Pinhead
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Pinhead

Member, Male, from USA

"I understand, I get migraines." Oh, and they go away? Then you have no idea. Jun 8, 2024

Pinhead was last seen:
Jun 15, 2024 at 7:10 AM
    1. Pinhead
      Pinhead
      "I understand, I get migraines." Oh, and they go away? Then you have no idea.
      1. Juliane
        Juliane
        Exactly. This is exactly why tinnitus and hyperacusis are among the worst conditions you can get. There's never a break! If they came and went like with migraines, I would not be bothered to complain about it. Such luxury conditions are not worth mentioning. In fact, I dare say that most people would not be able to endure T and H.
        Jun 8, 2024
      2. kingsfan
        kingsfan
        Migraines do give you somewhat of a break as you typically don't suffer from them every single day of your life, but they can be relentless. When I get them they tend to last for days or weeks at a time, but then they'll go away for an extended period of time. I'll never forget the Nov 2019. I had a migraine that entire month.
        Jun 8, 2024
        L along the way and gameover like this.
      3. crescentsky
        crescentsky
        Migraines are no fun. But I will gladly choose my reoccurring migraines over shit tinnitus. At least I'll feel 75% content/per month. vs 100% under house arrest. They will never understand the constant 24/7 T/H/N/ETC.
        Jun 9, 2024
        L along the way and gameover like this.
    2. Pinhead
      Pinhead
      "Reduce your stress!" Okay, tinnitus is the most potent cause of my stress. Thanks for the useless advice.
      1. Varda
        Varda
        Money can be used to reduce stress in a lot of ways but you'll notice no one that tells you to "reduce your stress" ever just forks over cash
        Jun 8, 2024
      2. BlueMoon86
        BlueMoon86
        That's because everyone thinks tinnitus is just some faint jingle bells or cricket sounds. I got recommended meditation. Yes, I will meditate with what sounds like a small airplane propeller in my skull.
        Jun 8, 2024
        gameover likes this.
    3. Pinhead
      Pinhead
      Discovery: Jameson whiskey makes my ringing worse, and bourbon does not. Any ideas why???
      1. 4Grace
        4Grace
        You can drink!!! What a blessing. Must be something in that Jameson. Cheers with the Bourbon. Have one for me please.
        Jun 6, 2024
        Juliane likes this.
    4. 4Grace
      4Grace
      How have things been since the wedding? Hope you are doing better.
      1. Pinhead
        Pinhead
        @4Grace It's been up and down since then. For two days after the wedding I had SEVERE TTS or something, unlike any thing I've ever experienced in my life. The high-pitched shrieking has died down but it's still there. Now my tones are just more intrusive in each ear.
        Jun 4, 2024
        BB23 and 4Grace like this.
    5. Pinhead
      Pinhead
      Every noise is causing my ears to feel full. Footsteps, water, even talking, all accompanied by a new shrill shriek that I've never had.
      1. Sansa likes this.
      2. 4Grace
        4Grace
        I am at this point too.
        May 31, 2024
      3. 4Grace
        4Grace
        The problem is I can’t survive staying in. Also cannot survive ear plugs. The more I walk in the woods or exercise the worse I get. I’m in big trouble. Cannot go inside stores. Nothing. I tried. No limit worsening. Nightmare!!
        May 31, 2024
      4. 4Grace
        4Grace
        I have been thinking of you and really hope you are okay. I am so sorry to hear this news.
        Jun 1, 2024
    6. Pinhead
      Pinhead
      Went to a wedding with my girlfriend Saturday. I will regret it for the rest of my life. Hearing is muffled and tinnitus is very reactive.
      1. Juliane likes this.
      2. View previous comments...
      3. 4Grace
        4Grace
        So many people have T with no pain or worsening. Seems like everyone I know. Seems so much different for us.
        May 31, 2024
      4. 4Grace
        4Grace
        One of my friends had bad T but he lives as if he does not have it. Wedding. Concerts. Everything. His does not change with movements food or sound. He can have a bucket of ice cream no change. Concerts. No change.,
        May 31, 2024
      5. Juliane
        Juliane
        @4Grace The friend you describe has mild T. A non-issue, I would say.
        Jun 8, 2024
    7. Pinhead
      Pinhead
      It's like a permanent state of psychosis... I can't tell what auditory stimulus is real anymore. Reality is lost. I'm gone.
      1. Juliane, Sansa, gameover and 4 others like this.
    8. Pinhead
      Pinhead
      The worst part of living now is waking up. Walking outside, hearing my ears scream as a car drives by. They scream as I ride in the car.
      1. BlueMoon86, Sansa and _Shoto_ like this.
      2. 4Grace
        4Grace
        I am the same. Talking in a cell phone with my hands over the speaker hurts my ears.
        May 31, 2024
    9. Pinhead
      1. tpj and weehiru like this.
      2. weehiru
        weehiru
        Trent Reznor's lyrics always manage to capture my emotions so viscerally!
        May 18, 2024
        Pinhead and tpj like this.
      3. BlueMoon86
        BlueMoon86
        NiN are my favourite band of all time. It hurts to know I'll never experience their music in all it's glory again.
        May 18, 2024
        Pinhead, weehiru, tpj and 1 other person like this.
      4. Pinhead
        Pinhead
        I’m not a huge fan, but he wrote this song specifically about his struggle with tinnitus. It’s very relatable.
        May 20, 2024
        weehiru likes this.
    10. Pinhead
      Pinhead
      My prediction: There will be a connection in the future between tinnitus and the heavy presence of COVID-19 in the trigeminal ganglion.
      1. gameover, Juliane and weehiru like this.
    11. Pinhead
      Pinhead
      Had a complete and total mental breakdown this morning. My main tone increased in volume many times over.
      1. gameover, L along the way and Higo like this.
      2. Higo
        Higo
        Sorry to hear :( hopefully it's only a temporary increase. Hope it gets better soon.
        May 17, 2024
        gameover and L along the way like this.
      3. 4Grace
        4Grace
        So so sorry. Does your tinnitus change by touching your head? Or moving your neck? Foods?
        May 31, 2024
    12. Pinhead
      Pinhead
      "What does it mean to be alive except to court disaster and suffering at every moment?"
      1. Juliane, _Shoto_ and L along the way like this.
      2. 4Grace
        4Grace
        Fk! Who would have ever imagined. I tried so hard. Exercising. Walking in nature. Best shape of my life. Something is eating away at my auditory nerve. Clenching teeth becoming worse and worse. This is not a life
        May 31, 2024
      3. 4Grace
        4Grace
        I feel like anyone without this condition is blessed. I think stable T is not a problem. H - N reactive T is a monster.
        May 31, 2024
    13. Pinhead
      Pinhead
      Almost told my Lyft driver to pull over and drop me off on the highway. The tires on the road just make my ringing unbearable.
      1. BlueMoon86 likes this.
      2. kingsfan
        kingsfan
        You don't wanna be out of your car on the side of the highway. Trust me. Been there. Done that. Paid the price.
        May 15, 2024
        tpj, SilverFox and Pinhead like this.
      3. BlueMoon86
        BlueMoon86
        My tinnitus isn't generally reactive to noise as much as it is my own body movement but being in a car is a horrendous experience.
        May 15, 2024
      4. 4Grace
        4Grace
        @Pinhead - we are so much in the same place.
        May 31, 2024
    14. Pinhead
      Pinhead
      Reaching the end. I can hear it in the shower now. There is no peace for me now.
      1. L along the way, BB23 and gameover like this.
      2. View previous comments...
      3. BlueMoon86
        BlueMoon86
        I heard mine over the shower from the very beginning. Completely different low pitch. My collection of multiple overlapping sound videos are no longer working tho.
        May 15, 2024
        gameover likes this.
      4. 4Grace
        4Grace
        @gameover - do you have hearing aids protection on in the shower?
        May 31, 2024
      5. 4Grace
        4Grace
        @gameover - sorry - do you wear earplugs in the shower?
        May 31, 2024
    15. Pinhead
      Pinhead
      My office mate just had temporary tinnitus in both ears as we sat together. I looked him in the eyes and said, "Now imagine that...forever."
      1. Angieuurope, Kiyomi, Ngo13 and 2 others like this.
    16. Pinhead
      Pinhead
      Came to work and my boss said it looks like someone "punched me in the face". Sinus infection in full swing.
      1. Kiyomi likes this.
    17. Pinhead
      Pinhead
      Hopefully this is just a spike. I can't sleep. I can't hear the TV. I have to blast cover noise at 85db to drown it out. Help.
      1. aab, L along the way and gameover like this.
      2. BrOKeN_1
        BrOKeN_1
        Change up your masking maybe. Some tones cover at much lower dbs. Try..
        May 13, 2024
      3. BrOKeN_1
      4. BrOKeN_1
        May 13, 2024
    18. Pinhead
      Pinhead
      Girlfriend went to a sauna today. Sitting in a boiling hot quiet room sounds like actual hell.
      1. gameover and SamRosemary like this.
      2. SamRosemary
        SamRosemary
        I’ve heard it could be good for T though.
        May 13, 2024
        gameover likes this.
      3. Pinhead
        Pinhead
        Maybe. I can barely walk down the street, though. Don’t want to risk it. I wouldn’t have any fun.
        May 13, 2024
        gameover likes this.
    19. Pinhead
      Pinhead
      Three new tones and muffled hearing because of this infection. Never leaving my house again.
      1. BB23 likes this.
    20. Pinhead
      Pinhead
      Cool. I have a fever and some kind of pimple IN MY EAR CANAL.
      1. Daniel Lion likes this.
      2. Pinhead
        Pinhead
        This will probably increase my tinnitus dramatically. This is hell.
        May 9, 2024
    21. Pinhead
      Pinhead
      Just spent a bunch of money on a turntable setup I can’t even listen to.
      1. Thizzle
        Thizzle
        I feel you on that one
        May 8, 2024
        Pinhead likes this.
    22. Pinhead
      Pinhead
      When you are catastrophically disabled, there is no time for self-improvement or enjoyment. There is only survival.
      1. tpj, Sansa, streifzug and 3 others like this.
    23. Pinhead
      Pinhead
      I seem to have more SBUTTs when I eat better, take vitamins, and exercise. What the hell!?!?
      1. gameover likes this.
      2. View previous comments...
      3. Thizzle
        Thizzle
        Would a SBUTT be considered just a fleeting T episode?
        May 8, 2024
        Pinhead likes this.
      4. Pinhead
        Pinhead
        Yes.
        May 9, 2024
      5. Thizzle
        Thizzle
        I had a crazy one the other night in my left ear and had a sensation go to my right ear, my left ear sounded like it went deaf for a couple seconds , definitely hope it never happens again
        May 9, 2024
    24. Pinhead
      Pinhead
      Two temporary tinnitus episodes in two hours. Help!! I don’t want it to become permanent! No more tones!
      1. weehiru, beefling, SilverFox and 2 others like this.
    25. Cata
      Cata
      Hi, I'm taking the liberty of writing to you here. I saw one of your posts where you said you had no trouble sleeping. Do you have loud tinnitus with horrible tones? How does your brain manage to ignore this and get a good night's sleep???
      1. L along the way likes this.
      2. Pinhead
        Pinhead
        It is honestly a total mystery. It's almost like I 'black out'. I don't usually remember coming close to sleep.

        I think my brain is just happy to finally turn off. I usually have water noises playing and a very loud air conditioner as well, but neither of those cover the noise in my skull.
        May 6, 2024
        L along the way likes this.
    26. Pinhead
      Pinhead
      A friend came to visit today and his laugh peaked at over 100 decibels multiple times. I’m fucked. I’ll have hyperacusis by tomorrow.
      1. streifzug, Juliane and gameover like this.
      2. Pinhead
        Pinhead
        It makes me viscerally angry every time he laughs. It's so loud that my other friends cover their ears.
        It's obnoxious, and deep down I envy his ability to enjoy life. I can no longer feel anything close to that.
        May 7, 2024
        Juliane likes this.
    27. Pinhead
      Pinhead
      I honestly feel like I am in a permanent state of psychosis. I can’t tell which sounds are real anymore.
      1. SilverFox and gameover like this.
      2. JeffToob
        JeffToob
        I relate. It's blaring, constant and intrusive. Used to think it was music i missed the most. Now it's silence I miss.
        May 3, 2024
        Juliane, SilverFox and gameover like this.
      3. Karolina
        Karolina
        Me too. My dysacusis got really really bad lately, I often cannot differentiate between my tinnitus and distorted external sounds
        May 4, 2024
        Pinhead likes this.
    28. Pinhead
      Pinhead
      I'm blown away by how my brain can push most noise to the background, seemingly in FAVOR of concentrating on my tinnitus instead. What? Why?
      1. gameover, kingsfan and Sansa like this.
      2. kingsfan
        kingsfan
        I have never been able to push any noise or distraction to the background. This is the crux of the issue with my T.
        May 3, 2024
        Juliane and gameover like this.
    29. Pinhead
      Pinhead
      I miss books. I miss reading and being able to talk about what I've read. God, this is so isolating.
      1. View previous comments...
      2. Pinhead
        Pinhead
        I mean, for most of my life, I sat in quiet and read. Years of philosophical research to work towards my PhD. So many worlds I made in my mind through fantasy and sci-fi literature, and I can't imagine a single image now. It's an empty space between my two ears.
        May 2, 2024
        SilverFox and BrOKeN_1 like this.
      3. BrOKeN_1
        BrOKeN_1
        I feel very much the same way a good deal of the time if not most. The focus toward the the ringing and obsessive monitoring of this condition seems to paralysis free thought. Weirdly enough I think I do it to myself though. Because even while I find it difficult to concentrate. I can ironically sit here and read threads from tinnitus talk all day.
        May 2, 2024
      4. Ngo13
        Ngo13
        I found the only way I was able to read for awhile was in a hot Epsom salt bath with my violet noise mix playing. Sometimes a candle. Now I still read in the bath best but I'm able to do it in quiet. I read mostly fantasy, so it's my escapism and it's one of the only times I don't "hear" my T.
        May 3, 2024
    30. Pinhead
      Pinhead
      Beyond tired of the "You'll get through this" attitude of people around me. It's been three years-YOU get over it.
      1. View previous comments...
      2. Pinhead
        Pinhead
        At this point, it's like asking me to get over the fact that I have legs and stop walking everywhere. It's absurd and pretty annoying.
        Apr 30, 2024
        BrOKeN_1 likes this.
      3. BrOKeN_1
        BrOKeN_1
        I feel ya. Sorry you don't have more sympathetic people around.
        Apr 30, 2024
        Pinhead likes this.
      4. 4Grace
        4Grace
        So sorry. So true. 3 years. I can’t believe it’s been around 15 months for me. Can’t wait at 18 months I should be fully habituated. :)
        May 1, 2024
        Pinhead and BrOKeN_1 like this.
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  • About

    Gender:
    Male
    Location:
    USA
    Occupation:
    Nonprofit
    Tinnitus Since:
    04/2021
    Cause of Tinnitus:
    Unknown
    "Unbearable, isn't it? The suffering of strangers, the agony of friends. There is a secret song at the center of the world ... and its sound is like razors through flesh."