Hopefully you recover. I don’t know what to do… I’m getting jaw/neck checked. Then will do sleep study and other exams. My body just isn’t ideal to “heal” lol
What kills me @Wrfortiscue is that this is all due to an ear infection that invaded my inner ear. It’s all because an ENT told me “it didn’t look bad enough for an antibiotic”.. even at that, an infection that only damaged very high frequencies in my one ear gives me bilateral 3-5 sounds with reactivity that hasn’t improved yet? So stupid rare, avoidable, and mind blowing. I hope we both recover.
I am having moments today though of that fleeting T feeling in my right ear, but instead of getting a tone, my high electric crap goes really low/quiet and reactivity goes away. But then in all comes back as soon as that passes.
One can only hope, @Jupiterman ! Another thing that knocks out my high crap is neuromodulation on tinnitusplay app. I set the frequency somewhere between 13-14k hz and just let it play. I think it has to do with giving my brain those really high frequency signals it keeps searching for that were lost in R ear. Makes me wish a hearing aid existed for 12-14k hz!
Yes, I believe this is correct. Your brain hears the tinnitus version AND the real external version of the SAME frequency at the same time. This forces the brain to pick one of them and ignore the other. The brain choosing the real external sound over the phantom sound is ideal. Hope your brain can learn from there.
@Jupiterman it makes me want to reconsider in ear noise generators that I can play anything from my phone, only reason I held off was my reactivity. But my reactivity doesn’t respond really to the neuromodulation beeps. So wonder if that could just be my distraction/masking sound? Thinking about it.
Unfortunately, I had a conversation with Dr. Minbo Shim, and he said that he tried standalone growth factors, but they didn't work well enough. Only the PRP worked. From what I read, lab grown exosomes don't have all of those growth factors. Also, PRP is supposedly to be sticky when warm, which I don't know if exosomes are.
Also, based on what I read a few months ago, growth factors also encourage differentiation and proliferation of stem cells, so it sounds to me that they must go together to maximize potential effects. This is the route I will be taking. I might also get the standard stem cell treatment from the AZ clinic as well as see if they'd be willing to talk to Dr. Shim now that I have the time to make the calls.
Very sorry you haven't had recovery yet. Very strange for some people in studies of growth factors and stem cells after a significant amount of time but very few here. Makes me wonder why.
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