Deaf & Despairing

Discussion in 'Support' started by RachelP, Aug 7, 2016.

tinnitus forum
    1. RachelP

      RachelP Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      Hearing loss
      I've been hearing impaired (severe-profound loss) all my life, worn hearing aids since age 15 and had ringing in my ears (crickets) for as long as I can remember, but it only bothered me when I was in a really quiet room.

      However, back in January I developed a chronic "humming/buzzing" on top of my usual crickets. Two months ago, I lost all hearing in my right (good) ear and the buzzing intensified 10-fold. The best way I can describe it is like I am trapped in a little room full of crickets and there is one window with a lawnmower running continuously outside it.

      I cannot get away from it, tune it out, or mask it with other sounds as my ear has no hearing left.

      I am profoundly deaf in my left ear so while I do get some sounds when wearing my HA, it's not much.

      I've recently started having panic attacks; have trouble falling asleep; and wake several times during the night (usually in a state of terror). I feel so helpless right now.

      I hope to get a cochlear implant but being in Canada, this could take 6 mo to 1 yr! Does anyone have any advice for coping when you are deaf and that's all you hear?
       
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    2. gotyoubynuts

      gotyoubynuts Member

      Tinnitus Since:
      10/1990
      Cause of Tinnitus:
      Concert
      I am sorry what you are going through. Deaf with these sounds would kill me. I can't imagine what you are going through. The cochlear implants hopefully help? You need to hear sound and those will provide it.
       
    3. billie48
      Sunshine

      billie48 Member Benefactor Hall of Fame Ambassador Team Research

      Location:
      Vancouver, Canada
      Tinnitus Since:
      03/2009
      Welcome to the forum, @RachelP. Sorry about your dealing with deafness and T. Since you mention you have hearing impairment since 15, it reminds me of the story of a young pretty girl Zoe Cartwright and her courageous and triumphant story with complete deafness since 15 and developing total unmaskable loud T from hence. It was already tough for a young girl to suddenly turn deaf at 15, not to say having to deal with the ringing 7/24 for life. But she decides to accept her reality with T, and moves on to pursue her goals in life. Against all odds, she made it to university, even making a short tinnitus film which she titled it 7.24.52.10, which means her loud T was with her 7/24, 52 weeks a year and has been for 10 years at the time of making the film. Her positive spirit and her courage has become my guiding light during my toughest struggle with T. I mention her story in much more detail, with link to her film, in my success story. Check this out to see if her story can help you cope. Take good care. God bless.

      http://www.tinnitustalk.com/threads...w-i-recovered-from-tinnitus-hyperacusis.3148/
       
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    4. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @RachelP,
      I have just read your story and understand how hard it must be for you.
      I would try relaxation and maybe lavender oil on your pillow to relax you and the sence of smell a good distraction from tinnitus and maybe the feel of a slight breeze from a fan on you might help.

      The tinnitus group Dot and I run is run as a part of dDeaflinks that is a day centre for the deaf and helps with interpreters and runs sign language and lip reading courses etc....lots of love glynis
       
    5. Lorac

      Lorac Member Benefactor

      Location:
      Michigan
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Sudden profound hearing loss in left ear.
      Hello @RachelP and welcome to TinnitusTalk!
      You sure are dealing with a tough situation. Do you know how your hearing was damaged in either ear? I hope the cochlear implant will help and I am sorry you have to wait so long for it. Are you getting help from a therapist? It is not surprising that you are suffering with panic attacks.
       
    6. RachelP

      RachelP Member

      Tinnitus Since:
      1990
      Cause of Tinnitus:
      Hearing loss
      Thank you all for the replies. My hearing loss is hereditary so not trauma induced. I have an upcoming appointment with the CI clinic on Thursday and hoping they can direct me to further help in coping with the tinnitus.
       
    7. undecided
      Fine

      undecided Member

      Location:
      Greece
      Tinnitus Since:
      04/2014
      Cause of Tinnitus:
      Unknown.
      I would have hoped that the health systems in such advanced countries as Canada would solve problems such as yours in a matter of days. It does indeed sound like a cochlear implant is the only solution so you can get some masking going.

      Did you ever find why there was that total hearing loss in your good ear two months ago? Maybe an acoustic emissions test would shed some light whether there is a nerve or a hair cell problem... Maybe determine if anything is fixable.
      Anyway, hope you get some good things going as soon as possible...
       
    8. GregCA
      Frustrated

      GregCA Member

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      There is a chance that the CI can help with the T.
      Do you know what is "wrong" with your hearing? What is missing/malfunctioning? If your hereditary condition matches conditions that are inflicted by trauma (or other diseases), then you may benefit from their treatments (if/when they become available).

      Good luck!
       
    9. Lorac

      Lorac Member Benefactor

      Location:
      Michigan
      Tinnitus Since:
      2013
      Cause of Tinnitus:
      Sudden profound hearing loss in left ear.
      @RachelP ,
      How are you doing? You and your situation have been on my mind and I hope you are coping a little better. I have profound deafness and tinnitus in one ear. It is bad and I cannot imagine how hard this must be for you. I just wanted you to know that you are in my thoughts.
       
    10. Gosia
      Balanced

      Gosia Member

      Location:
      France
      Tinnitus Since:
      03/2015
      Cause of Tinnitus:
      earplugs/ hearing loss
      Hi.. have you tried some not too invasive meds that could calm the brain activity down a bit ? Maybe yoga , acupuncture , some herbs ? I know I'd take anything in that situation, I can't imagine what horror that must be . I hope it's not too loud at least :( wish you the best.
       
    11. hartje5
      Wishful

      hartje5 Member Benefactor

      Tinnitus Since:
      4 december 2015
      Cause of Tinnitus:
      Verapamil, Flecainide, Apixaban, stress
      New T. sounds tend to get quieter as time goes by. I read on the forum a lot that the first three month are the hardest (and loudest). Hope you are getting the help you need soon. Thinking of you.
       

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