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Hey there! I'm trying to throw together an organized list of medications and supplements for people with hyperacusis to try. I've included short...
A letter all auditory specialists should read.
Thanks for the reply. It’s much appreciated! I’m fortunate where I live and work from home is on a small acreage, not inside a traditional...
Fournier and Noreña recently released an interesting paper that somewhat follows up their 2018 acoustic shock study. In the study, one of the...
I am currently investigating the possibility of using multiple drugs to target specific proteins and receptors related to hyperacusis and using...
Yes, that's good. I spoke more to everybody about how I see things, not only you specifically, but that's alright :) From what I read, it doesn't...
I know n=1 anecdotes aren't super helpful, but my MEMR has become so strong and pronounced in the last year that I can physically feel it reacting...
You need to be careful about protecting your ears @Muggumbo. If this is not done correctly, you could make your ears more sensitive to sound and...
Found this, rather interesting. I have high frequency hearing loss but still the low frequency sounds like motorbikes bother me more:...
You are entitled to your views and opinions because I started this thread. You have highlighted the reasons why I believe keeping things simple...
Originally, I was going to type a long post going over some things, but I have done this a million times before. It's useless, being an armchair...
Sounds good, bro. I wish healing for you and everyone. No matter what, time, quiet, and no medications are the best treatment we have. I'm used...
We have an update from Auricle CEO Jon Pearson: I found this email every encouraging and reassuring!
I feel the same way, even after more than two years into my worsening of tinnitus, which later included hyperacusis and TTTS. I already had...
I'm also hopeful about this new avenue. It might expand our knowledge of what influences tinnitus long-term. Or what are the things that have...
Thanks. I actually read your story before making an account here lol. I'm hoping that mine goes away since I don't seem to have any measurable...
I talked with the lead doctor at StemCells21. He described what they did before: injections around the ear, intranasal, IV infusions and the...
They most likely know about tinnitus reduction happening from patients taking Trobalt in the past. Whether they want to test it on tinnitus...
To answer that, you would need to look at how hyperacusis patients responded to Trobalt. Might give clues.
I'm not being judgemental at all here, but I don't give a flying fuck about silence. I had (and still do, to an extent) have multi-tonal,...
Do you still feel that XEN1101 will benefit hyperacusis sufferers as well? This is one of the potential treatments I'm really hoping will help.
Pretty sure Otologic Pharmaceutics is part of Hough Ear Institute.
I could only find evidence for aspirin being ototoxic, not the other P2Y12 blockers. To be honest I am not really sure. I made this thread...
- I appreciate those in this community who have a good eye to not only read studies such as this but analyze the information and then summarize...
It was both. At this point I would not recommend it, I think one needs to have a decently high concentration of growth factors and/or exosomes on...
I am a recording musician (home studio) with all three conditions and otalgia (ear pain from normal sounds) in particular has been my biggest...
Good to hear your hyperacusis is better. Was that loudness or pain hyperacusis? I hope it works out well for you. Good sign that you're...
Hey @Pixelito. Thank you for your support. I envy you your optimism. Me, I still cannot believe I stepped onto the mine called...
If you really go through the Trobalt User Experiences thread with a fine tooth comb and focus on the users that used Trobalt at c. 900mg...
This year, there were approximately 1700 people registered for the Association for Research in Otolaryngology (ARO) midwinter meeting held...
Maybe Otologic will take it over. It does look promising though. I'd imagine there would be some VC who would like to fund it since it's already...
Great article, @Hazel. It still holds its relevance 4 years later as it really delves into the complexities of tinnitus research and the extreme...
I think the goal is to remove those who are attempting to enter the trial for their tinnitus and not hearing loss. If the treatment is successful...
Let's put this in perspective: Oxygen = free radicals. Pressure = barotrauma. Together = potential for mechanical impaction / fistula, and even...
Manipulative and so unfair! Please, this is a support group. He is not only speaking about the loss of silence but about a level of tinnitus...
I want to preface this by saying that I do not intend to minimise or downplay others’ suffering. There are lots of people on here with cases far...
Keeping Things Simple with Tinnitus People have often told me the onset of their tinnitus felt like riding an emotional roller-coaster, because...
Hi dolpinskin, I am just extra cautious and may inform myself a little too much before receiving medical care! I think it's promising that a...
Wonder if people with hyperacusis will benefit from this?
Hello everyone, just wanted to share my experience. I apologize for the long story in advance, but I am just trying to put every detail in it. My...
I would not go anywhere near HBO therapy. A lot of people have worsened and without surprise due to middle ear pressurisation issues....
Not seen you around in a while @Philip83. Hope you're keeping well and that the hearing aids are continuing to work for you. In any case, should...
I wanted to start a new thread specifically on Stem Cell Secretome (SCS). It is a Stem Cell-based regenerative treatment, but without the cells...
Six month update The tinnitus volume has not diminished and I don't see any signs of this happening so far. In fact, in the last month I...
I need some help trying to understand the method of action of certain pharmaceutical products. If there are any biochemists, chemists, deep-dive...
That seems to be the case. I wonder what the difference is between Trobalt and other anti-epilepsy drugs out in the market. If these new...
With its recent chair change, maybe it's time to write an open letter to BTA and Deanne Thomas - something communicated on the Tinnitus Talk...
Interesting. There is a huge difference between cannabis withdrawal and benzo withdrawal. I could definitely believe benzo withdrawal caused or...
Good to see the suicidal thread take the direction of earmuffs fashion... we need a break. However, going back to @Jerad, This condition is...
Yup, I figured as much. Seems there’s always a catch with tinnitus and hyperacusis. My experience so far, at least. With treatments, trying...
Hey, no worries. In the paper mentioned above it is said that Aspirin blocks P2Y12, however I could not find any information about that...
Should we contact Megan Wood or another researcher involved in inner ear noxacusis and ask if they are looking into researching P2Y4-6 and P2Y12...
Couldn’t agree more, ENTs, neurologists, doctors, you name it, know absolutely nothing about tinnitus/hyperacusis here, only what they read...
I will respond below to some of the questions and requests above. In the meantime, note that we changed the Irish dancing photo in my post above...
I honestly think that there are so many factors in the development of tinnitus that we never really know why. My otologist out of Mass Eye and Ear...
In addition to my previous post, here is an interesting part of the book 'Hyperacusis and Disorders of Sound Intolerance: Clinical and Research...
Don't listen to your doctor. Stay away from taking any drugs as much as you can. Especially benzos or antidepressants. Staying clean is the best...
If British GPs are not referring on patients who are presenting with tinnitus - it may be they hold the view that there is no treatment available....
Section V. Sound Therapy and Beyond This section was all about new approaches to sound therapy, including bimodal stimulation. I can be brief...
Cannabidiol (CBD) is a non-psychoactive cannabinoid found in the cannabis plant. It is available on prescription under the brand name Epidiolex as...
