Well Sarah have hope! Typically it resolves or gets to a point that it doesn't interrupt life. I know lots of people with this condition but they have hearing loss and they're living happy normal lives. We both are in the same boat and I've read it could take 12-18 months. Even if it never goes away it will get easier.
I think the first year is the worst I'm told. Just wanted to send out positive vibes because I know this isn't easy for anyone. I work in Neurology and I listen to my patients all day and think to myself "I need just as much help as you!"
@Mo8409 my audiologist told me that if it resolves it usually resolves within 6 months, but she's seen it resolve later than that but said chances become less and less likely. I've talked to many people who took Accutane and ended up with T and still have it 4 years later so I think I'm in for the long haul. ;(
@Mo8409 they do say it gets easier. I know like 25 people now, personally who have it and they seem to get along okay. You seem a lot more stable than I was when I first got it. I was very, very close to checking myself in to Behavioral Health, I was bad, bad.
@SarahMLFlemmer Oh I've had my moments but getting upset won't change it. I have to refocus myself. Turn as positive as I can in the most crappy situation.
I'm actually a cardiovascular technologist but also run neurology in a small community hospital. In the neurology department I'm a neurodiagnostic technologist. So I run the testing and exams. The crappy thing about this condition is that everyone has a unique individual case and outcome and healing period. I'd like to have hope this fades with time. Hope can do a lot of good to people.
I sleep okay. I've had a few nights of struggle. I have a ceiling fan going because a regular fan makes it louder. Then every morning before work I have my phone play a tinnitus sound track (music therapy) which seems to be like a reset button for it. It calms it down
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