brixenbrixen

@brixenbrixen - I tell my family this is what I need to do. They think I’m crazy. God bless you guys on this forum. Such strength. It’s amazing.

Hi @TheCapybara I am so lala - trying to live but it s very hard - I can work but have to avoid noises - lately new tones arrived due to noise exposure ( baby and one meeting in the city) so now I am going invacation in our cottage in the woods - thanks for asking :)

Last winter was the first I spent in a colder climate, but the cold dry air and no allergens seemed to keep my tinnitus calmer.

@brixenbrixen I've worried about this too. Stay busy indoors!

Winter in tents.

Organ pipes? In that case, me too.

It was a joke ;) maybe I should write whistle pipes

it is sad that the professional world ignore the really severe cases of Tinnitus - he said that habituation is the key für every T sufferer - and to forget about other therapies - nevertheless he is a nice guy - he invited me to have a long chat - I will see

I would say there's no way to habituate to tinnitus that has multiple sounds, very loud, plus varying in volume and changing the sound characteristics about every day if not more frequently. It sounds like he's thinking run of the mill mild tinnitus that most people have.

@RunningMan I think so too

nah im sure people from way back then got tinnitus in all sorts of ways, some like us have bad luck/ shitty genes, the problem is and always will be simply NOBODY GIVES A FUC about treating it. no research no awareness no interest its like taboo to even talk about it outside of our community

Evolution fails here. We tend to procreate before getting T. Or able to after. Maybe with more people getting T while young evolution will kick in. But I think the human race will get destroyed for other reasons before it can evolve to be T resistant. Good riddance.

Yes we are deleting out ourselves. It will happen — just a question of time

How sad that is. Same here.

This is an old post but F…k!!!!!!!! So true !!!!!!!! Prison without walls !!!!!!!!!!!!

Yes prison without walls is a perfect description

I am in Frankfurt

Hi @brixenbrixen, I am in Münster, NRW.

Alright nice place I hope that you and I will be in a better condition with time

in most cases dysacusis will fade away over time. For me my brain did this fantastic thing twice. On onset and by the worsening.

Btw it has faded

@Aschenherz So we should do

Take it day by day.

Yep, it can be quite "soul destroying" at times, full range of emotions involved, however there does come a point where it is possible to live again, hard lessons to learn in how not to aggravate the noisy "companion", and one of the hardest lessons to learn is not to listen to the "buzz," "squeal" and "cicadas", as this really does increase the "volume" :)

@KazM this is so true :)