Can People with Very Bad Tinnitus Give Me Some Support?

Hello everyone while I consider my tinnitus to be mild it still drives me nuts. Can anyone with very bad tinnitus comment on this with some support?

Regards Cillian

 

Hi Cillian,

My Tinnitus is "good enough" to be heard inside of an airplane, over the engines sound, just to give you a reference.

First, you are still in the "acute" phase of Tinnitus (your since date show 4/16), that means there are ALOT of chances of it going away for you.

Second, in case it won't, with the time MOST of people habituate. It will not bother you.

I'm a software engineer, my work is 100% concentration... I can do it very well, T does not bother me to work.

Best for you!,
Your friend,
Johnny.

 

X2 with Johnny. I am also a software engineer, a consultant of sort, having to support small & large companies as large as 1,800 pay checks on their payroll. I have to be focussed when fixing any IT problems or else.... LOL.

Just like Johnny, my T is loud and ultra high pitched. I could hear it over the jet noises in my last few flights, and over the raging rapids on the salmon rivers I fish. I also had severe hyperacusis which turned all normal sounds so loud, so piercingly hurtful. I was in a mess a few years back when T was new. But now I live an absolutely enjoyable and productive life. Here is my success story where I list many helpful strategies to help me turn around. Take good care & God bless.

https://www.tinnitustalk.com/threads/from-darkness-to-light-how-i-recovered-from-tinnitus-hyperacusis.3148/

 

@JohnnyMx @billie48 ye are an absolute inspiration to everyone on this site and fair play ye deserve a clap on the back

 

If you consider the T to be mild then you should be able to habituate over time. We all know those moments of panic when you feel like you cannot escape - but that bit almost turns into a weird "my little friend" thing, where it would be strange if it wasn't there.
Strong H and T can remain debilitating but even most of us find a way to adapt.
It really is like living near an airport. After a year it's like "Planes? what planes?"..

 

I travelled by train today for the first time since I got T from my TMJ disorder I used to love trains and my anxiety stopped me but not today and thankfully it didn't make it worse

 

This might not sound very reassuring, but give it time - maybe a lot of time. Mine was absolutely screaming at the start - like some others, I could hear it whilst on a plane and it was this way for 6 months to a year and I thought I would never be able to live with it. However, over the last 6-7 months it has started to quieten down a lot and now for several hours each day, I appear to be able to switch it off and don't even notice it. Given more time, I remain hopeful that I will almost forget that I even have it.

 

@Cillian If this just started for you (I see April listed as your start date), then please know that the early days are the ones where you have just come from normal silence into the experience of tinnitus and that mild tinnitus is still completely different from your life when it had NO tinnitus. That's why your feelings are so intense right now. So, what the others here have said is true: your feelings can get better. The one best thing to do for your feelings is to treat yourself gently and reduce unnecessary stress in your life so you can calm your system as much as possible. This helps to not "feed" the anxiety state that can exacerbate tinnitus.

 

@Path Maker This site makes me feel at home and relaxed because I love talking to people in real life but talking to people on this that suffer just like me is great

 

So far I have been helped by hearing aids to correct my hearing loss, the masker function on them, and a medicine called Lamictal that helps me deal with my depressive episodes. I hope it continues. That is just me though and it is different for everyone. It may be possible that if you know the frequency of your tinnitus they may be able to amplify that frequency range in the hearing aids just a little bit (must be safe range) to see if ambient noise can hide the tinnitus or reduce it's noticability. You'll have to check with a hearing aid specialist or audiologist.

 

Oh wow, I just saw you got it from a sinus infection on April 16. Maybe you could go to an ENT or at the very least call up a pharmacist and see what he says. Sometimes a pharmacist is knowledgeable about conditions and can give you some advice.

 

@JasonP that date is wrong don't know why I've had it 10 weeks

 

I know multiple people in real life who have it severe to people who have it mild. All are fine and are coping. Two have hearing aids but still go and do fun things and just got used to it. I have two people who have it mild and just look at me crazy bc I am caring too much about it. I know multiple people who has had there's disappear after months. Good luck to you! I'm at 7 weeks and I'm better each day with setting my mindset to this is the new norm and ignoring it.