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...enough that it makes me feel off balance when walking or standing." Sounds like the issue is more than myoclonus. You should see a neurologist.
I think I have myoclonus. My left ear thumps and my left shoulder and left side of my neck have been jerking non stop for the last 3 weeks.
...- sounds like a possible tempor tympani muscle contracting, or myoclonus, this sounds like a fluttering or maybe a banging on the ear. Mine is...
...The neurologist almost immediately diagnosed palatal myoclonus and put me on 250 mg of Depakote. Within 4 days, the persistent noise of 5+...
The following is a search on any discussions on Middle Ear Myoclonus. Check out the posts to see if there are helpful information....
...Your symptoms are more in line with TTTS or Middle Ear Myoclonus. Dysacusis, or sound distortions, messes with how we perceive natural sounds...
...Tensor Tympani Syndrome), which is a type of MEM (middle ear myoclonus). I don't get it from typing or any sounds except sometimes from voices,...
...experiencing episodes of what I now suspect is Middle Ear Myoclonus. Sounds like someone tapping on a microphone in my right ear. At first it...
...in my ear so having surgery to hopefully fix it it’s cause of my myoclonus. if ur struggling rlly bad with T see a neurologist and ask about meds
...has done to me. I miss my life in a big way. TTS/MEM is like a myoclonus of the ear muscles I’m pretty sure I have that as well as damage to my...
I've suffered from hyperacusis in my left ear for over 12 years now. The severity comes and goes, but it's more or less always there. Sometimes...
Is it just a vibration sound, or something that you also feel in your ear/s? If you can also feel it could be something muscular like myoclonus
A few months ago I developed MEM, though I’m not sure which muscle is the problem. But I have a pretty much constant flutter inside my ears that...
Yes, sorry for the confusion, it's also called tensor tympani myoclonus.
That does sounds like Tensor Tympani Myoclonus Syndrome (TTTS), which is a type of Middle Ear Myoclonus (MEM). It can react to sounds, to...
MEM can be cause but many thing, medication, stress, anxiety, TMJ, lyme disiese, Myoclonus in the entire body,etc
...early 50s. I'm seeking advice on how to treat essential palatal myoclonus. I've read a lot of the threads here, but I didn't know if there is...
...professionals I've seen in the last year has put me forward for physiotherapy. What kind of physiotherapy is there for Middle Ear Myoclonus?...
Phase 1b underway for AUT00201 in myoclonus epilepsy & ataxia: Autifony Therapeutics announces commencement of a US Phase Ib study of AUT00201, a...
...worse in left) And I have been diagnosed with: Middle Ear Myoclonus (left ear) Eustachian Tube Dysfunction (both ears) Retracted Ear Drums...
My name is Emma and I live in Sweden. I’m new here and thought I’d say hi. I’ve had ringing in my ears since 2016 which can be tough at times. But...
I also have ear muscle twitching (ear myoclonus).
To be clear, I’m not trying to argue. Can you point me to the reports of resolution of hyperacusis, noxacusis, etc, as an outcome of the surgery?...
...fluttering of the eardrum, I suspect rather Stapedial Tendon Myoclonus. The vibrations are not the problem themselves, but they are likely the...
...appointment today and was told they think I've got Middle Ear Myoclonus. My tinnitus has been off the scale and now things make sense as to...
Great news! Glad it cleared. Your condition, palatal myoclonus, seems to be exceptionally rare. It can result in objective tinnitus. Glad you...
...got a question though. How did they decide on the Middle Ear Myoclonus (MEM) diagnosis? Do you have thumping/fluttering/spasming in the ear?...
...noxacusis, so that could be a strong indication of middle ear myoclonus which might even be related to or a contributor to my noxacsis. Either...
@in_LA Tonic Tensor Tympani (TTTS) and Middle Ear Myoclonus (MEM)
Hello, I am a fellow Palatal Myoclonus/Middle Ear Myoclonus sufferer. It’s been 9 years since the ear started, 8 for the palate. I am about to...
Middle Ear Myoclonus. Love you too.
The symptoms he’s describing sounds like a syndrome called “MEM” (Middle Ear Myoclonus).
...or something. My guess is that this is TTTS (not Middle Ear Myoclonus). I can plug this very ear to stop that fluttering, not the other one,...
I'm sorry to hear that you are struggling with tinnitus. It can be frustrating, especially when it affects your sleep. Have you tried any...
Yes middle ear myoclonus, a type of tinnitus. <3
...four years ago that ritrovil helped resolve your middle ear myoclonus, can I ask what your symptoms were that it helped resolve and how long it...
Are there any other accounts about these procedures for people with hyperacusis? Any type of surgery worries me but catastrophic hyperacusis has...
...with severe reactive tinnitus but was only given an all clear on myoclonus, a pat on the back and told not much else could be done. No mention...
...with Botox, except when the ear spasm happens due to Palatal Myoclonus where Botox does help. I heard that doctors are scared to put Botox in...
...on from a middle ear surgery that I had to cure my middle ear myoclonus. My tensor tympani and stapedius muscle were cut in my right ear which...
I think you guys may be describing Middle Ear Myoclonus (MEM). A rare form of tinnitus.
...two groups in facebook called tonic tensor tympani / middle ear myoclonus. I will doctor santos in Boston and the best in Europe is Manohar...
...about our tinnitus journey. He and I had surgery for middle ear myoclonus with the same surgeon within days of each other (almost exactly a...
...spasms I have, make it unlikely that I have essential palatal myoclonus Over the next month, I'm getting tested for spinal tumors, Wilson's...
Middle ear myoclonus experts, I am struggling to figure out what's going on and having a hard time understanding exactly what symptoms middle ear...
...am really sorry that you are dealing with this. Have Middle Ear Myoclonus or Palatal Myoclonus been ruled out by your doctors? To me, the...
I know Middle Ear Myoclonus (MEM) appears to be quite rare. Mine is pretty bad right now. Is there anything I can try such as muscle relaxers or...
...and ears cracking at sound, is it hearing loss, middle ear myoclonus, hyperacusis, etc? Does anyone here have any tips or advice for seeing...
Hello, I am in the same boat. I am taking Mysoline for my Palatal Myoclonus and it does decrease it, however, it doesn't stop it. I am going...
Sorry I should’ve specified mem is middle ear myoclonus. I’m quite skeptical on trying the muscle relaxants because they indicate that it can...
...my bad thoughts. The fluttering/clicking--that sounds like it could be MEM (middle ear myoclonus) maybe? Have you seen a doctor about your...
Feel sadness yes - but no responsibility. Your suggestions were kindly meant and could have had no influence on this tragic outcome.
...on for over five years because he read somewhere it can cause myoclonus. If that doesn't work, he said we can try the Botox. I'll let everyone...
It doesn't work for me. Made my now diagnosed middle ear myoclonus worse. Keep away is my advice.
You have tinnitus and hyperacusis. That'll be $275 please...
...like water dropping on my eardrum - click, click, click all day and night. It is called tensor tympani myoclonus. It responds to Amitriptyline.
That is very interesting. Hopefully “rare” not meaning untreatable? Do you have any good threads on finding more information on this? I have had...
Lots of ear issues this year. In the beginning of the year, I had a tinnitus spike caused by Lenire. That mercifully ceased a few weeks after I...
...I went to an ENT and asked him if he thought it was Middle Ear Myoclonus and he said yes, since it's not going along with my heartbeat. So it...
So sorry to hear that. How loud is your tinnitus? Did the ear muscle vibrating get resolved? Did you have clicking or thumping? Was the surgery...
