cyberspace

What I've noticed is that constant exposure over time dies down the reactiveness. If that doesn't work and the fan makes you happy then keep the fan on and focus on the fan noise over the Tinnitus. My Tinnitus was/is the same. I keep doing the fan and notice it's less reactive and I focus on the fan sound more then the Tinnitus.

I have that too, like morse code.

@cyberspace i had bad reactive t during the first year I developed T. Thankfully i can tolerate the fan and AC again with the reactive component not being so fussy

@SarahMLFlemmer its hard to even exist right now and lay down without intense panic

I feel ya... can only share from my experience kratom helped a lot with anxiety & panic... i say to you, us, myself.. take it easy, give it time... having faith things may get better

@cyberspace I know, I was there too but getting better at it. 11 months in and T has turned itself down in volume a notch.

Sure as hell seems that way. And all you can really do is hope to build a higher tolerance/endurance. I often stare into the medicine cabinet feeling defeated. And then off to the races.

Indeed... it sucks so bad... I just try to live healthy & have hope it will heal with time . . pffuhuh

Mine does

@DeanD do showers spike your tinnitus? Or the sink

@cyberspace - i went on mirtazapine but came off. See my profile for the details of my T. It is sensitive to everything I eat. Every supplement I take makes my ears more sensitive. Not a perception. Unfortunately I am afraid of all meds. I did take Benzo’s for a very short time. Also tried some other ADs.

I spend most of my days in bed too - sleeping. And my sleep schedule is totally messed up. So definitely feel you!

@MadeleineHope - just seeing your post above. This is insane! We are are suffering incredibly. You are so kind. It’s so sad that such beautiful people need to suffer like this. So, so, so SAD!!!!! Makes me angry.

How loud would you describe yours? There is no looking for mine. It’s in your face all the time. Only do not hear it in shower. If I try I could. If your is low you are doing the right thing. Hope you feel better soon.

@4Grace After my microsuction it was 6-8/10 for months, now I’d say 5-6/10

@cyberspace - such great news that it’s improving. I am happy it’s getting better for you. I wish I could take meds without impact on T.

This is so very true. After 11 months on my first good day I go to a friends and somebody whistles. Destroys by right ear. Pain and loud humming. Then goes to silent. Then one day later a cup falls in the sink and boom. Back to worse than I was ever. All progress lost. My friend does not know what he caused me. I feel like he ended my life.

No! ;[

I’m sorry to hear this. Praying for you.

Sometimes medication is necessary. Maybe try a very slow taper up?

Give it time buddy. You are very young, the younger you are the best your chances for recovery.

Took a couple milligrams of klonopin I had lying around with some valium. Doubt it's doing anything though

I'm sorry.

I have cried more than I have with this than I have with anything else.