I've become a bit more assertive towards doctors. If they try to brush off my problems I talk over them until they listen and then educate them and recommend resources and search terms and websites. We have to make them listen.
One can only hope right? I think with my neurologist it did because I told him "well now when you have patients coming in with my symptoms you won't dismiss it at something else" and he nodded.
Oooh I would have paid to see that, not that I have anything against Him or whatnot, still professionals today forget that their learning came from folks Who thought outside the box or knew first hand, was there smoke in the room after?
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