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Sorry to hear that, I was closely following your experience as we seem to have similar reactivity issues.
Yup. Sometimes the snake gets fried up in a wok and gets real hissy.
@SarahMLFlemmer sorry you're having such a hard time. :(
[ATTACH]
Vent away :) I'm sorry about your current situation, hopefully you have a strong support circle to help you through.
@Jammer rubbish.. if you just take a minute and think before firing off your opinion then maybe, just maybe you can imagine 10 always being worst...
6.3
Oh no :(
Yes, for the first year since onset. Then I said ef it and just made the best of what I have. It's been a lot better since.
Yup, the reactivity component to my tinnitus really does suck. @ErikaS does your reactivity dramatically decrease when your baseline t goes down...
Happy birthday
Sorry you feel like that, hopefully with time it becomes less bothersome for you. I think we're all hoping that one of these potential treatments...
Nooo
:(
I'll give you 50 cents for the 65" flat-screen tv, take it or leave it.
Sums mine up. [ATTACH]
*thumbs down*
Looks like you were having a blast, fully support this :) Keep us posted for part 2 when you get drunk and do piercings.
In my case it did, luckily!
Pictures or it didn't happen..
So sorry for your loss :(
@Ryan Scott what did you think of Buster's testimony?
Super big hugs as always @Strawberryblonde. Hopefully you start feeling a little better soon! Maybe try something new to take you out of your norms.
It was pretty captivating to watch.
@BrOKeN_1 it's just tinnitus tennis or tt for short.
@SarahMLFlemmer I'd say the Shore Device looks promising withing the next couple years and kv7 openers within the next 4 years if all goes well.
Good luck!!
Nah you've got this, something will come along to rescue us from this auditory torture.
Same here when asleep :*(
Virtual insanity
Be careful down there, I believe the state departments travel advisory is still in effect.
Can relate, everyday I wake up with tight temporalis and masseter muscles with referred pain. Pretty sure I'm clenching while I sleep but my teeth...
@TheCapybara I didn't realize capybaras lived that long
@Strawberryblonde lying is my secret. Actually I'm 38 turning 39 in 2 weeks.
58
@ErikaS yes, like yesterday all I had was t at a solid 1 and almost no reactivity. Usually only lasts a day but I've had it last as long as 4 days...
Ah yes the good ol reactive electric hiss.. it accompanies me daily.
How you been?
@Ryan Scott I was joking but to answer your question no, nothing messes with my t except for bad sleep.
Strong alcohol
@SarahMLFlemmer I would completely forget about Lenire, never had a placebo controlled study. Shore Device on the other hand aims to calm the...
Hey. I know I'm replying to a thread that hasn't had activity for 2 years but hopefully you see this. How are you these days? I had Gamma Knife...
Susan Shore device, XEN-1101 & BHV-7000
I was going to say how do you wat chips or open gifts?? :D
Crinkle crinkle
The only thing we can do until a real treatment comes along is to friend your tinnitus, accept it as part of you. Trying to fight it is going to...
So sorry to hear this, hopefully things will turn around in time and get better. Hugs! :)
Well I will tell you what I can hear out my left ear. Everything up to 2khz is fine 3khz - 6khz has a 60 to 70db loss. 8khz at 50db and can't hear...
I wish that was the case, but hearing loss is what caused the tinnitus and reactivity and well.. there's nothing thar can bring that back. I like...
Wow I just read up on accutane and it's sounds like a dangerous medication. Many different side effects including tinnitus, which should abate...
By the way you describe it I can certainly understand your suffering, occasionally ill have a bad spike day where I have to put my hearing aid in...
@SarahMLFlemmer I had sudden hearing loss in Nov 2020 from an acoustic neuroma. Tinnitus was horrifying back then but eventually baseline to a...
That sounds terrible, hope it's short lived!
Hours here, definitely not weeks or months
Sending big hugs from across the pond!
Hugs
What about when you breathe through your ears? Do you feel it in your nose?? ;)
2 year update: Everything seems to be going well so far. I had a small bout of unsteadiness last week that lasted a few days but it seems to have...
Thank you very much for the reply, it's always good to talk to others in the same situation for support! I know that Gamma Knife isn't perfect...
Sorry to hear this!