Comments on Profile Post by Moni97

Yes, you can. You don't see it now. I thought the same way. I remember the absolute devastation, the brutal onslaught that tinnitus was on me, my future, my very soul in the first 2 years. 3rd year wasn't much better, but thats when I started seeing small improvements. You need to find ways to pass time and harden yourself, like an internal shell.

I know the feeling but you can and you will. Hang in there @Moni97.

You can @Moni97 !!! :)

Hang in there Moni. This condition is absolutely brutal so its understandable for you to feel this way right now. From what i read this is not the only problem you got going on. For now you can try to live 1 day at a time and try to make the best out of everyday. It will be very hard to do but it might help.

We are often stronger than we think. I hope you can find that strenght to carry on. Like the wise raccoon in your profile picture says. There is no thrash cannot there is only trash CAN!

I appreciate the encouraging words guys, I really do. But I have gotten so bad in such a short time. This H or nox or whatever it is has left me powerless. I can’t move without my tinnitus spiking, I can’t even walk without my eyes hurting. I wear double protection and it barely helps anything. I have only read about these symptoms in the extreme cases. How or why should I go on when it’s only gonna get worse?

what you are describing reminds me of this post: https://www.tinnitustalk.com/threads/still-alive-and-doing-better-hyperacusis-and-pain-have-reduced-by-about-75.47445/ . i hope you can make the same recovery and that this story gives you more strenght if you havent seen it already.

@Jsm_Joestar I have read his story. It has comforted me in the past.

@Moni97 have you tried or discussed LDN with your provider? If yours is autoimmune driven, it could help.

@ErikaS What is that? I can try. But my GP and Neurologist kinda seem like they washed their hands of me and threw me at the rheumatologist who I’m scheduled to see later in February.

LDN stands for low dose naltrexone. Search it in forums and you will find others who have had success with it when it is autoimmune linked.

@ErikaS Thank you so much! You might have just saved my life.

@Moni97 anything that could possibly help! Idk where you live but just push for it and share with doc the positive stories from here and say your current mental state and ability to endure this depends on having something to try that has shown improvement with others. You’ll want to start low low dose.

@Moni97 I cried every day for about 9-10 months. I was devastated. Things did start to get better and then I stopped grieving the loss of my hearing and tinnitus. I started focusing on new goals, like really big life goals that I wasn't sure if I physically could do. I had severe H and decided to apply for a doctoral program. I also applied to started teaching college.

Hey @ErikaS What would you consider a low low dose of LDN?

@Moni97 it seems many have started around 1mg and worked their way up to 4.5 mg

Ok. I saw some people start on .5mg or 1.5 and I wasn’t sure where The baseline was lol