derpytia

I think we're all lost. I wanna help. Ed has given me some good ideas, but other then donating money what can I do?

There are small ways you can make a difference. You can let your voice be heard. Tell people about tinnitus. Don't let them make you shut up about it. Direct people to information about it that's relevant to you. That's just some of the small things you can do :)

@PDodge reach out to @Markku. I am sure there is always some work that can be done to help Tinnitus Hub grow and spread awareness.

Yea. I wake up to the sound of a blender every single time I fall asleep on the couch. My dad practically yells in my ear. Sick of my family but oh well.

Comprehend. Some people don't change their habits....

I dont think family members do it on purpose. They honestly don't understand. Dont hold it against them!

I know. I've met people who say they got used to their tinnitus and "they don't hear it anymore," and I can get used to it like them. But I hear my tinnitus all the time.

Yes. A million times yes.

How is this even possible?

My doctors think that I have the genetic predisposition (gene expression or mutation) to lose hearing easier than most people.

It would make sense since I was born with a genetic defect in my eye that resulted in surgery to remove my lens in that eye when I was ten days old.

Who knows how many genetic things I have going on.

I'm sorry to hear that. I hope you start feeling better soon!

I love eating crunchy food cause it masks my T perfectly. Wish I could just eat chips all the time :D

I'd have more faith in FB. Youtube is going downhill fast for new users and even old users because of their new rules and regulations.

Right, maybe what I should have said was do something cross site, like Dtube or Vimeo, limiting it to one site may make it harder to get the message out.

Also look up sounds similar to Yours to add to the video as an example to give folks a feel for what it's like, quote key research sites to put facts out, get this community to back You maybe not financially but in other ways, even if as witnesses they could be assets.

But did it stick?

One can only hope right? I think with my neurologist it did because I told him "well now when you have patients coming in with my symptoms you won't dismiss it at something else" and he nodded.

Oooh I would have paid to see that, not that I have anything against Him or whatnot, still professionals today forget that their learning came from folks Who thought outside the box or knew first hand, was there smoke in the room after?

I feel the same!

I wish i had my old tinnitus too.

ADs can have that capability of modulating the T sound. Sometimes it gets better, sometimes it gets worse. In my case, I would say that is just sounds a bit different, more uniform and slightly easier to deal with. Main AD effect is that I do not care as much about the T.

@InfiniteLoop which one worked for you?

@vermillion. I am taking a low dose of Celexa (5 to 10mg). The standard 20mg tends to agitate the T.

Yeah, Whisky Tango Foxtrot?! Your just gonna quit? use earplugs, wear headphones during play sessions, don't just quit the things You love because of Tinnitus, do You remember the guy that quit? neither does anyone else.

I see T and fury are in Your name, is it Tinnitus fury or Your fury against Tinnitus, ROCK ON! seriously if You quit that means one less potentially good band goes with You, and that's just unacceptable.

I was a pro jazzer for over 50 years - International Festivals, concerts, clubs, cruise ships etc...
I packed up three months ago.
A wise decision for me.
Best wishes
Dave x
Jazzer

:(

I'm sorry to hear that. I think not knowing what causes increases/spikes is one of the worst parts.

How long have you had the increase?

Also floaters?

A few. I've had one floater for awhile now

is visual snow caused by T? What about eye floaters?

God, how can you like salmon? eeerrrkk
Well, if you enjoy it that's great :)

Fantastic! What a great birthday present!

I've lost count of how many times I've habituated. Anyway happy birthday derpytia.

Thanks so much for your reply @derpytia!! I have got your message but could not find a reply button in the inbox. So the conversation is read only. I am not sure if this is because I am a new member ... So maybe I ask you here.
Do your tinnitus amplify after you wear the musicians earplugs? If yes, how is the intensity of it? Can you withstand it when using the musicians earplugs for hours of lectures?

I need to break my message to two as a popup window said I can only enter less than 420 characters in this wall message ...
You can reply me by message {"conversation"). And
It would be appreciated if you can pass me your email address("conversation" again) so I can further communicate with you. Thanks a lot again!

Really happy to read this @derpytia! I've read your stories. You deserve many Good T days! All the best!

Same here; but if it got worse it can get better. Deep breaths and plenty of background noise!