Autonomic Dysfunction and Pulsatile Tinnitus

This is one of those symptoms that is affiliated with autonomic dysfunction. Has anyone here been diagnosed with POTS, multiple system atrophy, or another autonomic disorder?

I have pulsatile T and likely have an autonomic disorder, so any insight helps!

 

@Karen

Hello and thank you for replying and giving me some information.

All I know is that taken together, my symptoms look a lot like POTS or a dysfunction of my vascular system in my brain/neck (that page you showed me, a lot of my symptoms are consistent). So many things have been ruled out now , but autonomic dysfunction is one of the few things suggested that we haven't explored completely; and it was suggested as a cause. Nothing has ever been totally confirmed via diagnosis because most of my doctors are not that insightful about less common neurological disorders, or just don't listen to what I tell them :/.

I have had a zillion audiograms showing inconsistency and erratic hearing changes, most staying barely in the normal range, but my tympanograms, ABR, OAE, have all come back normal (as of May 2016, things have likely changed now). My MRI and MRA are fine, nothing on the auditory nerves and no problems with the major vessels. MY CT scan of the temp. bone was also fine, but it was done before most problems began so I do not trust it at all. No infections or common autoimmune disorders as indicated by blood tests. So I have gone through most testing available.

Um there are so many symptoms I won't cover, but concerning my ears:

• High and low frequency tinnitus, both of which are now more pulsatile in nature
• Tiny sudden hearing losses and fluctuating/deteriorating hearing in the high and low frequencies every day, slightly impeding on the speech range. Audiograms are roller coastering a lot of the time.
• Occasional ear fullness and ear pains
• Eustachian tube problems
• Vertigo and dizziness. I have had rotary, rocking boat, and shaking up and down vertigo types.
• All of this has an enormous variety of triggers. Loud noises, fast changes in (head) blood pressure, straining activities (coughing, laughing, bending over, moving heavy things), emotional stress, even swallowing and ear popping, have all set it off. It's impossible to control the triggers because there are too many.
• Sudden, painful jolts followed by a huge tinnitus spike and hearing fading lasting a few seconds in my ear(s). The phenomenon is called 'the aliens are calling', and should only last a few seconds, but once it happens the tinnitus and hearing takes a long time, if ever, to go away. I think it is a vasospasm somewhere around my cochlea

 

I had a autonomic nerve test done earlier this year indicating peripheral neuropathy. My toes would burn and sting. I don't know if that can cause tinnitus or other problems associated with your conditions. I thought there was a possibility that neuropathy could be related to my tinnitus to some degree but I just don't know for sure.

 

I have a B12 deficiency that could be helped by fish, milk etc. I'm just looking into that now and how it could be related to neuropathy and possibly tinnitus.

 

@just1morething

That's all interesting. I don't have a B-12 deficiency but some level of neuropathy is possible.