Hi, Old Sufferer, Maybe Old Forum Member Too

Discussion in 'Introduce Yourself' started by MickBr, Aug 13, 2015.

tinnitus forum
    1. MickBr

      MickBr Member

      Location:
      South Pacific
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      rifle fire
      Hi Guys, I may have posted here back when I first got tinnitus, can't remember old email or username though.
      I had T very mild from the army in 2000, forgot about it, then it jumped in 2013 from hearing loss. Took a year to recover and then got back to my job, international consultancy work. Re-exposed myself to reasonable sounds( like taking flights overseas with hearing protection) , being around machinery as required, felt comfortable doing so. Tinnitus would spike, also from periods of illness, but would always rectify. Felt I had a new lease on life.

      Then got a damn flu or sinusitis a few days ago and my hearing has suddenly dropped out and T doubled its volume. Which is why I am posting again, scared :) I may have overdone it on my last job in which I was around( though not operating) heavy machine plant during the day. Though I came back home for 2 weeks and was fine intitially, in fact getting ready for my next contract.So hoping this problem really is just a cold/flu. I may even have meneires, going to ask the doc that next...

      I would like to say a few things I have thought about over the last two years, both when I thought T had beaten me and when I had beaten the T.

      1. Most people with tinnitus, even louder versions aren't even on these forums. They go about their lives still being in the army, flying small aircraft, working oilrigs, mining coal, holding jackhammers, hunting with high powered rifles on weekends, etc. Check any hunting forum, about 1/4 of the members have tinnitus and still happy using guns, some have had it since vietnam, pilots are happy flying with tinnitus, and most of the miners I met on jobs, on telling them I had tinnitus all laughed and said" it goes with the turf" indication they had a version of it.

      So what are we? The more unstable version of tinnitus? I am not sure but I tried to be the other type, those who continue as normal, whilst taking all hearing related precautions at the same time. Over the next week I will discover I suppose whether I fit that group or have made a terrible error not staying hidden in my house the first time I got it.

      2. The lack of medical knowledge in tinnitus and research is really strange. Almost like prostate problems, another example I use in that it effects such a large chunk of the population including a lot of rich powerful and older individuals so should have huge money flowing to companies eager to fix it for them- yet this is not occurring and everyone is still largely in the dark about it. Look at the money, and I mean billions, that has gone into gender re-assignment procedures and associated hormone effects research in the last 20 years. And who is the driving market for that? A tiny percentage of the homosexual community and maybe hookers in Thailand. WTF.

      How does that compare to a problem which is the largest cause of disability for all the world's armies now. Not to mention half the worlds rock musicians would love a cure for Tinnitus. Just one guy like Phil Collins( a severe sufferer) could finance better trials than little companies like autifony using royalties on a couple of his albums!!!

      Every ENT, keeping in mind they pull 7 figures a year, with severe tinnitus, could fund some sort of grant to try and cure himself. Well maybe he might have to team with 1-2 other specialists surgeon to afford it into later phases but you get the picture.

      These little 8-10 million dollar research figures from health systems have me shaking my head. Maybe we need to get a grass roots movement going tom convince old rockers to get a cure for themselves.

      Anyway, intro + rant over :)
       
      • Like Like x 1
    2. amandine

      amandine Member

      Tinnitus Since:
      july 2014
    3. dan
      Chatty

      dan Member

      Tinnitus Since:
      06/2011
      1. Yes. We are the special cases here. Keep in mind also, many people who get very severe T&H choose to end it all- also the suicide rate among vets is very high, who knows in how many of them tinnitus was a contributing factor. I personally knew 3 sufferers who killed themselves this year- did the media report it? No. Does anybody care? No. Heck even T support forums censor these suicide stories out.
      Suicide is scary, nobody likes to talk about it.

      2. Little research maybe because 85% of people with tinnitus lead normal lives (as you mentioned). 10% find it affects them to some degree or other but can still lead productive lives. And only about 5% are badly affected, 2% being totally disabled by it.
      Those who are disabled are barely getting thru day to day, often locked inside their homes or bedridden or loaded up on benzos with severe Hyperacusis to boot. Do you expect these people to demand something? The rest of the tinnitus community either does great or habituated - spreading the message that any person can overcome this malady.
       
      • Agree Agree x 1
    4. MickBr

      MickBr Member

      Location:
      South Pacific
      Tinnitus Since:
      2002
      Cause of Tinnitus:
      rifle fire
      Thanks for the replies guys. Great points Dan. One I just realised and maybe the biggest one is T sufferers, in particular the ones who have gotten back on with their life, actively don't want to talk about it. Part of the healing is not to acknowledge it anymore, so they are not going to be out there actively chasing cures or support, like a lot of other conditions survivors or sufferers do. A huge chunk of possible support is lost there.

      I an understand their point .When I went back to work, about 10 of the normal fears fell away( knew I could take air flights again, drive a car long distances, sleep in a quiet room, etc, we all know the list) Felt like I was one of the other type of suffers aka the ones that don't suffer. And last thing I wanted to do was hang around a forum talking and reading about it. Now here I am again, with a new level of T for 3 days, bang feel like square 1 again, praying its just flu/labrythitis related.
       
    5. Tamika
      No Mood

      Tamika Member Benefactor Team Awareness

      Tinnitus Since:
      04/2015
      Cause of Tinnitus:
      One loud indoor concert
      Although I understand this, it makes me sad. Awareness is so important. My own husband had T long before we married and I never knew. He never talked to a doctor or anyone about it. If I had known the awareness would have prevented me getting T. I would have begun reading up and been better educated to protect his hearing from further damage, and myself as well.
       

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