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Discussion in 'Introduce Yourself' started by beakerboy, May 3, 2016.

tinnitus forum
    1. beakerboy
      Frustrated

      beakerboy Member

      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Concerts/Bruxism
      Hi All, I decided to sign up and join the site after browsing it every-so-often since I started realizing my tinnitus wasn't going away about a month after I got it in May of 2015. It has been a long road, but I am hopeful for remission, whether that be from treatment or habituation.

      For treatments, I was in the AM-101 trial for 3 rounds, 2 open label. The treatments did not help. But the ENT did say they helped others in the trial. My tinnitus is a high pitched ringing, much like a computer monitor or other electronic device. During the trial my hearing was checked several times, I have above average hearing abilities and my hearing is not damaged in the least. But I hear this can be the case, even when your hearing has been damaged by loud music. Before the onset of my tinnitus, I was an avid concertgoer and probably have gone to around 20 concerts, all without any hearing protection.

      At the onset of my tinnitus, I was also struggling with bruxism. It runs in my family and seems to be brought on by stress. I was struggling to the point of trying different mouth guards and homeopathic medicines to reduce my jaw tension and overall stress levels. I have no idea if this is related to my tinnitus, and frankly, the ENT for AM-101 and my other doc wrote it off as not a related issue. However, I would like to try prednisone and some other treatments to treat my jaw to see if that lessens my tinnitus.

      I have tried acupuncture for my TMJ, but that has only help reduce my stress levels. It has not affected my tinnitus, for better or worse. Really I need to find out the cause of my tinnitus and then I can pursue a treatment. I feel like I am between a rock and a hard place, but am hopeful some future treatments will be developed to help us all with this wretched condition. I hope everyone well.
       
      • Agree Agree x 1
    2. beakerboy
      Frustrated

      beakerboy Member

      Tinnitus Since:
      05/2015
      Cause of Tinnitus:
      Concerts/Bruxism
      Just got back from seeing an ENT. Her opinion is that since the tinnitus doesn't change with jaw changes, and when she blocked the femoral artery in my neck, the tinnitus is not related to my bruxism and jaw problems.

      She said that researchers basically gave up trying to treat tinnitus years back, when there were a bunch of studies that were not successful. Just learn to live with it, she said.

      So, I guess SSRI's are my only hope, until someone finds a treatment, something that's probably 20 - 30 years off, if not more.
       
    3. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Sorry to hear ENT were not so supportive.
      A refural for a routine MRI might have been helpful .
      I would see if your dentist can check your jaw for TMJ also as they can tell better.
      It was ENT who did my refural to the multiracial specialist who diagnosed it and my dentist.
      Don't give up and push for answers if you need to .
      If you have your mouth guards try them for a few weeks and see if it helps you....lots of love glynis
       

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If you have ringing ears then you've come to the right place. We are a friendly tinnitus support board, dedicated to helping you discuss and understand what tinnitus treatments may work for you.