Search Results

I experienced auditory hallucinations on a couple of occasions. One happened recently actually, every night while trying to fall asleep I would...

Tinnitus behaves so differently from a person to another that it makes no sense. Last summer COVID-19 had me lying in bed with flu for a few days....

I have been using Bose Sleepbuds for years for sleeping, they have been a life saver. Unfortunately they have been discontinued recently - just...

You are so ignorant.

Otividex failed, then OTO-313 failed, now this one. The future doesn’t look bright for Otonomy... and for us.

I wish they invested their money in some more promising research instead of wasting it into a device that already showed inconsistent results.

I caught COVID-19 recently and going through some nasty flu symptoms, including high body temperature oscillating between 37.5 and 39....

Our dear reputable scientists don’t seem to realize (or care) that people are taking their lives over tinnitus. F**k reputation, give us a cure.

Same here, since I got tinnitus and suicide became a real option I started a spiritual journey that turned all my beliefs upside down. I spoke to...

Excuse me, who are you to select which cases should be brought to Dr. Kesari? I am as desperate for help as you are (or more) and I certainly...

Do you mean that the patient’s tinnitus returned when he stopped taking the drug? Thank you for sharing with us.

@IntotheBlue03, @Brian Newman, I called yesterday to request a telehealth appt. The lady said that she would email me an application form that I...

Oblato’s reply: “The dosage form for NHPN-1010 is oral form, but we just only support the EAP process with the intravenous injection at this...

I asked Oblato if they can clarify. I will share their reply when I get it. Dr. Santosh Kesari might also shed a light on this as apparently he is...

I emailed Oblato asking if they accept foreigners, here is their response: “Unfortunately, as we don’t have a plan to perform EAP study abroad...

To all my European fellows: I wrote an email to the FDA enquiring if non-US residents would be eligible to the expanded access. Here’s their...

I can’t help but wonder why Justin de Moss never mentioned compassionate use here before. Anyway, any idea if Europeans can access it too?

It looks like Neuromod realized that their product is a failure and so they turned into one of those tinnitus clinics that sell you whatever to...

I am not sure if I am reading this correctly: 4 out of 31 participants experienced 3 to 6 dB improvement? Are they really calling these “promising...

Meditation is one of those many things that tinnitus took from me. Meditating, sleeping, reading a book... all gone. I have tried hard to adapt to...

I have been on 3 mg Mirtazapine for the past 10 months. Recently I experienced teichopsia, which scared the shit out of me. Thankfully it went...

It looks like 2022 will be another year of waiting and no treatment coming up. Great.

3.5 years from now, assuming no delays from COVID-19 or other adverse events. It’s so far away in time that it doesn’t even excite me.

Benzos can be a bitch to get off from. Are you seeing a psychiatrist? If not, I would recommend you find a good one that can advise on how to...

Good luck with the stem cell treatment, I hope it it can soothe your symptoms. Keep us posted :)

With all respect, I couldn’t disagree more.

I wish they allowed compassionate use.

Ask them. [ClinicalTrials.gov] OTO-313 in Subjects With Unilateral Subjective Tinnitus [ATTACH]

They have recently opened a trial site in the UK.

For me personally, both habituation and acceptance are out of question. I will never habituate to such intense suffering, I will never accept this...

I feel your pain. Doctors tried to sell me habituation as if I was an idiot worrying over such a silly thing as tinnitus. Here I am 3 years later...

My tinnitus behaves the same, when I accelerate I hear a ringing as if it was coming from the motor of my car. So weird.

Awsome news! Maybe the other two that didn’t improve were given placebo, who knows.

In brief, compassionate use means you can get access to a drug/device that has not been approved for the market yet but it’s still in experimental...

Finally some good news! Congratulations and thanks for sharing with us. I wonder if Otonomy would ever consider compassionate use.

Following my friend’s positive experience with HBOT after 3 years of tinnitus, I decided to give it a go. I had 6 sessions (pressure 2.5/1.9...

Tinnitus is likely to get worse over time anyway; if I had a chance for a treatment now I would jump on it.

Yes, I have a list of few so-called “treatments” left to try before I call it quit. I already know that they won’t work but I owe to myself to...

As time passes I feel I am coming closer to the end of me. Like many of us here, I’ve lost my life, my mind and my soul. I have tried hard to find...

Because people are so desperate for relief that they buy it anyway.

I’d been on a very low dose of Abilify for a couple of weeks and had to stop because of the following side effects: 1) it boosted my irritability,...

How many injections are you going to get? I thought you were supposed to get only one based on the trial design.

@TrevorSanders, @Sentinel, best of luck to both of you. I wish you silence. Please keep us posted.

There are tons of drugs that are used for sleeping purpose, many of them off-label; finding the one that works for you and the right dose might...

They are at such an early stage that I think estimating a time to market is pure guessing. We have seen recently with Frequency Therapeutics and...

I’ve read somewhere them saying the earliest they expect to hit the market is 2027.

I use Bose Sleepbuds at low volume at night. It’s the only tool that masks my tinnitus; white noise from external speakers don’t work for me. If...

Vessel is prescribed quite often in Italy when vascular issues are thought to be the cause of tinnitus. I tried it myself for a couple of months,...

I wish I could fall asleep with just Melatonin. Unfortunately I am back on Mirtazapine, and still my sleep is poor.

I have the same kind of distortions. In my case I noticed that they tend to fade when I manage to rest my ears from noises. The problem is I need...

My tinnitus had a very weird evolution indeed. I have no idea why it got better and then 10 times worse. As for my acoustic trauma, it was caused...

My tinnitus is still bad. I was hoping it would plateau over time, but instead it keeps changing for worse. It has become more intrusive, less...

I have seen so many useless doctors in the past 2.5 years who went on about how tinnitus is only a noise, how it’s just a bit annoying, how I will...

I’ve read about bad experiences with HBOT on here and I am definitely worried about the potential risks. However, I am so desperate at this point...

He doesn’t know what caused it; he said he didn’t have hearing loss and his tinnitus was unilateral. Yesterday I met the same doctor who cured...

I don’t know about studies, but I spoke to someone who went through HBOT 3 years after his tinnitus onset, and he recovered completely after 20-30...

Here’s another reported success. I recently spoke to a guy who had tinnitus many years ago. It came out of the blue and he was suicidal,...

Tinnitus is not just a noise. I hear it and “feel” it too as if my brained was squeezed and pierced with electricity. I appreciate that some...

I hope you get it sorted by removing your wisdom teeth. If not, other options would be to check out if you have any vascular issues and visiting a...

Me. My tinnitus is constantly changing, adding new tones, fluctuating. Since onset 2.5 years ago it has slowly evolved into a higher pitch, more...