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*1 week post SGB shot update* I’m having weird side affects, these include: Stabbing pain on my chest Some balance issues Overall I don’t think...

*Update* My side affects after the shot: Droopy left eyelid Chest pressure Difficulty swallowing (feels like there is a knot on your throat)...

Tomorrow is my SGB appointment. Here are the drugs they will be using in the whole procedure: 1. Versed (Midazolam) through IV for sedation. 2....

Whoever follows Michael Leigh’s advice needs to be careful. Seriously, who even follows his advice?

This was well put! Thank you for the descriptive response.

Thanks for the well put advice.

Same! But at the same time I can’t live like this forever.

I want to start running too, so what do you recommend? Running at night without hearing protection, or running with earmuffs on? Does the running...

Just $25k, so yeah nothing lol.

Story of my life. I don’t remember how many times I felt like I was healing just to be brought back to hell. It seems as though this will be the...

Wait, what happened with OTO-313?

This world is so goddamn cruel. It’s either I’m stuck with debilitating depression and anxiety or physical pain, sometimes both. Today I’m having...

We’re just glad you are still here with us brother! Our struggle continues, and never hesitate to reach out to us, we are all in this together....

Michael, I honestly have tried that approach, not over-protecting, and every time it fails me. Based on the research I have done, noxacusis just...

Hey bud, you still with us?

I’m pretty sure he didn’t detach himself, what probably happened is that the medication lowered it to a level where it was easier to cope with. I...

Xenon pills? What are those?

@addot, I’m in the same boat!

Man I’ve been trying to habituate to sharp stabbing pain, but trust me, you just can’t.

It’s impossible to habituate to noxacusis.

Right on brother! We aren’t even considered “survivors” because our illnesses are invisible, they don’t know the agony we must endure everyday....

I am petrified about having to withstand the fireworks for 4th of July. What will you guys with noxacusis be doing?

Shit I’m trying too brother :/ "If these were the last beats of my heart, I would dance to them"

I think death is only really scary when you know you are close to dying, after you are dead you really don’t know you are even dead. It’s only the...

I was thinking of a cat too. I wonder if they make noise at night?

Always follow the gun instinct brother.

I wear double hearing protection inside my house, I am completely housebound. I literally just told you I have delayed pain, so if they have to...

Oh my noxacusis is bad. I have 2 dogs, the big one barely ever barks. The little one barks a lot but I never let him in my room. When I hang out...

I’ve had it for over a year now, I just keep getting worse. Currently can’t leave my house, and have to have earmuffs 24/7. I can’t drive, and I...

Seriously, anybody know of a job I can do from home, that doesn’t require any talking? I only really need to make like $600 a month to cover some...

Fuck! Not looking forward to 4th of July.

I relate to you in so many ways, not only do I have severe hyperacusis and moderate tinnitus, but I also have chronic neuropathic pain. I can’t...

My big dog barely barks, the smaller one barks at everything. I usually keep them out in the yard, my parents have a huge yard and they have a lot...

Does this also help with noxacusis?

[ATTACH] [ATTACH]

It was a slow process, for several months it kept getting louder until I reached my current baseline. It fluctuates between moderate to severe,...

Their attitude is absolutely disgusting, but I don’t blame them, they are just completely ignorant of the dangers. Unfortunately many of us only...

Hi Forever hopeful, by the way nice name. I have an experience to share. Last 4th of July I decided to go to a club, mind you I still had...

Nice to know. Perhaps I shall take this approach. I refuse to call myself disabled, but unfortunately I have reached that point, I am completely...

I feel your pain my brother. I’m just a shell of my former self, I can’t believe the place that I have reached. It’s a new level of desperation...

Well by all the replies it seems like I’m screwed and the chances of being able to get disability are slim to none. I won’t risk getting any more...

So you developed tinnitus on both ears now? Would you say it is moderate or severe? I’m wondering if maybe you had some type of infection that...

Have you tried this before? Seems like a good approach.

Wow! I wonder if it was because of his severe tinnitus. I’m pretty certain it was a factor. RIP Joe. It doesn’t say the cause of his death?

This!

I wonder if anybody on this forum has done it? It does seem a bit risky though, but a relief of the pain hyperacusis would be amazing.

This is super interesting! How would someone go about getting this done?

What country are you from? I wanted to get on disability but I already know it’s a battle to lose. Being that it’s an invisible condition it’s...

I really try to stay positive, I really do, but I’m also realistic, I’ve absolutely lost it all to hyperacusis, I could easily live with the...

I won the lottery twice! Severe pain hyperacusis and moderate tinnitus, how lucky am I huh?

Fuck, I’m so sorry :( this condition truly makes everything a living hell. I honestly would not be alive if it wasn’t for my family’s support. I...

Hello my friend, I’ve always been hesitant to use any type of hearing aid for my noxacusis, I can barely tolerate any sound, even with double...

Your parents kicked you out? How are you surviving now? My parents are becoming more understanding, I think they started to grasp the seriousness...

I honestly don’t think this surgery would do anything for noxacusis. I mean I want to get it done but I also don’t want to waste $8k for something...

Except death is nothing like dreaming, at least when you are dreaming you can still experience things, during death you can’t even experience...

Lmgsooo respawning right away!

Seriously my friend, be really careful with Michael’s advice, he seems to give the same advice to everyone whether the condition is tinnitus or...

I second this notion.