I ‘think’ I have TTTS and I find it can get triggered and go in remission kind of like T itself. Some times it’s bad and then it settles for days or week and comes back.
@Sammy0225 Thank you for saying that, it definitely reassured me a bit. Mine wasn’t caused by any acoustic trauma as far as I know, I noticed it come on a monthish after my T (which also wasn’t from any acoustic trauma), so I’m assuming my TTTS was largely caused by my stress about my T. I really hope it will get better
@SamRosemary Even tho it hasn’t fully gone for you, have you managed to adjust to it? My anxiety response to it is extreme which is probably what’s keeping it going. I panic about it 24/7 & have almost developed a fear of talking because I don’t want to hear/feel it react. I’m still pretty early on with it, maybe 2.5 months. I’d hope that even if it doesn’t fully go away, I might be able to stop being so scared
@PennyCat Oh yes, for sure! I still struggle with panic and anxiety, but not specifically because of T. But your panic to the noises and to the TTTS twitching around and going up and down does calm down. Like my T has been going crazy since covid, but I’m not freaking out because of it.
@PennyCat I also have TTTS that came on about 1 month in after the onset of T. That, and my T in general, also wasn't caused by acoustic trauma or so (unknown cause). Unfortunately, it has stayed more or less the same for me even after 2 years - spasms going off at short sounds in quiet settings - with more noise around me they don't happen at all.
@PennyCat The anxiety that comes with it, did go down for me though and I'm way more calm about it, because I mostly know when and how the spasms will happen. It is triggered by those same stuff you mentioned, and also if one person's voice is directed to my left ear in a relatively quiet setting. More noise around = no spasms.
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