Further Investigation Possibilities?

Discussion in 'Support' started by Jamclem, Nov 14, 2016.

tinnitus forum
    1. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      Hello everyone,

      Just wondering if anyone knows of any further investigation or therapies that would be good for pulsatile tinnitus (unilateral)?

      I have had an MRI and now an CT scan, both found nothing unusual. The doctor now seems reluctant to try anything else.

      Are they any clinics actually speciallising in PT around? Has anyone had any success with further investigatng?

      Cheers

      James
       
    2. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      Hi James.there are some other test you can have done .One of which is very invasive and has some risk of complications.Is your Pulsatile Tinnitus Objective?That is That a doctor can hear it by placing his stethoscope in the area of the ear in which you hear your PT.Also I did hear of a center in California that was scheduled to open and was gonna specialize in Pulsatile Tinnitus
       
    3. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      Hi @billy43

      Thanks for your reply.. What sort of invasive tests do you mean? Do you also have PT? I think I have read about some clinic opening up in US but probably is not much use when I live in Europe. :)
       
    4. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      A friend of mine has PTt who comes along to our support group and been put on a low Betta blocker and uses a hearing aid.
      She was suicidal at the start of her PT but now feeling a lot better and coping well and enjoying life again and got her smile back....lots of love glynis
       
      • Like Like x 1
    5. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      Hi James.Yes I have PT.just over 3 years.Early on I had several tests/scans.MRI,MRA CT.The one I didnt have done is called a Cerebral Angiogram.One specialist recommended it and two others strongly recommended not having it done.It's invasive and there's a small risk of a stroke and some other bad stuff.And looking back I'm glad I did not have the test done .That's because I'm doing very well ,Thank God .
       
    6. James
      No Mood

      James Member Benefactor

      Location:
      California
      Tinnitus Since:
      Pulsing 03/2013
      Hi @Jamclem,

      My further investigations led me from one doctor to another, then emails. I tired. Then medication. That's a good thing. I hope you find something that helps your t.
       
      Last edited: Nov 19, 2016
    7. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      Thank you for your replies. I guess I would rather find the cause and a solution for it before I consider any medication. I just cannot believe that more cannot be done after a MRT and CT showing nothing unusual.

      Do anyone know anything about http://thetinnitusclinic.co.uk and if there is anything for PT?

      Also https://radiology.ucsf.edu/patient-care/services/pulsatile-tinnitus-clinic
      The university of CF state on their site that their diagnosis rate is 90% for PT. Used this clinic before?

      Have a nice week everyone

      J
       
    8. The Red Viper
      Angry

      The Red Viper Member Team Research

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Leftover infection ETD + neck muscle injury
      I think an audiologist can place a microphone in your ear to listen for any turbulent blood flow. I want to experiment with this myself as I have intermittent pulsatile T when bending over and I can stop it by pressing on my right carotid artery. However, it's difficult to find a small enough microphone that I can place into my ear canal.
       
      • Like Like x 1
    9. Lola in Ohio

      Lola in Ohio Member

      Location:
      USA
      Tinnitus Since:
      Jan 2015
      Cause of Tinnitus:
      unknown
      Hello all. I've had PT since Jan 2015. It got so bad I could no longer work. I've had a catscan, several MRI's and finally a cerebral angiogram. The findings of my cerebral angiogram included severe tortuosity of my cerebral vertebral arteries and a condition in those arteries called " fibromuscular dysplasia" . No cure. I am currently using a device called Neuronomics Oasis, that was recommended by a Neuro ENT specialist, to help me habituated/cope with hearing this hissing sound. At best, It's s form of biofeedback that helps distract my awareness long enough for some relief. I use it 2-4 hours a day. I look forward to learning about what other treatment may be available. Thank you for sharing.... don't give up!
       
      • Like Like x 1
    10. Jamclem

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      Hello everyone

      Thank you all for your advice.

      Hi @Lola in Ohio Thanks for your advice. Although you did not receive the best answer from your cerebral angiogram, I am really pleased that someone actually told you a cause for your PT and that is actually worth so much to find out that you are not just going mad.. I have PT in one ear and I have had an MRI and CT scan, both were inconclusive. My doctor (who actually runs the Tinnitus Centre) seems to think I have no more options after my MRI and CT scans which is really upsetting really. I do not need antidepressants, I just want to find out what is wrong and hopefully find a solution.

      How is the Neuronomics Oasis machine working for you? When do you use it exactly? Do you find it helps? Is your PT in both ears or one?

      I keep reading about cases where doctors (particularly in America) have really looked at the MRI and CT scans and have actually seen things which thee previous regular ENT specialists have missed. I would happily pay them to look over my CDs. Does anyone have any recommended PT doctors?

      Have a nice afternoon everyone

      J
       
    11. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      Hi James.There is a doctor in New York city .Maksim Shapiro out of NYU.He's a specialist with Pulsatile Tinnitus .I believe ,for a fee ,he will look at your scans to see if any thing was missed.I saw this doctor in person a couple of years ago.He seemed extremely knowledgeable with PT.Also very caring.And he has had some success in some cases.
       

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