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Discussion in 'Introduce Yourself' started by RobertS, May 29, 2016.

tinnitus forum
    1. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      Hi everyone,
      I have tinnitus for 6 days now. And it has been the worst days of my life.

      I'm completely deaf in my right ear from birth but my left ear was just fine until a few weeks ago.
      At first I started hearing distorted and muffled sounds so I figured this is just some ear wax building up and I booked an appointment to the doctor to get that fixed.
      However, after the doctor cleared up both my ears, I felt like something is still not right and sound is still distorted.
      The doctor sent me to a hearing test and that's when I discovered I have lost my hearing in the upper frequencies. I really have no idea how that could happen... I'm still in my 30s and I always tried to protect my left ear when I went to loud places.

      Now it makes me feel sad when I listen to the same music I used to love because it sounds distorted or out of tune. Maybe it will just take some time for my brain to adjust to the missing frequencies ... I don't know.
      But that was not the worst part as you can probably guess.
      6 days ago I woke up at 4:30 AM with very load and high pitched tinnitus that was driving me mad.
      I was unable to go back to sleep and every minute of sleep is a struggle ever since.
      I've had very little sleep in the days since and even if I'm completely exhausted and start to doze off, I get re-awakened by that awful T.

      It is a constant distraction and it makes it difficult to concentrate at work or when I try to study.
      The only time I get a relief is in the shower. And I've started taking longer and longer showers to try to escape.
      I started to obsessively search every bit of information on tinnitus and found that I'm not alone in this fight.
      But I was still feeling completely gutted and horrified by the thought of never getting rid of the this.

      Reading through the forum here gave me some hope and today I decided to follow some of the advices I found and start exercising. I went out for jog and when I returned I did feel somewhat better.

      I'm completely drained by this struggle and I really hope that I could get some sleep tonight.
       
      • Hug Hug x 2
    2. Sebastians

      Sebastians Member

      Tinnitus Since:
      13/10/2015
      Cause of Tinnitus:
      Guitars, loud girls and guns
      Hey Robert, it's gonna take some time, but the spikes at night will subside. I had these insane awakening responses at night in the beginning because my brain was on constant high alert. You should really try to keep busy and avoid all stress triggers as much as possible, as hard as it is at the moment.
      There's not much medical options to explore i'm afraid so you should work with what you have: diet, exercise, stress management, sleep hygene etc.
      Some people find that melatonine helps them sleep. Maybe try and explore that for the early stages.
       
    3. ofaisalo
      Fine

      ofaisalo Member

      Location:
      dubai
      Tinnitus Since:
      09/2015
      Cause of Tinnitus:
      Acoustic trauma
      sorry to hear that :(
      well you should know first what cause the tinnitus
      did you have cold or flu lately ?
      do a normal swallow or yawn ... do you hear a a sound in your ear when you do that or not ?
      sorry for my bad English
       
    4. Marlino
      Cowboy

      Marlino Member Team Research

      Location:
      Germany
      Tinnitus Since:
      02/2016
      Cause of Tinnitus:
      unknown
      Sorry to hear you are suffering.
      In the beginning its really like hell. I had the nightly spikes as well and also the T was very reactive and unmaskable. But somehow recently it got better.
      My advice: begin with all treatment options immediately no matter how unlikely the benefit is. If you don't do it, maybe later you will regret it and wonder of you missed an opportunity. This thought alone is poisonous. If you can get infusion, get it. Check TMJ, get supplements (e.g. vinpocetine) and eat it...If you are sleep deprived you can ask for remeron, even if it makes you drowsy. This are most probably worst days of your life. So everything is allowed. Better days will come!
       
    5. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      Thanks guys.
      It means a lot to have a place to talk about this with people who understand what I'm going through right now.

      I don't know what caused it exactly. I didn't have the flu or a cold lately.
      I do hear it in my ear when I swallow or yawn but I think I heard the same sounds even before the T.

      I already booked appointments with different doctors to see what they have to say. Maybe I need a hearing aid though I'm not sure if the loss of hearing in the upper frequencies can be corrected with hearing aid.

      I realize that it's going to be a long struggle and I'm willing to try whatever it takes to survive this.
       
    6. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      The first doctor I went to said there is nothing to do but I went to see a specialist today.
      He said that because the hearing loss is very recent then there is a chace that steroids treatment might help recover some of the hearing and might even reduce the tinnitus symptoms.

      I'm starting the treatment today.
      I don't want to get my hopes up for nothing but even the slightest of improvements will be a huge relief..
       
    7. william adams
      Wishful

      william adams Member Benefactor

      Location:
      S Jersey
      Tinnitus Since:
      December 2015
      Cause of Tinnitus:
      one week after leg surgery plus hearing loss in higher freq.
      We have all been there with the anxiety not being able to get a good nights sleep and the constant listening for the Noise in your head or ears. What helped me most in the beggining was ambien to get some sleep and a low dose of xanax morning afternoon and evening. I went to the healthclub almost dailey and kept sound on in the background all of the time. At night I played nature sounds birds chirping that helped immensely. Maybe try some 5 mg time release melatonin which is natural. In the early stages of this condition just take anything to get some relief. Also youtube Julian Graham Hill and Kevin Hogan to get some positive information.
       
    8. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      I woke up at 4:45 tonight after i was finally able to fall asleep somewhere around 1 AM.
      I listened to crickets on my phone which seemed to have helped.

      Thanks for all the suggestions. I'll check them out.
      I'll try anything for a good night's sleep.
       
    9. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      Hi guys,
      Here's a quick update on my status:
      The steroids treatment seems to be having a positive effect!! :)
      The latest hearing test I took this morning showed an improvement (hearing loss now starts at above 8000 instead of above 4000 when I started the treatment).

      The tinnitus is still there but the doctors are giving me whatever is needed to help me sleep.
      I'm hoping the tinnitus will decrease its volume eventually while my hearing recovers.
       
      • Like Like x 1
      • Optimistic Optimistic x 1
    10. NativeTexan

      NativeTexan Member

      Tinnitus Since:
      04/15
      Cause of Tinnitus:
      I believe a loud passing siren - years of loud noises
      That's great news! I wasn't given that option and I visited two audiologists. I have noticed that if I watch my diet, cut down on the caffeine, salt, get plenty of sleep and try and not think about it too much - that all helps. But there are days that it is HELL! I do use my noise app at night if needed. But I have learned to calm myself down at night to get back to sleep. Sometimes just getting up and moving around - getting a drink of water helps. I have noticed that if I'm upset or my stress level starts to climb - there goes the tinnitus! So I try to stay calm and think happy thoughts. Good luck Robert!!!!
       
    11. RobertS

      RobertS Member

      Tinnitus Since:
      05/2016
      Cause of Tinnitus:
      loss of hearing in upper frequencies
      update #2
      I'm almost done with the steroids treatment.
      My hearing has not made a complete recovery but it is enough that I can enjoy music again without it being muffled or distorted!

      As for my tinnitus - it's still there but it has diminished a little to level which I can tolerate during the day and it's a huge improvement when I compare my state to when it all started.

      The nights are still tough but I am to get enough sleep on most nights and I use masking to fall asleep.

      Maybe with time I will habituate and it will get easier...
       
      • Like Like x 2
    12. glynis-harbron
      Feminine

      glynis-harbron Member Benefactor Hall of Fame Ambassador Team Awareness Team Research

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Great to hear you are doing better Roberts....long may it continue and great to hear your hearing is improving...lots of love glynis
       
    13. LadyDi
      Busy

      LadyDi Member Benefactor

      Location:
      Florida, USA
      Tinnitus Since:
      06/2013
      Cause of Tinnitus:
      Barotrauma/airplane
      Hang in there, @RobertS, you are doing all the right things. And am glad you received prompt and sympathetic medical attention. You are gonna be OK!
       

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