Search Results

Hi Michael, Funny how that works, huh? I was just talking to you about audio and now I cannot even tolerate half a song on my PC anymore. I took...

Man I lost all my progress. All of it. My condition is evolving for the worse. I have no idea what the hell is going on here, if I made some dire...

@Michael Leigh, this is a bit of a separate topic from the TRT protocol and moreso involves music for sound enrichment. You said you're an...

I was going to suggest using the Mack's Dreamgirl Earplugs that tend to be smaller, but I'm seeing they're still 2.2 cm, just more narrow, not...

I wanted to make a separate update post about my general situation: In July 2022 I decided to bite the bullet and take the audiologist's advice...

Have you had your DNA tested through 23andMe and did it show any specifics? I got myself tested through a similar website and it offered me none...

Not sure what happened to me in the last few days but feels like something inside my brain broke further. Feeling sudden onset of extreme,...

Anything's possible. More on topic, maybe graveyard groundskeeper or grave digger? As long as you aren't the one doing the landscaping or can...

Thank you. I see, my audiologist agrees with that. I wasn't sure because as you mentioned, some advise to gradually increase volume, not just...

@Michael Leigh, do you think gradually increasing the volume with TRT WNGs and sound therapy approaches is key, or do you believe in keeping...

@windwalker, do you have contact information for the people you worked with? I know CBT licensing is only by state but I want to see if I can get...

EEG test normal. Naturally, can't get any damn proof my body is broken. Any more test fishing I'm sure my doctor will just dismiss me as a...

@Forever hopeful, would you mind sharing the name of the current person you are seeing?

I should clarify a bit. When I say balance loss I mean more like sound "knocks me off my feet" because the sensation is so loud and causes such an...

I was advised by two doctors to try Topamax for hyperacusis because of the theorized migraine connection. It helped my hyperacusis somewhat in...

Pattern has repeated twice now. Take Topamax, see improvements with hyperacusis, then unstable mood and anxiety begins in exchange for stable...

My sleep paralysis has gotten worse since getting hyperacusis and my other neurological disorders. I don't get as many sleep paralysis demons but...

Topamax is improving my hyperacusis but making my tinnitus worse. Just got a new tone today. Hearing loss is a side effect after all. Just no...

Congratulations on your improvement, this is wonderful to hear and I'm happy you get to live a normal life again. I hope that you can enjoy things...

The thing is I am not a noxacusis sufferer so I want to believe that mine is more brain-related, not ear-related, and that calming my nervous...

Feeling stupid right now. I got some mushroom bars from a friend, since I had very good luck with Psilocybin improving my hyperacusis back in...

I've felt a lot of confusion too for sure. Brain fog has been horrible, short term memory definitely affected. If I'm asked to do more than maybe...

Got put on Topiramate by my psychiatrist, also agreed by with my neurologist. It's causing awful psychiatric side effects, including severe...

@SmallRonnie, are you using Dr. Perreau's program or her PowerPoint slides with your audiologist? I emailed her but since she's licensed out of...

Enjoyed a month of paradise. Found a good supplement regimen. GABA, L-Tryptophan, microdosed Psilocybin weekly. Listened to my audiologist for the...

I saw my neuropsychiatrist for the first time yesterday and wanted to jump into this as soon as I saw this thread. Unfortunately he's really wary...

I consulted with Silverstein last March and asked about FX-322/intratympmanic injections. He said the procedure has been updated to leave the...

Indeed. My audiologist also thinks I should look into other underlying medical causes, but it's so difficult to do so when I have to wait for so...

I haven't checked your thread in a bit, I'm glad your tinnitus is improving but I'm sorry you got COVID-19 and hope there's no lasting bad...

I didn't fall for it. I was always skeptical but I have no other options. And trying this treatment is the only way to tell disability that I've...

Tinnitus loud and whistling. Can hear someone opening a beer bottle in the kitchen from my bedroom. Thanks TRT, you sure are helpful. I told my...

Agree with this. From what it seems, they are not in it because of a profession for helping people, but rather family expectations or money. You...

Would it be counter-intuitive? I assume foam earplugs would block too much. Something like musician's earplugs, rather? Thought I replied to...

I did get a sound machine at one point but even the lowest setting was too loud for me sadly (measured about 30 dB on my phone). Can't recall the...

Yeah I still have no idea how the nervous system works but the scratch your head and feel pain in a random area is a very good example. No idea...

If you can believe it, my left arm. I have really funky things going on with my nerves ever since the accident that caused my hyperacusis. It's...

I had to go to my audiologist to get them reprogrammed to be the absolute quietest. They are tolerable now volume-wise but I can only tolerate...

This is yet another reason why I hate doctors. They will write down things that aren't true. One of my ENT visits has it written down that I "felt...

Fun fact too, in the past Bieber was sued by a concert goer's mother for millions because a sound blast at a concert exceeded safe dB levels....

I was originally going to try for the mental health route because I have a big history of that which I can easily prove, and even applied for SSI...

Good to know, I just got my sound generators adjusted to a comfortable level and was planning to start soon. Hopefully it was a combo of both and...

I personally don't have noxacusis, just severe loudness hyperacusis. So I'm not sure if my word means much. But for me my pattern on NMN was...

In the US. I am in a state where the approval for disability is a bit higher but the monthly income is barely enough for the high cost of living....

2 years ago this past week marks my anniversary with my accident causing this deep spiral that has destroyed my life. Finally today I had to brave...

Just had my LDL and second audiogram done today myself. Because I need this for my disability lawyer, I could not fight back on any of it. The...

Of course, so now they're gonna take the doctor's word as law. Ridiculous. I'm sorry. I disagree with this method even for sound enrichment. I...

I'm sorry and I feel for you. Especially at your age, parents are really inconsiderate and may not take you seriously. I know it's hard to...

Hi. I also suffer from severe loudness hyperacusis and I'm about to give the CBT and TRT thing a shot myself. I'm sorry to hear you're worse off...

Two anecdotes on NMN, one from myself and one from a noxacusis sufferer: NMN worked really well for me the first bottle I took it and saw major...

I don't know much about it, admittedly, beyond searching what's on the forum here. But it does involve shots of air into your ear canal and...

There was an article about the surgery where a woman with noxacusis got it and she was cured. I don't know much about her particular case though...

I consulted with Silverstein in March 2021 and asked about FX-322 at the time. He said he developed a modified surgery that can still allow for...

I'm curious about this, but how does one even get prescribed so many anti-fungal tablets? I feel like if I approached my doctor with this she'd...

I experience very similar things. I no longer get intermittent fluttering but I will get clicking when turning my head, though it's never...

I am in the opinion that TRT can help some cases of hyperacusis, including pain. Read how I say some though. TRT still being pushed is exactly...

So yours has specific colored noise settings? What model are they? Mine only have white noise, the Signia Pure 312 X. Quietest setting is too loud...

Did your audiologist say that noise color didn't matter? Mine did but I don't really believe it. I know white noise is harsher than pink, and that...

I swear it's like they know we have hyperacusis and they go out of their way to make our lives miserable. A few weeks ago I stepped outside...

Yep. I think I've left the house maybe 4 times since the start of the year, just for appointments. It sucks. In other news: Fuck motorcycles....