Is Tinnitus the Worst Thing That Has Happened to You?

Discussion in 'Support' started by Emma, Feb 18, 2013.

tinnitus forum
    1. Emma

      Emma Member

      Tinnitus Since:
      2012
      I hope this is not too personal a question. And IF you choose to answer, you certainly dont have to go into details as to what is the worst you have faced in life. I would say tinnitus is not the worst thing to ever happen to me, but it is the most bizarre and unique hurdle I have had to face in life. We all might have difficulties in life like at school or at work, but I never imagined there would be a sound in my ears that doesnt go away. I guess the answer to this question also depends on our views on life, and how "good" life was before tinnitus developed. For example, I asked another tinnitus sufferer if having T was the worst thing that ever happened to him. His reply was "being born was the worst thing that happened to him" OUCH! I guess he had a negative view of his life to start with.
       
    2. Eric N

      Eric N Member

      Location:
      Montreal QC
      Tinnitus Since:
      10/2012
      Unfortunately yes, T it is truly the first real bad thing to ever happen to me, my life before was no where near perfect but I would trade almost anything to go back in time.
       
      • Agree Agree x 2
    3. click
      Busy

      click Member Benefactor

      Location:
      West Cornwall, England, UK
      Tinnitus Since:
      06/04/2012
      Cause of Tinnitus:
      Not sure
      No. It was worse when my 3rd son was born at 25 weeks. But he went on to be over 6 foot and completely healthy (he's now 20)... so I suppose it depends whether T continues.

      This may be a pretty depressive thread you know - not sure it's good for us!

      Life was good before T, very very good. Life became awful for a short while & life is now good again - very, very good... even with T.
       
      • Like Like x 1
    4. Sen
      Caffeine

      Sen Member

      Tinnitus Since:
      October, 2012.
      no, hyperacusis, ear pain, and now vertigo, are a little worse. it all kind of blends together into one mass of awful though.
       
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    5. Louise

      Louise Member Benefactor

      Location:
      Yorkshire, UK
      Tinnitus Since:
      29/06/2012
      I've had a lot of bad stuff to deal with in life but yes, this is the worst. With other bad stuff you can be in pain and get over it as time passes and you leave it in the past. With T its ever-present, to me there's no 'getting over it' as its always current. I've never had fear and panic like I have now and I've never had anything that's stopped me working.

      Think Click's right about it being depressive!
       
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    6. Paul D
      Balanced

      Paul D Member Benefactor

      Tinnitus Since:
      03/01/2010
      Consciously diverting focus to the positives in life is my only recourse on days when the T is overwhelming and no coping strategies are working. I mean, if T is "the worst thing that has ever happened to you," I'd call that a privileged, protected, and definitely fortunate overall existance! How can anyone possibly compare it to real tragedy or truly chronic, debilitating disease or injury? We're all still functioning pretty well, particularly if one looks honestly at the truly unfortunate. Tinnitus sucks, but Life's Good. It's all about perspective.
       
    7. stantheman

      stantheman Member

      Tinnitus Since:
      11/25/11
      Yes. Emphatically - yes. And no, I have not been sheltered. Tinnitus has played havoc with my psyche and emotions. I can still function but have a great deal of anxiety. Now, will it be the worst thing to ever happen to me? I really don't know. As long as one is alive there is always the potential for something worse although I can't envision what at this time. I still have a hard time believing I have this affliction. I am having a harder time accepting it. That's my perspective.
       
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    8. just1morething
      Benevolent

      just1morething Member Benefactor

      Location:
      U.S.
      Tinnitus Since:
      2008
      Cause of Tinnitus:
      barotrauma from airplane descent, noise exposure? ETD? TMJD?
      Yes, Definitely. It makes life miserable, to say the least. If there was a end to this "prison" it would be different. But after reading my own statement, I almost feel worse. I have to keep my hopes up though, because if we dwell on the negative it will spiral out of control.
       
    9. Karl

      Karl Member Benefactor

      Location:
      Chicago
      Tinnitus Since:
      10/2011
      Perhaps. Up until I had gotten tinnitus, the worst thing that had ever happened to me was a serious episode of depression, ten years ago. Kind of like comparing apples and oranges, though.

      I am hoping to deal with tinnitus so that is not a factor in my life. To "dignify finnitus" by saying it tops my list, allows tinnitus to defeat me. I want to beat it in any way that I can. The objective is to ignore it and not listen to it.

      There are people who come to terms with tinnitus, who have learned to ignore it, who don't think about it for long periods. Through neuroplasticity, the brain can circumvent this situation.

      But to constantly listen to it, and think about how bad it is, and how it "tops the list"only reinforces it's place of importance in our thinking. It's counter productive to fall into that habit.
       
    10. mike

      mike Member

      Location:
      Franklin ohio
      Tinnitus Since:
      1 1/2 months
      It is the worse thing that has ever happen to me. I feel things has happen because of tinnitus. Because of Tinnitus I went into a shell. I really think if I had not got this my son would still be here. I would have been able to pay more attention to him. It just makes me feel not normal.
       
    11. Louise

      Louise Member Benefactor

      Location:
      Yorkshire, UK
      Tinnitus Since:
      29/06/2012
      Karl, where have you gone? I dont like this photo!
       
    12. Louise

      Louise Member Benefactor

      Location:
      Yorkshire, UK
      Tinnitus Since:
      29/06/2012
      Sorry Paul but I find this post very offensive. I have certainly not had a 'privileged, protected, and definitely fortunate overall existance!' I find it really rude and small minded of you to suggest that. In addition how do you know that 'we' are still functioning pretty well? You know nothing of our lives and the destruction tinnitus has wrought on them. Speak for yourself and not others on here. My life is certainly no longer 'good', I am unable to work and unable to pay my mortgage and will shortly lose my house. And regarding "How can anyone possibly compare it to real tragedy or truly chronic, debilitating disease or injury?" Even mainstream literature on tinnitus describes that it can be 'debilitating' and 'disabling'. Maybe you just have a very mild case of T.
       
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    13. Karl

      Karl Member Benefactor

      Location:
      Chicago
      Tinnitus Since:
      10/2011
      Louise -
      My latest "avatar" is one othe greatest engineers who ever lived: Karl Terzaghi, the father of Soils Mechanics.

      I will find a new photo showing my current age. My previous photo was taken at least 10 years ago. Either that or I go back to my "Young Frankenstein" photo (or Captain Pike from STAR TREK).

      I've been cooling it until I get hearing aids. Then I'll write a new scoop.
       
      • Like Like x 1
    14. Louise

      Louise Member Benefactor

      Location:
      Yorkshire, UK
      Tinnitus Since:
      29/06/2012
      I knew you had withdrawn until you were ready to startle us with some discovery! I preferred the other photo, in the words of the song (I think) I'd become accustomed to your face!
       
    15. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      It's all about perspective as long as it isn't debilitating or your only thought day in, day out.

      Tinnitus is truly debilitating for about 1-2% of all of those experiencing chronic tinnitus, I faintly remember reading. That's an estimate.

      What if somebody senses a fire truck's siren in their head 24/7?

      And can't major depressive disorder be a debilitating, tragic and chronic condition? Or other psychological conditions? (Many of which has to do with neurotransmitters etc.)?

      I mean... it's NOT POSSIBLE to grade any other's tinnitus based solely on one's own experience. Tinnitus is such a complicated condition and how everyone manages with it varies a lot. Some have it worse than others for starters, and who knows how differently each brain handles the noise.

      As a general rule it's fine to say to newcomers that it will get better and it's not the end of the world, as that is the case for >95%.

      But the minority who not only suffer from it but for whom tinnitus has become a life-threatening condition, they cannot understand - nor should they be expected to - how tinnitus isn't a chronic, debilitating ailment.

      I think you meant good by your post, for sure, but it sounded to me a bit like belittling tinnitus - which can be tormenting, chronic, debilitating and tragic all at the same! It's wonderful for the majority it isn't, but for some it unarguably is.
       
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    16. Paul D
      Balanced

      Paul D Member Benefactor

      Tinnitus Since:
      03/01/2010
      I surely don't mean to offend, Louise. As Markku says, "I mean... it's NOT POSSIBLE to grade any other's tinnitus based solely on one's own experience." And from reading your posts the last few months, I do believe that in your case T is indeed debilitating; it's obvious you've been searching desparately both far and wide for some sort of relief. Personally, and I do mean to speak only from my own experience, the only way I have in dealing with the really, really bad days or weeks and remain sane is to compare the condition with those much worse off than myself. It's not that difficult to see that those living in total squalor, suffering from a myriad of diseases and extreme hardship, are much worse off than I. Not to mention those living under repressive regimes for a lifetime with no way out. There are a lot of people out there with terminal illnesses who somehow manage to celebrate the gifts they receive on a daily basis. Now that's inspiration.
       
    17. click
      Busy

      click Member Benefactor

      Location:
      West Cornwall, England, UK
      Tinnitus Since:
      06/04/2012
      Cause of Tinnitus:
      Not sure
      It's very difficult to say what the worst thing that has happened is - it's often too difficult to compare things that are so different. I replied earlier that tinnitus isn't the worst because of my son being born early & in special care for nearly 4 months but tinnitus is the worst thing that has happened directly to me.

      Paul, I agree with Louise. Unfortunately the way that you have phrased these posts could cause real offence. Even in your last post above, although you have been careful to say that you mean to speak from your own experience, the last three sentences once again sound judgemental...as though we should be thinking in this way..

      "Not to mention those living under repressive regimes for a lifetime with no way out. There are a lot of people out there with terminal illnesses who somehow manage to celebrate the gifts they receive on a daily basis. Now that's inspiration."

      I'm glad that it helps you and that it is your inspiration but perhaps if your T was louder or different, then thinking of others in this way wouldn't help you much either.
       
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      • Agree Agree x 1
    18. Sue Knights

      Sue Knights Member

      Location:
      West sussex
      Tinnitus Since:
      01/06/2011
      When I first got T it was the worst thing that has ever happened to me yes, I just didn't know how I was ever going to carrying on living like this when its bad its bad but one day my Zumba instructor mentioned acupuncture so I decided to give it a go, I went with a open mind I used to go twice a week I now go once a month it hasn't taken it away but it makes me feel so go and helps me deal with it this is something I will keep up, its good to talk to people who have it and that helps because you don't feel like your the only person in the world with it and they understand how you feel you just need to find something to help you cope with it as well, believe me I hate T more than anything in this world and I know there are people with a lot worse than me but god it can drive you insane at times, but thank god for acupuncture it really has helped me and made me feel happy again
       
    19. Louise

      Louise Member Benefactor

      Location:
      Yorkshire, UK
      Tinnitus Since:
      29/06/2012
      Hi Sue,

      I've been having acupuncture too. The lady did say it doesnt have great results for T but for anxiety & panic it does. I really liked the sessions and felt much more relaxed when I had them but it never lasted even one day :(

      Do you have it for anxiety too?
       
    20. Lucy

      Lucy Member

      Tinnitus Since:
      07/1998
      To be fair minded to some people this will of course be the worst thing that has happened to them and I can understand that and yet to others they are able to find some way of coping. As for myself even though it overwhelms me and |I simply wish it would go away it is not the worst thing that has happened to me.....other health issues have been far greater and personal tragedy`s. Good question....puts everything in perspective for me.
       
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    21. daedalus

      daedalus Member

      Location:
      Brussels
      Tinnitus Since:
      04/2007
      Tinnitus and going to public school.
       
    22. Ilija
      Breezy

      Ilija Member

      Location:
      Jagodina, Serbia
      Tinnitus Since:
      8/2014
      Cause of Tinnitus:
      Loud gig/year of loud headphone usage.
      Worst thing YES.
      There are other worse things but right now, I would rather take cancer over this.
      Because with cancer there is no wait a year and see if shit happens.
      You die or you get through it at the very least you can do stuff about cancer, I can't do shit about Tinnitus, If it worked I would take radiation for this.
      I would take anything for this because it's not the Tinnitus that bothers me it's the little shit that comes with it (Hyperacusis,Sensitivity to sounds,Misophonia and more).
      My problem is that now PC's and Copy Machines and TV's sometimes produce sounds that after a while I begin to hear, these are usually the sounds of Tinnitus kind ringing,static mostly.
      It can go away after a while, but then again it may not which is what I hate.
      It's one thing for a doctor to tell me 100% accurately hey you have cancer and you will die in 5 years, it's another to say you got 5 years of cancer it may get better or worse or nothing you just have to wait and see.
      It's like an never ending cliffhanger.
      I'm giving myself a year for this to leave well the sound sensitivity the Tinnitus is low and barely even a bother, but if my ears don't stop hearing beeps and rings and hisses and static from every electrical piece of equipment I don't know what I'll do.
      Actually I do I just don't want my life to end that way.
       
      • Agree Agree x 1
    23. bwspot

      bwspot Member

      Tinnitus Since:
      06/13/2014
      Its hard to categorize this crap. T is an invasion of your private space.
      Bad things happen in life. T is not life threatening but it is such an annoyance.
      It took from me the most important part of my life, the good sleep.
      I hate you T. You are not the worst but you are the most destructive B.
       
      • Agree Agree x 2
    24. Grace
      No Mood

      Grace Member

      Tinnitus Since:
      11/14/2013
      Yes
       
    25. RicoS
      Confused

      RicoS Member Benefactor

      Location:
      Netherlands
      Cause of Tinnitus:
      Stress or Acoustic trauma
      It's the worst thing that happend to me until this day....who knows what tomorrow brings......
      I had a accident in traffic and I broke a leg and an arm and needed surgery on the other arm and also on my leg.
      I lay on IC for 2 weeks.....it was bad....but at least it was silent....
       
      • Agree Agree x 2
    26. kharaa
      Depressed

      kharaa Member

      Location:
      Ogden, Utah
      Tinnitus Since:
      March 3rd 2007
      Cause of Tinnitus:
      Noise Damage
      Without a doubt, and i've gone through a lot in my short life so far. Tinnitus is one of the most horrifying things that have ever been afflicted upon me.
       
      • Agree Agree x 2
    27. Bart
      Balanced

      Bart Member

      Location:
      Antwerp
      Tinnitus Since:
      05/06/2014
      I would say yes.

      Never even been sick before or had anything to worry about, my life was pretty great and relaxed.
       
      • Hug Hug x 1
    28. rachelfaye

      rachelfaye Member

      Tinnitus Since:
      february 2014
      The original poster said "bizarre and unique hurdle" and I think that is apt and a more hopeful way to phrase this. Although I'd place it a bit above that in terms of "life disruption."

      It is not by a long shot however the worst thing that has happened to me. It is an ongoing condition to manage/accept and often hate. But I have a son with a profound disability that I can't imagine having all my life - and I think of other things too that trump this.

      Good food for thought - to consider perspectives.
       
      • Helpful Helpful x 1
    29. Worker

      Worker Member

      Location:
      England
      Tinnitus Since:
      06/2014
      Cause of Tinnitus:
      lots going on at the time
      YEs the worst thing which has ever happend to me. I cannot sit down, lie down, eat, yawn, walk, move my head, bend down without the noise getting louder, it changes throughout the day. FOUR MONTHS AGO I HAD A GREAT LIFE. IT GETS SO LOUD WHEN I GO ANYWHERE THERE IS NOISE AND I GET DISTRAUGHT. WISH I HAD A MAGIC WAND. THIS CONDITION NEEDS TO BE BROUGHT TO THE PUBLIC S ATTENTION LIKE OTHER DESEASES. DURING THESE FOUR MONTHS I HAVE DISCOVERED THERE ARE DIFFERENT INTENSITIES AND IT IS NOT JUST A SMALL NOISE FOR SOME OF US.
       
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    30. Tenna
      Anime

      Tenna Member

      Location:
      Europe
      Tinnitus Since:
      10/2013
      Soon hitting the 1 year anniversary with t, I'll never forget the state of shock the first months and h added to the equation, ttts, next to that the limitations and how it took away my profession and loved hobby ever since.
      But no, it is not the worst :)
       
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