lymebite

No did not try Celltex. I tried a stem cell transplant locally near where I live but did not help.

Would you mind filling me in on what sort of stem cell treatment you got. Celltex is recommending I get IV stem cells, but another local doctor I’ve talked to wants me to get stem cells/exosomes injected through nose blood vessels which supposedly go directly to brain. Not sure which route to go.

I did adipose bone marrow. Basically the exact same thing Celltex does but but not as good. My stem cells were extracted from me (from my bone, but they can also be extracted from fat) and then injected back into me via IV the same day. Versus Celltex which extracts, waits about a month for the extracted cells to multiply greatly in number, and then injects back via IV.

It was a cool and lonely breezy afternoon
(How does it feel when you've got no food?)
You could feel it 'cause it was the month of June
(How does it feel when you've got no food?)
So I left my gate and went out for a walk
(How does it feel when you've got no food?)
As I pass the dreadlocks camp, I heard them say
(How does it feel when you've got no food?)
Pass the Dutchie 'pon the left hand side (I say)

Thanks for your kind words! I honestly don't know. I thought there was a chance FX-322 might help but that's had the big setbacks this year with the clinical trials. The reformulated version of retigabine / Trobalt that Thanos Tzounopoulos is working on could potentially help, but that feels like it is probably at least 5 years down the road.

Thanks for your response! Yea that was disheartening I didn’t have any auditory issues then but I’ve read the thread. I just wish I had regular tinnitus instead of pain H and distortions it’s so hard at times

I thought maybe could be cause of H and T that started many years ago. Tests all came back negative though. I did get bit by one this year, pulled it out, sent it to lab, came back positive for Lyme, I took doxycycline to kill any Lyme.

I often have chronic 24/7 chronic ear pain. When the pain is especially bad I find the LLLT lessens the pain. It has not quieted my T.

@Aleksandar, as someone who tried LLLT with the Konftec but only had spike, I strongly suggest you try it for only 5 minutes the first time, as opposed to the recommended 30. I would wait a few hours and see if you spike - if you don't, move the duration up. When I did it for 30 minutes I had such a big spike it made me have a breakdown.

I was never able to figure out how to cut them. I tried what people said to do but it did not affect the width of the spectrum.

No change, still cannot tolerate them.