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2 weeks post second jab (Pfizer/BioNTech), no side effects, or tinnitus & hyperacusis changes whatsoever.
@FGG, do you happen to know anything about Riluzole and those studies? Is it a safe compound?
Is there any merit to these two papers? Does anybody know whether Riluzole is safe? Has anybody tried Riluzole instead of steroids in such...
On the contrary, could sublingual Fentanyl pills be lethal (those can be prescribed legally here, as there's this form of that compound at the...
Oh yes, I am aware of that. I was never diagnosed with this.
That is really good news! I hope you can get rid of the pain once and for all. Thank you. Unfortunately not. There are days during which the...
Matchbox could you elaborate a bit more on the above. Also, what does CSF stand for? What does PLF stand for? Interestingly, I read about the...
Thank you for reaching out and for your supportive message. I really hope that after the MRI you've found help and you have improved. Florida is...
I have been feeling very low for several months now without any kind of improvement. My condition, like few others' here has gone out of control...
Thank you for your message. I am aware of that information but this is not available at that clinic. They do want a 3T machine (which they...
Hello @FGG, it saddens me reading that you too have to cope with noxacusis. Digital sound is the worse in that instance. At least for me it is a...
@FGG, I didn't have any idea about this. This is so infuriating what those people made you go through. Was the Azithromycin the culprit of your...
Bingo @valeri. That's what I thought too. There was that moment of questioning myself whether I should do it or not. I think you are right. Fun...
Guys, This is a really baffling one. I have read other people's testimonies on this. I am now 100% sure that exercise is flaring up my...
Dear forum, As I have already stated previously here: I have worse hyperacusis (thus worse tinnitus) - both fluctuates, weird auditory phenomena...
$3K down the drain! Thankfully you didn't go down that road...
I could have written that.
Bad drug research news. Why am I not surprised?
great news!
I hate this place. I can't survive due to the motorbikes. Each time I need to force myself out to go do the groceries, I am beaten. Earplugs +...
24/7 with fluctuations in intensity according to noise exposure.
How much did you take? Are you alright?
I hate those kinds of people who treat you like that. They have the nerve to call themselves "doctors". That cocky arrogant bitch and all the...
Amidst this crappy shit and misfortune, at least it seems like you have a choice to go somewhere safer for your ears let alone the fact that you...
For me it feels as a one way ticket to end it. It is just not possible to live like this.
Well tbh I have made my decision too, but I will have to do it on my own as it seems that nobody from my closed ones would support me in this regard.
I hear you!
I am sorry to read about that you have noxacusis now. I 've developed noxacusis for more than a week already. I think noxacusis is the epitome of...
It breaks my heart to read this. Managing to overcome cancer and ending up dealing with hyperacusis. I guess this is a good thread to cite...
Greetings @Hazel. I won't be able to attend the Zoom webinar for which I booked a place, due to my awful ear pain. I'm reporting this in case...
Fckng hyperacusis!
Hi @Hazel, Video submitted.
Happy to have joined the Patreon team here. Each contribution matters I guess. I just cancelled my Spotify subscription since I can't listen to...
Exactly, that's why I think it's much preferable, although I completely get your point regarding the different kind of isolation. Was your pain...
If I could, I would sacrifice part of my hearing over hyperacusis. This burning pain is unbearable.
Go figure... This sounds puzzly asf! How the heck can lifting weights affect ears? I know other people with hyperacusis that have reported...
Brian, haven't the distortions emerged after your acoustic trauma? What happened with the CT scan? I feel you man... really.
What's the deal with weight lifting and hyperacusis? Because that is true.
Hello Moss. I am sorry to read about your pain. What do you mean by medical trauma? How are you pulling the day off? Can you work?
So if I got this right, is your ear pain better due to hearing loss?
You hit that nail on the head. What's the deal with steroids anyway, aren't they being used for SSHL etc?
More and more people are using Keppra lately. Keep us updated on your progress Sadman.
Of course! He suffered a great deal. I have always been wondering what happened to him, because he vanished. Him and many more from that members'...
That's sucks @dan. I believe Canada is less noisy than here. Do you also get pain? I am getting pain more and more often...
Did you begin to try it? I'm down to trying but it would be hard to do it alone as well. A couple of things that concerns me: - sleep regulation...
Tell me about it.
Is Amitriptyline indicated for chronic tinnitus too? Oh no...
So could pain stand as an indicator of an expired therapeutic window?
I just read this article and want to shove it up my last ENT's... :sneaky:
Been there. Trying to communicate with earplugs on, eventually becomes exhausting. In my case mostly because tinnitus is BLASTING and I have to...
If that is the case, then TTTS isn't linked with the dysacusis. I 'm saying that because if I recall correctly, on hyperacusis.net website there...
Brian what you describe is an acoustic trauma, so aren't steroids the best shot to treat an acoustic trauma? Of course I am not a doctor and this...
You also get pain? Exactly. I was feeling the same. This new worsening has really knocked me off. I don't know what to say Brian. I really really...
Absolutely true. Do you know what made you worse @dan?
No. Even worse here than in Spain. I would love to move overseas (although I think it's late). When did you develop hyperacusis? Are you homebound...
Did you go to the doctor for the perilymph fistula in the end? Any news?
Thank you @glynis. I doubt that the ENT will find anything related with mucus etc. I'm 100% sure that there won't be any visible issues under the...
So far my experience was related to that. Most of the doctors I saw tended to be quite arrogant and not willing to truly listen to me.
Thank you linearb. I will try hard the following weeks to support that cause. I have already scheduled new appointments (ENT and Neuro), after...
I am exhausted by the nature of this condition and the incapability of the body to heal, let alone the capability of the body to only make it...