experiences that will make you laugh and smile for you!

@Leila thank you that’s very kind of you to say Liela I hope the same for you as well. {:

@Jackson Brady since we become hyper aware of everything with this condition unfortunately phonophobia eventually comes along. I can say it will go away slowly as you start feeling comfortable around loud sound again. It’s gonna take a few months but your startle reflex needs time to get out the fright response mode. You’ll notice a big difference once you start sound therapy

@Sammy0225 so should i listen to car horns on youtube?

Oh no definitely not!! The phonophobia will pass eventually but from what I've been noticing is has been calming down with my anxiety and fear of sound. Target anxiety to help with phonophobia cause that's mainly what it stems from

You'll have more good days soon enough. These things go at such a snails pace it feels like you will never get there :)

Yeah, the brain is the Equalizer of T. If i get obsessed with my T, the loudness gets up. If i dont give a damn, it goes quieter over a period of time to a point that i dont realise that i have T.

@seppl same here! If we could some how wire our brains to not care so much about our T, I feel we could live a more sustainable life.

@Jackson Brady Yes spicy food can be anti inflammatory. Jalapeños are especially considered to have anti inflammatory and antioxidant properties. They can treat inflammation throughout the body and aid in cell health/repair.

@Moni97 plus really yummy to eat haha I’m such a food lover ^•^!!

Haha me too! ^-^ Pretty sure food is my love language. To feed/be fed that the Italian way. xD

@Jackson Brady that is exactly what I did and still do don’t stop doing that. You on the right track and yea 0ct I started being dedicated to magnisium daily

@Sammy0225. During your 'Silent protocol' Sammy. Did you still talk to people?
Is there any sounds you allowed yourself to hear?

@Jupiterman yea I still socialized with family in the house just told them to talk low around me, I allowed sound just nothing loud like music or tv I kept everything as low as possible I watched TV with no sound just subtitles and read alot. I knew when I had setbacks cause my hiss turned into a crystaly sound