British Tinnitus Assosciation Fundraiser (James Ivor Jones)

Discussion in 'Awareness & Fundraising' started by Greg Clarke, Aug 18, 2015.

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    1. Greg Clarke

      Greg Clarke Member Benefactor

      Location:
      Wicklow, Ireland
      Tinnitus Since:
      08/2006
      Cause of Tinnitus:
      Acoustic Trauma, Live Music
      This was a reasonably high profile case in Wales recently. James Ivor Jones had a severe case of Tinnitus/Hypercausis and took his own life. His son has set up a page to raise funds to go toward Tinnitus research in the UK. Very sad case, if anyone is feeling generous, here's the link to the page

      https://www.justgiving.com/Danny-It...taliano&utm_campaign=pfp-share&fb_ref=Default

      I've no link/ association with any of the parties involved, just thought it deserved a mention and hopefully they can reach their target.
       
    2. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      If only he came on here. We could've saved him. I feel saddened that I couldn't have helped.
       
      • Like Like x 1
      • Agree Agree x 1
    3. preslys

      preslys Member

      Location:
      Switzerland
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      unknown
      He must try trobalt I am sure he will find some relief
       
    4. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Sadly he has passed away. Killed himself because of tinnitus+hyperacusis. Really awful combination.
       
    5. preslys

      preslys Member

      Location:
      Switzerland
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      unknown
      sorry I thought that he is alive
      hope that god receive him in his vast paradis
       
      • Like Like x 1
    6. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      RIP. Nobody deserves to suffer like we do.
       
      • Agree Agree x 3
    7. preslys

      preslys Member

      Location:
      Switzerland
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      unknown
      @Danny Boy
      it's very hard to live with tinnitus and hyperacousis
      I spend all my time listening to music. but for some one who has hyperacousis he can not mask his tinnitus
       
      • Agree Agree x 1
    8. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Well, he had really bad hyperacusis...Just rustling of plastic bags would be too much. That's horrible.
       
    9. Richard zurowski

      Richard zurowski Member Benefactor

      Location:
      England
      Tinnitus Since:
      27/12/2012
      Cause of Tinnitus:
      Ear infection.
      It's a sad case that some people do take there lives. As you stated Danny maybe if he had found this forum it might have been a different outcome.
       
    10. Greg Clarke

      Greg Clarke Member Benefactor

      Location:
      Wicklow, Ireland
      Tinnitus Since:
      08/2006
      Cause of Tinnitus:
      Acoustic Trauma, Live Music
      Thankfully cases like his are rare. But it does go to show that information is lacking and so is empathy and understanding from the medical community. I understand this mans desperation.

      It could've been any of us. I'm thankfully doing a lot better these days and this community is partly the reason for it.
       
      • Like Like x 1
      • Agree Agree x 1
      • Friendly Friendly x 1
    11. Danny Boy
      Cheerful

      Danny Boy Member Benefactor Hall of Fame

      Location:
      England
      Tinnitus Since:
      7/2014
      Cause of Tinnitus:
      Ear infection
      Same here.
       
    12. valeri

      valeri Member Benefactor Team Awareness

      Location:
      Australia
      Tinnitus Since:
      09/2011
      Problem with this initiative is that money is going to BTA which we all know will NEVER EVER do anything to find a cure.
      Tragic loss of another life:(
       
      • Agree Agree x 2

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