Mo8409

Let's hope. <3 I'm on month 7 now.

@Mo8409, a handbook of tinnitus and hyperacusis for physicians I read said that doctors shouldn’t use terms like “permanent” and “nothing to do”

I think you don’t put a time frame on it and when it does go, you look back and a see it too x amount of months/years.

@Lurius I understand. I don't watch a lot of TV as is and would rather stay active but of course the TVs shows I like are all quiet lol what do you watch or do if you don't watch TV?

TV actually helps me get my focus off my tinnitus. But I don't watch a lot, either.

I mostly talk to friends and play video games. Sometimes I watch a little bit of netflix, if I find something that can keep my interest for more than 10 minutes. I just finished the Arnold Scwarzenegger documentary, that was good actually.

I've been taking magnesium for 2 years. Has done nothing good or bad to my T and H, but I still take it before bed . They say it's good... But who knows

@Mo8409 acoustic shock from my newborn's scream of all things, almost 18 months in now. I think the magnesium glycinate helps me sleep a bit better

Trying one now... fingers crossed it helps with anything but not holding my breath

It's tough. Hang in there. <3

@cjbhab That would be wonderful wouldn't it? To have that silence we once had. I hope in the future if my tinnitus stays that I can be like my brother and father who have had it for 30 years. They live normal and happy lives. Maybe we can get to that point.

@gameover Me too. At least we're not alone though.

Every day, honey. Every single day.

PRAISE GOD! I knew you were a Christian! Yeah!! That's right fam!!!

@SarahMLFlemmer Yay! Christian life! Lol

Hey man, either we believe the Bible is true or we don't. But... in the end, every knee will bow and every tongue will confess that Jesus is LORD.

@SarahMLFlemmer I hope you find relief to some degree!

I need to find someone to do it lol. Maybe I’ll go for a massage.

I'd love something like this and get me some ASMR style brain tingles. :)

Habituation is 100% learning to be ok and living with T. The more comfortable you get the more you feel habituated. We all want a CURE but we will settle for comfortably habituated.

No, I still hear my musical tinnitus over everything. I've just gotten used to it.

Habituated is what I would say I was with 20 years of milder tinnitus when I could ignore it most of the time and rarely thought about it. But the newer levels of sounds that are always changing made habituation history, and there's that automatic sympathetic nervous system response that results in anxiety.

@Ngo13 But I have no damage. I have a malformation but that can be fixed with surgery. Ears are good and brain is good besides the malformation. So I'm curious if the brain gets "stuck" with tinnitus. I'd rather hear nothing to be honest. Lol

@Andrei88 Idk, I've read many successful stories of people who have completely recovered from acoustic trama. Keep your head up.

Perhaps hey, but I've had it for over 12 years and it has only gotten worse with time.

And now it's back to more of the piercing squealing variable tone again upon awakening this morning. Hopefully, it won't make me feel worse again.

@RunningMan Sounds like we have similar noises. I had a few moments of a high pitch ear piercing tone. Must be a new tone. I'm hoping that it will change back for ya.

@Mo8409 Thanks. It did change to a milder tinnitus this afternoon, so it never bothered me too much. I never know when it's going to change. That's good if that tone didn't stick around long for you - hopefully it won't return.

@Mo8409 yeah, I've noticed that too that we are a minority it seems.

I just read that ototoxicity is irreversible, I sure hope not. =[

I developed regular T in 2007 and musical T last November. I wouldn't say that my musical T has gotten better. It's still just as loud and still changes tones second to second. Fortunately I'm able to tolerate it better than initially.

SSHL is Sudden Sensorineural Hearing Loss. Sometimes prednisone is prescribed without hearing loss, as my ENT offered me that I declined, plus I have seen success story here before where someone without HL improved after prednisone.

@Mo8409 Steroids are hard on the body, especially at the high doses required for SSHL. I have to take a moderate dose once in a while for asthma and it messes with my tinnitus, sometimes in nice ways sometimes not so nice ways.

I don't know of any studies that provide any evidence that steroids help mitigate tinnitus but there are studies that suggest NAC, Magnesium and vitamins A, C, E taken within a couple hours of acoustic trauma reduce chances of tinnitus developing.

I'm always adding more movies to my list that I want to watch than I'm ever getting watched. lol I do like the spooky, haunting, thrillers, but not too gory. I've never seen any ghosts in real life.

@SamRosemary Michael Myers is a classic <3 I'd say I'm more into cases like the Warrens. Stories that have police documentation with it.

@Mo8409 I'm kinda glad you don't know what Skinwalker Ranch is.. but if your curious there is actually a history Channel show on HULU. Search 'Secret of Skinwalker Ranch'. Keep your expectations low. Lol

@SarahMLFlemmer You're one strong mama! You got this.

@Ryan Scott Why can't you go to the beach anymore? Is it too loud?

@Mo8409 Yeah it is just a little for like a 3 hour drive on the interstate. Then they have jeeps driving up and down the beach blaring music.

@Joe Cuber How's your T doing? I had 2 MRIs and my T sound changed to middle of the head. Hopefully that crap goes away.

Yes, it changes depending on the weather, stress, and sleep.

Yeah, mine is a static hiss in the morning and slowly somehow evolves into a solid sound by the afternoon.

Good luck with that. I'm not doing the best lately. Tinnitus seems to be spiking recently, and also day to day anxiety and depression the last 5 days that doesn't fade until evening, after exercise for an hour, when it then slowly improves. So I feel good at the moment.

@RunningMan I am so sorry. I'm here if you need to vent or just have someone to talk with. This condition really stinks and spikes are the worst. Do you have coping mechanisms to help during the really hard times??

I don't really have a coping mechanism. It helps to know it typically gets better later in the day or after exercise. Sometimes I take walk or get focused on something else enough to help. Tinnitus seems calmer today but I still have the anxiety and depression since I woke up.

I fear this as my severe T is due to an MRI

@brixenbrixen Do you have hearing loss? It seems to be hit or miss with MRIs and T for some people. I'm sorry that happened with you :(

No hearing loss before and after … thx for your thought

@Tom Okay Hi Tom How long have you had your T? What causes yours?

Exercise helps with the anxiety/depression for me but actually spikes the tinnitus for quite a while. Sometimes trying to mask it or trying to distract myself with something to focus my mind on helps.

@Mo8409 Mild high pitch T since I was a teenager (loud concerts, I think). Now, 30 years later, sudden severe increase (due to loud sound exposure and stress, I think).

@AfroSnowman Very good way of explain it. I'd say mine is mild/moderate because it's nonstop.

I'm not sure if mine is worse. I mean it's not an overwhelming noise level just one that's noticable. Everyone I've talked to can hear theirs 24/7. So honestly I'm not sure unless I'm in their head. I think mine effects me so much right now is because I'm only 2 months in. This is a huge adjustment.

Right. If I thought about it, I could hear mine pretty much anytime whenever I actually thought about it even back in 2021, like if watching TV. But I could ignore pretty easily. Now it's hard to ignore it over these last 16 months at any point of the day, plus the anxiety, depression, insomnia to go with it. Hopefully it gets easier for you.

Yeah, it varies night to night, 2hr one night, 6+ another, sometimes I take an antihistimine sleep med at bedtime and often zolpidem sublingual overnight when I can't get back to sleep. Then there's the anxiety and intermittent depression on top of that. Dr. didn't prescribe anything new this year.

@Mo8409 Much the same here. I'm a microbiology PhD researcher working in labs that are tolerable for the most part. I do frequently work with a bench top whole genome sequencer, however, that sits at an ambient 65 dB. I wear plugs for that, that's about it.

All the very best, I hope work can continue to alleviate.

That is good that you can manage work. it will help you with your mental health. I work from home, I am a CBT therapist and can not tolerate going to the office. I am from London.

That's how is works, sometimes we break, but tomorrow the sun rises, we pick ourselves up and keep going

@AfroSnowman One foot in front of the other. Sometimes I have a hard time believing that this is real life. This is my (our) reality and existence.

@Mo8409 I know. Hopefully you are one of the 90% that get better and if you aren’t, eventually the reality of it ceases to be shocking

It can change. My primary loud tinnitus sound is sometimes more of a single tone, other times a hiss, and sometimes more of a broken hiss like a field of distant crickets. And of course, new sounds can come and go, and I have/had those as well.

Thank you for answering! I'd prefer my static/hiss over that eeee tone. It seemed to of went back to the static. It's quite aggravating when it changes. Gave me a bit of anxiety yesterday. I really appreciate you taking the time to answer.

@SarahMLFlemmer That's awesome to hear! I'm hoping my sensitivity will fade with time. I'm typing this right now picking up my daughter up from school with ear plugs in. Lol. Arg! I see you have a daughter to!

I have a 4 year old daughter and a 6 year old son that I homeschool. It has been hard, along with tinnitus, lol.

I think the sensitivity will settle down. I know mine has. <3