billie48

I had 2 episodes of hyperacusis which lasted about a year each time. Reactive tinnitus may be a less intense form of hyperacusis. I tried to protect from loud noises or loud venues at first, then progressively cut back on protection. It is a hardening process to train the brain to get used to sounds. Hang in there. Time will help heal hyperacusis for many people.

Billy, I hope you are doing well now. I have catastrophically reactive tinnitus that was felt in my ears. Now half the sessions of cranio-sacral therapy it is felt in the head and it is much worse subjectively. What can we say about this movement of noise? Have you had this happen, was your noise REACTIVE?

Thank you. Glad that you find it helpful. Positivity is always helpful to reduce stress level, which then may help to calm tinnitus in the long run.

I have custom musicians ear plugs. The occlusion drives me insane. The sound of my body is loud. If I cover any of the outside noise the loudness is unbearable

@billie48 hey, on both occasions did you have pain hyperacusis( stabbing/burning) or loudness ?

I did have fleeting stab of pain but not a daily thing.

It’s been 8 months. I ha hopes that it would get better. At first I had better days. Now every day worse. Does not matter how much I try to protect many times a day I am around some sort of noise. I have had to take a leave from work. I have seen many a doctor. Protecting my ears while out is close to impossible for me. T is blasting with them on plus talking and chewing or so did my body is super loud.

Benzo’s worked best but not good for long run. I am desperate. I had the hearing loss on mirt but actually thinking of giving them another try. That’s how bad it is. Zoloft made T worse plus restless legs. Ciprilax went insane.

Sorry for long post. God please help me. I have lost joy in all that I loved. This has consumed me.

@4Grace , thank you for the kind words. Glad the success story has helped you. I am not an expert on tinnitus but I can share my experience, hopefully this can help you. God bless.

@billie48 - I deleted my profile posts because I did not want to have negative stories on here. To be honest though I am suffering a lot.

Hope your conditions will improve which is possible if we are more accepting of the new normal.

@billie48 Also, were you working a job while dealing with the severe reactive T and H? Right now, I'm not working. I miss doing it but I worry about possibly making the T and H worse by going back to work.

@billie48 I've been looking into possibly making a career change that could accommodate my circumstances better. Not sure if there are any jobs outside the home that won't have some risk involved though. But maybe I could try to find a job that I could do remotely from home in a quieter environment.

About protecting the ears, it is often suggested that we need to be exposed to normal ambient sounds of the environment. But each person's sound tolerance is different. I think if you can afford it, taking a break is a good way to have less stress. Again career change to a less stressful job is a good idea if you can afford it.

Loud tinnitus was devastating to me the first time it happened more than 10 years ago. I had relentless anxiety and panic attacks daily and i had to depend on medications to survive. It took me 2 to 3 years to feel more normal bit I consider myself a tougher case than others because of my prior history of suffering from anxiety and panic disorder plus PTSD.

Thanks Jonnie. All the best to you and your IT career.

I wish I can help but I have no experience nor knowledge about foods causing tinnitus except some people complaining about MSG, caffeine, gluten, too much salt etc. Please post your question in the main support forum so more people can comment on it.

@Elles - food same thing with me

I don't know much about those treatments you mentioned. I think the common approach to calm the nerves is to do calming exercises such as outdoor leisurely walking, light jogging. Try also deep abdominal breathing.

There is no setback much in this 2nd episode emotional wise. I know what to expect like hearing loss, hyperacusis, loss of balance and loud tinnitus. Just accept them and move on knowing time will help and it did as I am used to the new normal now.

Yes the 2nd episode is much easier emotionally to handle. I gradually habituate to the new tinnitus. But the hearing on left ear has not come back. Thanks.

Where you been at @Jeff M. ?

Hi Jeff, I suffered sudden hearing loss on my left ear last December. But life goes on with me. Have been busy with gardening and fishing despite what the ears and tinnitus want to do. Lol.

Thanks for contacting me but I am not sure if you mean you want to talk to Kmohoruk. But you may want to check out the tinnitus clinic at St. Paul Hospital which offers treatment service. The wait time may be long if using MSP provincial medical plan but you can pay to see them faster. Here is the link to their site:
http://www.providencehealthcare.org/tinnitus-clinic

Sorry, I meant you :) I was copying pasting that message to as many Lower Mainlanders I can find. Tinnitus is a very lonely experience so I am keen to build a support network!
How was your experience with the Tinnitus Clinic? I thought they only did CBT.

Thank you Eric. You may have to wait a few weeks for your PM to work as this is a policy of the forum for new members.

Thank you Rogi. You are so kind. All the best to you too.
Billie

Yes Zigs, I stay behind to help others out of compassion for them. Hope others don't have to suffer as much. That is my sole purpose hanging around.

Hi COYS, glad that my story has helped you. I am unsure of the cause. Could be acoustic trauma.

Is your H now completely gone? My pain is slowly going away but my ear clicking is still there

new users cannot send PM's for atleast 24-48 hours

Thank you @Contrast. That explains it. Thanks.

When I click on your name in my intro thread, I see Billie48, Male from Canada. I see five light blue links to click on: Profile page, Follow, Ignore, Find All Posts and Find All Started Threads.

I am not sure if this is due to the newness of your username. You may want to ask others about this issue in the main support forum or better yet search out @Markku to ask him if there is a condition for starting a conversation.

Yes, thanks to @Contrast's clarification, new members can't do PM right away and that is why you don't see that option.

I am not a doctor and so it is not for me to say with certainty about her T. But anxiety and stress are known to make T worse. So if her spike is due to anxiety and stress, then when the anxiety and stress is less, it is reasonable to assume that her T will go back to former level.

Do you know what her anxiety is about? Usually anxiety caused by distorted thoughts or cognitive distortions can be helped by CBT counselling and also mindfulness meditation. If she has anxiety attacks all day, then the doctors should give her some anti-anxiety drugs to help her.

Sure. You can click the conversation mode to start some private messaging as this profile only allows limited number of characters per post.

Sorry about your mom. Perhaps ask her to join in the forum so everyone here can give her some support. My first year was filled with sufferings and was on Ativan & Prozac with sleeping pills. The 2nd year was better but still with lots of setbacks. I felt much better and more stable on the 3rd and after that I wrote my success story. Perhaps show her my story to give her hope. Take care. God bless.