AM-101 Was My Savior

Discussion in 'Success Stories' started by ahs, Nov 22, 2015.

tinnitus forum
    1. ahs

      ahs Member

      Tinnitus Since:
      10/2014
      When I enrolled into the am101 trial that I had heard about on here I promised myself I would update everyone on my results. At the beginning of the trial my tinnitus was I felt 8/10 and some days 9/10. After the injections my tinnitus quickly improved and at the 2 week mark I was consistently at 2/10 and many days 1/10. The positive results have remained. Right now I'm at about 1/10. It doesn't noticeably fluctuate. I was about 2 months into tinnitus when the injections were given. If anything changes for me I will make another update. I hope others attain similar results.
       
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    2. monacco

      monacco Member

      Location:
      forte Antoine .monaco
      Tinnitus Since:
      29/09/2015
      Cause of Tinnitus:
      anknown
      @ahs
      How did you know that you have received the real drug ? may be it was just a natural reduction
       
    3. JohnK
      Lonely

      JohnK Member

      Location:
      San Francisco
      Tinnitus Since:
      10/26/2015
      Cause of Tinnitus:
      Who knows?
      How did your tinnitus come about?
       
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    4. elizabethab
      Blah

      elizabethab Member

      Location:
      North Carolina
      Tinnitus Since:
      10/2015
      How did you sign up for this? I am barely 2 months in-have been told it has to be within the first three months...I am in North Carolina....
       
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    5. marqualler
      Nerdy

      marqualler Member Benefactor

      Location:
      Minneapolis, MN
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Ear infection / Mild Noise Induced Hearing Loss
    6. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Awesome, @ahs. One can assume it was the drug -- although there is no way to ever completely know for sure. Regardless, it's great to get an update and to hear you are doing so much better.
       
    7. liquefact
      Balanced

      liquefact Member Benefactor

      Location:
      Seattle, WA
      Tinnitus Since:
      09/25/2015
      Cause of Tinnitus:
      Loud Indoor Rock Concert
      Can you describe the after-injections process please? Did the loudness of your T increase after injections? How long it took to go to the baseline? When did you start feeling the improvement?

      Thanks.
       
    8. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      To my knowledge, this is the most up-to-date info on AM-101: https://www.tinnitustalk.com/thread...dates-and-discussion.6558/page-20#post-119473

      You shouldn't expect improvement until several weeks in.
       
    9. liquefact
      Balanced

      liquefact Member Benefactor

      Location:
      Seattle, WA
      Tinnitus Since:
      09/25/2015
      Cause of Tinnitus:
      Loud Indoor Rock Concert
      Yeah, know that thread. Still wanted to hear @ahs 's personal experience. Glad to see that we have one more data point proving it works.
       
    10. Cheza
      Wishful

      Cheza Member Benefactor

      Location:
      Oregon
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Barking dogs/stress
      @ahs That's great news and gives reason for hope, especially for those with acute tinnitus. I hope the reduction is permanent. :)
       
    11. Ecip

      Ecip Member

      Location:
      Edmonton, AB
      Tinnitus Since:
      4.11.2015
      Cause of Tinnitus:
      Still unknown... possibly noise exposure?
      Yes, if this works for acute tinnitus (not the acoustic shock kind, don't really know why I have tinnitus) then I'll be getting me some of that.
      And if it works for people who had years of T then maybe I'll send my old man that way too! He really screwed his ears in a tunnel explosion.
       
    12. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      AM-101 is actually targeted at acute tinnitus caused by a traumatic event (acoustic injury, barotrauma, middle ear infection). They are recording patient history (I hope so at least). I guess we will have the breakdown of efficacy vs. tinnitus etiology.
       
    13. Ecip

      Ecip Member

      Location:
      Edmonton, AB
      Tinnitus Since:
      4.11.2015
      Cause of Tinnitus:
      Still unknown... possibly noise exposure?
      If this works, that would be a great breakthrough.
       
    14. Richard zurowski

      Richard zurowski Member Benefactor

      Location:
      England
      Tinnitus Since:
      27/12/2012
      Cause of Tinnitus:
      Ear infection.
      Wouldn't this drug only benefit people with short term tinnitus and not long term tinnitus?
       
    15. Keith D Mitchell
      Worried

      Keith D Mitchell Member

      Location:
      Claymont, Delaware, USA
      Tinnitus Since:
      10/20/2015
      Cause of Tinnitus:
      No Idea
      I'm actually in talks regarding the trial now and what I was told is they are only accepting people that meet the two requirements;

      1. Have had tinnitus for less than 3 months
      2. Tinnitus was due to an infection and not by loud noise.

      It may be different depending on the study/who's running it, but that's exactly what I was told.

      Luckily for me, I meet both of those requirements, so we'll see if I get accepted or not.
       
    16. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      People whose tinnitus was triggered by loud noise not accepted? As far as I know, that's incorrect information. I wonder if there was a miscommunication / misinformation? Can you double confirm with the study center?

      US AM-101 Phase 3 Trial:
      auris-medical-am-101-us-trial.png

      UK AM-101 Phase 3 Trial:
      auris-medical-am-101-uk-trial.png
       
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    17. Keith D Mitchell
      Worried

      Keith D Mitchell Member

      Location:
      Claymont, Delaware, USA
      Tinnitus Since:
      10/20/2015
      Cause of Tinnitus:
      No Idea
      I'm still waiting to hear back, likely won't get an answer until next week, but I remember the persons exactly words regarding this. As this was my second time talking to them, the first time she flat out denied me as I didn't know the cause of the ringing. That changed once I said it was confirmed as an middle ear infection, course of treatment and my hearing charts.
       
    18. JohnK
      Lonely

      JohnK Member

      Location:
      San Francisco
      Tinnitus Since:
      10/26/2015
      Cause of Tinnitus:
      Who knows?
      What sorts of questions do they ask your when you go in for a pre trial evaluation? Anybody with experience in this?
       
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    19. TJohns
      Buzzed

      TJohns Member Benefactor

      Tinnitus Since:
      02/2016
      Cause of Tinnitus:
      load noise / Sinus infection ? not sure
      Where are all these am101 people who are a year out ? Do they just stop coming to TT ?
       
    20. Bobby B
      Fine

      Bobby B Member Benefactor

      Tinnitus Since:
      11/2015
      Cause of Tinnitus:
      long term NIHL and recent acoustic trauma
      I saw that a lot of them switched over to the
      SilenceTalk.com forum

      Check it out, some of the posts are pretty depressing :

      "Can't take it anymore - this silence is killing me"

      "Woke up to the sound of my heartbeat ! Please help"

      "Neighbour's cat drives me crazy with the noise of walking over the grass all day"

      And a real eye opener :

      "Miss the good old days waking up with my tinnitus - do you think that going to 5 ac/dc concerts in a row standing at 2cm from the speakers will help getting my life back ?"
       
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    21. TJohns
      Buzzed

      TJohns Member Benefactor

      Tinnitus Since:
      02/2016
      Cause of Tinnitus:
      load noise / Sinus infection ? not sure
      Yea that does suck
      Hope to switch over one day myself
       
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    22. Zora
      Kick ass

      Zora Member

      Location:
      Germany
      Tinnitus Since:
      12/2015
      Cause of Tinnitus:
      1st time: Megaphone ;2nd time: headphones too loud
      @Bobby B ?!?! Da fuq? I cant believe that. i'd be soo happy? I mean...silence :D thats all we want dont we? Sorry but I dont understand....
       
    23. Zora
      Kick ass

      Zora Member

      Location:
      Germany
      Tinnitus Since:
      12/2015
      Cause of Tinnitus:
      1st time: Megaphone ;2nd time: headphones too loud
      @Bobby B could you give me a link? i couldnt find Silencetalk.com
       
    24. ceauses97
      Speechless

      ceauses97 Member

      Location:
      Norway
      Tinnitus Since:
      06/12/15
      Cause of Tinnitus:
      loud music/chemotherapy/hypercalcemia
      He was being ironic. Women....
       
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    25. Sebastians

      Sebastians Member

      Tinnitus Since:
      13/10/2015
      Cause of Tinnitus:
      Guitars, loud girls and guns
      *facepalm*
       
    26. Zora
      Kick ass

      Zora Member

      Location:
      Germany
      Tinnitus Since:
      12/2015
      Cause of Tinnitus:
      1st time: Megaphone ;2nd time: headphones too loud
      haha....you must be so cool....I read it very quickly, and btw there actually are
      people who are saying that if their T wouuld leave them, tgey would feel like something is missing.
       
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    27. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Indeed , when I get the occasional silence (while on trobalt) I truly find that something is missing , super weird!
       
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    28. trocobob

      trocobob Member

      Tinnitus Since:
      10/1/2016
      Cause of Tinnitus:
      Maybe stress ?
      lol , the same for me ...seems like this is the effect of habituation :)
       
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    29. Alue

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      To be honest that sounds like some severe hyperacusis.
       

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