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Nerve blocks forsure
I have this too like someone running their finger along the rim of a glass it’s like a hollow swirly flute sound
Sometimes my pain is almost instant within seconds where it feels like cooling sunburn pain is trickling into my ears like water. The worst of the...
Hey I have a few questions, we seem to have very similar symptoms. Do you have ear pain and face pain or mostly face pain? Any neck pain at all?...
My days are numbered. I wish I could just slip away into nonexistence.
I have been taking this for a little over a week. 800 mg for the last 5 days or so, split up as two 400 mg doses. Might be too soon to tell, but...
Do you have hearing loss at all? This is something called Musical Ear Syndrome and isn’t all that rare, and actually pretty common for people with...
Knowing that there is something that would help me manage my tinnitus should it get even worse in the future for whatever reason would be major....
It must mean something! It was the most horrible experience, just sitting with silence and out of nowhere something pops/snaps and my head...
I heard a similar pop in my head when my tinnitus began and have been wondering the same thing this entire time.
This sounds like Tonic Tensor Tympani Syndrome.
I should have said temporomandibular joint, lol no such thing as a temporomandibular joint joint :)
Do you get the same effect if you use an ear plug or headphones with nothing playing (or anything blocking out ambient noise)? I'd look into...
If I wear earplugs during the day, my tinnitus gets significantly louder and after I take them out, it can take anywhere from 15 minutes to hours...
@Martinf a cure - no. Treatment - I think there may be soon. I can live a normal life with mild tinnitus
There might be treatment in the next few years. T can increase but hopefully there will be something to mitigate it when it comes to that point
Same! Interesting how people get this after concerts & it goes away and for us we never had it, but now it’s “permanent”
It’s so unfair how many people are able to spend a lifetime surrounded by loud noise and just get some mild tinnitus, maybe a bit of hearing loss....
Anyone else feel like they exist in a state of suffering where you no longer want to be here, and this overwhelming sense of being appreciative of...
Can you crochet all of us new ears?
Some people can go to 10 concerts and be fine, and the 11th is the straw that breaks the camels back. Just because your tinnitus isn’t reactive...
Every part of this story is just... beyond words. I’m angry for you. That’s all I can really say. I’d love for one of these professionals to spend...
With very low volume and captions it’s doable for me.
Yes to all of the above
I am sorry about the ear pain. Unfortunately mine did not get better.
Hello. So unfortunately my visual snow has not improved but after about a year with it, it has gotten easier to deal with, especially in...
This wasn’t to imply that silence can’t actively be sought out and enjoyed. I also loved just sitting in silence to relax or reading a book in a...
It's kind of like chronic pain. When your body doesn't hurt, the thought of your body hurting doesn't even cross your mind. When you do have pain,...
Yeah I totally agree with everything you said. When I get the stabbing pain, it almost feels like how a Charlie horse feels, very muscular and...
Did you have both ears done or just the more symptomatic one? Also did they reinforce your stapes as well? Did the surgery affect your...
I really hope Ambroxol helps you and gives a bit of relief. This condition is brutal and it’s hard not to feel hopeless especially not having...
It’s so difficult to imagine any sort of future life with noxacusis for obvious reasons. Having a really difficult time lately, more than usual. I...
I’m sorry you’re also in the same boat as many of us here. Is your hyperacusis the loudness kind, or the pain (stabbing/burning) kind?
Same for me. So strange
Mine switches up. Sometimes I have hissing + ringing. Sometimes really loud electrical hissing. I’ve noticed when the ringing is at its worst, the...
Whenever I’m deep within my tinnitus/chronic pain state of mind I have days where I can almost tolerate my current state of being but the minute I...
In general people seem to view anything that can kill you, or something like the loss of the limb the worst thing that can possibly happen. And...
Yeah I agree. Just more evidence that people don’t understand the suffering this brings. They can’t possibly comprehend that it’s not just a “mild...
Meanwhile everyone online: - “I’ve had tinnitus all my life I can’t imagine being suicidal over it.” - “Why didn’t he just see a doctor?” -...
@FGG, do you have brands of liquid Magnesium you’d recommend? There are so many out there and many I’ve found are full of sugar additives.
One thing I think a lot about are the thousands of people who are subject to loud noise daily. Amateur musicians, professional musicians, DJ's,...
Another personal favorite is when someone says they "have tinnitus" but that it comes in for a few seconds and goes away (referring to fleeting...
I would give away everything I own to have this sort of tinnitus - only audible in the quiet and non-reactive to masking sounds.
This sounds a bit like Tonic Tensor Tympani Syndrome especially since it’s set off by noise only and doesn’t get louder in silence. It can be a...
It’s usually: “OH I have that too when it’s really quiet” or something along the lines of “How horrible, I can’t imagine hearing a ringing all...
Quality of life is currently lower than low. In pain, feeling very sad, alone, and hopeless. Too many things wrong with my health. Each time I...
Thank you for sharing! I also feel an increase in "loudness" when it's flared up, kinda comes in waves (of course there's a baseline of pain) but...
How long did this take to go away for you? Was your pain bi-lateral?
I know you weren’t asking me, lol, but I used oral CBD of the same exact brand as Diesel referenced above and it didn’t do anything for my pain.
These are by far the best images I have seen of the facial nerve in relation to the ear, thanks for sharing. I hadn't realized the nerves are so...
Oh I’m sorry! I didn’t read carefully enough and see that it was for another issue, thanks for clarifying! I took Prednisone about a year after my...
Very interesting how a 15 dB drop doesn’t warrant prednisone and is “perfect hearing” but at 20 dB some ENTs give them out. Wish these specialists...
This one’s kinda cool. Sorrento Therapeutics - RTX (resiniferatoxin) Resiniferatoxin to Treat Severe Pain Associated With Advanced Cancer...
It’s weird how on average it seems like most people are healthy and happy (at least in my day to day), but with joining support groups I was...
They could have dips and loss in the frequencies higher than 8 kHz causing the tinnitus.
I think most people here should not fret about it too much unless their issues stem directly from something like a TBI or whiplash. Even in that...
When I listen to various neuromodulation sound therapy videos on YouTube, the sounds physically feel "smooth" on my brain/ear. It's like the...
I have this too, a bit more severe though. How’s your posture? Do you spend a lot of time sitting or laying in bed in uncomfortable positions? If...
These results came from a trial that was mainly testing safety with one shot. If one single shot had those kind of results, I think there’s much...
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