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I thought that the FDA process typically takes 90 days.
How long has your son had it?
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The problem is that with such high THI, a mild improvement is sort of meaningless. So it is only meaningful if it had a dramatic impact. I’ve...
I don't have anxiety or depression, just pain from piercing tinnitus so I can't speak to that personally, but that is the claim. I've been using...
I use one of the online services and they send troches (oral). I use it at 60 mg. Enough to barely feel it, but my theory is it might increase...
Though I am afraid to jinx it, I do have to report a notable improvement using Lenire while microdosing Ketamine. This is my third or fourth cycle...
Sorry Brother for your struggles. It sounds like life as a whole is crushing you. I'm not going to offer any words of advice, but an example of...
Same experience.
No kidding. Maybe we can get a RINO party as that seems to be where pragmatic moderates live.
The delay for Lenire was because the FDA made them go do another clinical study before approval. Shore's study is way more robust, US based, and...
Yup that is the thing that keeps me going even if I am a suffering shell of my former self. I refuse to do that to my kids.
I don’t think insurance in the US approves any tinnitus treatment at the moment. So they always laugh at us. How much does this cost? I looked...
So looking at this and knowing a bit about my experience and others' reported here, I wonder if Lenire doesn't just act on the medial pathway. It...
I had a 20 dB improvement suddenly about 6 months out.
Well I guess it would be another confirmation point that may help justify further funding to explore that space. The other thing from the...
I wish the study was about how to adjust cochlear implants to impact the sensation of tinnitus instead of just a survey about people’s experiences.
@Leine I've moved past the hoping for improvement or mourning the past stage, all that matters is I continue to try from where I am right now to...
@Leine maybe you will be one of the lucky ones where it really lets you get your life back, or maybe you will just be like me where it just gives...
I second @BrOKeN_1, clearly there is no medical intervention for tinnitus. Literally the only front we can work on is how we...
Yes I have. I think it can really help living with T and if you are lucky it can eventually change how the brain reacts to the sensory input,...
I have, quite a bit. My hyperacusis is mild to moderate and my tinnitus reactive. I just use hearing protection and fly. It worsens things for...
As an occasional user, I do believe that Lenire works, just not in a way that is meaningful enough to justify the time and expense. For...
I think Tinnitus Hub's "Here's Why the Jury's Still Out on Lenire" article suggests that as well.
@Heal82 I think so
Was there anything in the study that indicated efficacy for severe tinnitus as opposed to more moderate cases?
So many people suffer so much early on. The suffering itself often times exacerbates the tinnitus. Treatment by Rx or by treatment plans (CBT,...
@Heal82 the emotional bit. If there is a medical intervention they will tell you. Mostly though there really isn’t much they can do to treat...
Maybe talk to both about resources (pharmaceutical, therapists, treatment plans, sound therapy) to help you deal with the immediate trauma. The...
There is not too much really. You could ask ENT about prescribing steroids but if onset is a month ago it is probably hard to justify....
Overwhelming people do better with this over time, sometimes through healing, sometimes through the habituation process
That is incredible! Congratulations
The New York Times: Gene Therapy Allows an 11-Year-Old Boy to Hear for the First Time
Seriously talk to a professional for how to best approach this. Lots of people have made things worse by being over protective.
Don’t worry about if you have severe or moderate hyperacusis, just go in and visit an audiologist, preferably one that specializes in this. They...
I'm not going to dig back through the study, I'm kind of at the whatever will be will be with the state of Auricle, but I wonder what you think...
Pick a dominant tone among the many.
I’m no audiologist but I’ve been told by more than one that damage from the percussive wave of a gunshot should show up as a distinct narrow notch...
One tip that I’d give is don’t spend an ounce of emotional energy blaming yourself. This is challenging enough without self-flagellation.
Again I wasn’t privy to that kind of information, I know nothing more than the publicly stated information that the source of this is continues to...
I can assure you that while there was maybe the odd mass psychogenic illness case particularly when it started in Havana, there are a lot of...
Yes for someone somewhere sometime, but overwhelmingly that is not the case, after 4 plus years it is very clear to me this isn’t going away short...
Acetaminophen is fine. Don’t give it two thoughts
As we are now getting close to 2024 and knowing that this is supposed to be submitted to FDA in the first quarter, is there anyplace on the FDA...
For me useless. Same tinnitus and same problems hearing as if I didn’t get an extended audiogram. Information that I can take no action with is...
Remember, for what it is worth, that this was first trialed successfully in guinea pigs. There was no checking whether they could modulate their...
Agreed, in discussions about multiple/fluctuating tone tinnitus, I thought Dr. Shore stated that she just matched the dominant tone and it...
Yes. Having a loud noise in your head takes a bit of a toll on cognition. That piece does improve with time though
Tried both, no increase in t
Do a search for @linearb. He wrote extensively about his experience with the first trial.
I don’t know if I’m optimistic or not. All the possibilities that were in front of us over the last few years failed. I’ll try the Shore device...
I’ve found the same with Clonazepam. Doesn’t help until I sleep/the next morning. It settles down things a little when it gets very hyperactive. I...
A mild loss up at 6-8 kHz. IDK. I wish we had a few people here that had life changing experiences with it. I can’t think of a single, “Wow!”...
Mice have all the luck.
The study was only on those with somatic tinnitus, but I believe that her theory is that it should work on non-somatic as well.
I did 6 months and then one or two more rounds of Lenire over time before finally leaving it in the drawer. My experience, though slightly less...
I live in the mountains. Elevation change sets mine off
I thought a couple dropped out due to worsening.
I’ve flown endlessly with reactive tinnitus. Things tend to go back to baseline after a couple of days. Take my advice with a grain of salt...
Yes, that is my understanding. I think that is why Lenire is a habituation device and not a real treatment. Also maybe it explains some of its...