If Your Tinnitus Was Cured, What Would Be the First Thing You Do Afterwards?

Discussion in 'Support' started by WaqasVic, Aug 12, 2018.

    1. WaqasVic
      Artistic

      WaqasVic Member

      Location:
      Pakistan
      Tinnitus Since:
      01/2013
      Cause of Tinnitus:
      My T is way different than all of you , ask me how
      If a pill or a treatment could cure your tinnitus, what would be the first thing you do after that?
       
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    2. Bleep

      Bleep Member

      Tinnitus Since:
      22/03/2017
      Cause of Tinnitus:
      Perhaps stress
      I would be so happy, I wouldn‘t be able to know what I‘d do.
       
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    3. Michael B
      No Mood

      Michael B Member Benefactor

      Location:
      San Diego
      Tinnitus Since:
      '11
      Cause of Tinnitus:
      Noise Induced
      Sigh with relief.
       
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    4. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      go hike in the quiet forest and plop down next to a creek and stack some rocks.
       
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    5. housemzk

      housemzk Member Benefactor

      Tinnitus Since:
      Jan 18, 2018
      Cause of Tinnitus:
      concussions, wisdom teeth removal, neck, jaw, stress, noise?
      Finally get a good night of sleep without waking up to tinnitus?
       
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    6. Snake
      Heartbroken

      Snake Member

      Location:
      Poland
      Tinnitus Since:
      08/2011
      Cause of Tinnitus:
      2011 - Gaming on headphones. 2020 - Severe by breaking glass
      Cry out of happiness
       
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    7. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      i'd be relieved that the tinnitus was gone but I'd still be stuck with ear fatigue (a very mild form of hyperacusis) and muffling in my right ear that concerns me a lot more then my tinnitus does.

      I am one of the few people on this forum that is more concerned with hearing problems then tinnitus
       
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    8. Contrast
      No Mood

      Contrast Member Benefactor Hall of Fame

      Location:
      Clown World
      Tinnitus Since:
      late 2017
      Cause of Tinnitus:
      noise injury
      it would be nice to lay me ear against a pillow and not have zapping in my head or a constant mechanic crap noise
       
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    9. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      the treatments in trials right now are primarily going to treat hearing loss, with tinnitus being a secondary issue, so you're in luck.
       
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    10. Suziladybird

      Suziladybird Member

      Tinnitus Since:
      August 1995
      Cause of Tinnitus:
      Operation
      I would be less stressed out for sure not hearing the constant whistle of the kettle - peace at last!
       
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    11. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      I would probably die of a heart attack (happiness). Imagine this shit going away woww..
       
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    12. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      “The early work done by Frequency has shown real potential for FX-322 to have a significant impact in patients with noise induced hearing loss.”

      I think this is it.
       
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    13. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      and when is this coming out?
       
    14. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      its in clinical trials right now. so sooner than later, if it works. and it has already been shown to work in living mice. and It has passed the phase on safety study. I also believe I read somewhere that they got it to work in a donated human cochlea. It looks like all signs point to success.
       
    15. Rainbowsheep
      Cheerful

      Rainbowsheep Member

      Location:
      Denmark
      Tinnitus Since:
      2014
      Cause of Tinnitus:
      Loud music, I suppose
      Sit in silence and enjoy the silence for as long as I possibly could without getting bored.
       
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    16. dpdx
      Disappointed

      dpdx Member Benefactor Hall of Fame

      Location:
      Murica
      Tinnitus Since:
      Onset:09/23/2017 Worsened: 1/17/2018
      Cause of Tinnitus:
      Acoustic Trauma, worsened by caloric test/VEMP test 90db nhL
      OMG this is amazing. I will have to wait for this.
       
    17. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Have you not been following this?

      http://www.illustratedcuriosity.com/health/health-medicine/ly411575-a-drug-that-restores-hearing/

      "The mice were then tested again and were actually able to hear, and were especially good at hearing high frequencies."

      Ly411575 mentioned in above article is a component of fx322 that's passed phase 1 FDA clinical trials

      Patent info for fx322

      https://patents.google.com/patent/US9968615B2/en

      "The specific drugs used in the assay above are agents that help drive differentiation. Non-limiting examples of the specific drugs used in the assay above include gamma secretase inhibitors (e.g., DAPT or LY411575), Wnt activators/GSK3 inhibitors (e.g., Wnt3a, R-spondin, CHIR99021, GSK3 inhibitor XXII, AZD1080, etc), antibodies, peptides, siRNA, or a combination thereof."

      They are in phase 1.5 testing this is people with hearing loss. They have already administered it.

      https://www.biospace.com/article/re...class-drug-candidate-for-hearing-restoration/
       
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    18. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
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    19. OnceUponaTime
      Wishful

      OnceUponaTime Member Podcast Patron Benefactor Hall of Fame

      Location:
      New York
      Tinnitus Since:
      11/11
      Cause of Tinnitus:
      Noise
      I would thank God first, cry...enjoy the peace and quiet....celebrate with my husband and children.... come and tell everyone here on TT. Maybe I'll do something different, who knows... I'll be so excited, emotional …. happy!

      I have thought about this so many times.... I pray for that moment.
       
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    20. TomPearson
      Transparent

      TomPearson Member

      Tinnitus Since:
      09/2012
      Cause of Tinnitus:
      Acoustic Trauma
      Probably refuse the medicine until you guys have tried it for at least 10 years first!
       
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    21. CrystalB

      CrystalB Member

      Location:
      United States of America
      Tinnitus Since:
      11/2017
      Cause of Tinnitus:
      Unknown
      If my tinnitus was cured, the first thing I would do is Thank God! The next thing I would do is stay in a quiet room, and enjoy the pure silence, ahhh how great just listening to nothing would be.

      I would had never took my days of silence for granted! The things we take for granted today could be gone tomorrow.
       
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    22. TuneOut

      TuneOut Member

      Location:
      El Dorado Hills, CA
      Tinnitus Since:
      Worsened 2016
      Cause of Tinnitus:
      Concert
      I wonder why they can't do both phases at once? Test for safety and efficacy. If I recall correctly, the safety phase of this study was done on people with hearing loss. I wonder what effect it had on them?
       
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    23. JohnAdams
      Festive

      JohnAdams Member Benefactor Hall of Fame

      Location:
      Vatican
      Tinnitus Since:
      May 1st 2018
      Cause of Tinnitus:
      Aspirin Toxicity/Possibly Noise
      Oh you better believe they have private data on its efficacy. They just aren't releasing it to us. I believe 95% that if it works they know it right now.
       
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    24. drivera2592
      Nerdy

      drivera2592 Member

      Location:
      Garden Grove CA
      Tinnitus Since:
      12/10/2017
      Cause of Tinnitus:
      Concert
      John just because it will fix hearing loss does not mean it will cure tinnitus. This is yet to be shown.
       
    25. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      I would go to the loudest concert i could find lol
       
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    26. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      nooo you'll get your T right back!! ;( :)
       
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    27. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      Do you think you could find the source for that? Would be interested to see.
       
    28. Manny
      In pain

      Manny Member Podcast Patron Benefactor Hall of Fame

      Location:
      United States
      Tinnitus Since:
      1/2018
      Cause of Tinnitus:
      central gain << NIHL
      I would first sleep probably for like fifteen hours straight cause I haven't slept normally since I got T and I am always crazy exhausted.

      Then I would lie in a room enjoying the silence for hours and hours and hours

      Then I start listening to music again - sans head screeching!! - to start working on trying to train my brain to hear music better despite my hearing loss ;'(

      Dream on, Manny...dream on :(:(
       
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    29. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      I would also resume my other hobby: woodworking. And build myself a dinner table and cabinet. =]
       
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    30. TuneOut

      TuneOut Member

      Location:
      El Dorado Hills, CA
      Tinnitus Since:
      Worsened 2016
      Cause of Tinnitus:
      Concert
      Just take another pill!
       
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