It's Sad How Faulty Awareness Is

Discussion in 'Support' started by Dubbyaman, Dec 26, 2017.

    1. Dubbyaman
      Angry

      Dubbyaman Member Advocate

      Location:
      Northern Indiana
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Excessive loud noise
      • Like Like x 3
    2. Greg Sacramento

      Greg Sacramento Member Benefactor Hall of Fame

      Tinnitus Since:
      April 2011
      Cause of Tinnitus:
      syringing and now somatic T dental work
      I think that 'awareness' should be directed towards healthcare professionals - doctors and hospitals. There's so many studies where results are encouraging where 18%, 32%, 53% have seen improvement. We has posted many of these studies. My neuro is the only doctor that I know who uses free time to read studies. He often would like a team effort made for T patients for treatment and education per some studies, but he can't doctors willing to participate.
       
      • Like Like x 1
    3. glynis
      Feminine

      glynis Member Benefactor Ambassador Hall of Fame

      Location:
      England, Stoke-on-Trent
      Tinnitus Since:
      2004
      Cause of Tinnitus:
      Meniere's Disease
      Hi @Dubbyaman ,
      It won't let me play the last one.
      Great have you as a advocate..
      Love glynis x
       
      • Like Like x 2
    4. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      This is where all the psycho/physiology comes in. The awareness from a medical point of view should cover the outward, cascading effects on a productive life hit with severe tinnitus, if it can't address the underlying physiology itself. Pop stars can stuff Euros in their ears if they want, but the average worker trying to get their family going, build a career, complete studies etc suddenly gets slammed, and all the efforts of life-building come apart, with all the potential costs to society of health care, welfare, loss of earning potential (less tax paid?), loss of and injury to family life etc right up to and including self-harming behaviours. The old TRT/CBT model that Michael Leigh outlines in his early days of care is actually an early example of a systematic attempt to address this psycho-physiological side of the equation holistically, all of which now seems to be largely lost. Whether it died on the altar of funding cuts or research-casting-doubts I don't know (usually gaming the research interpretations makes good cover for the politics of managing funding cuts), but I do know we know that while we won't get a tinnitus cure, there could still be stronger efforts towards understanding, and mitigating the life-changing effects of tinnitus and all that it brings. Most efforts along these lines as it stands now seem to flounder in a sea of mistrust and cynicism. We've heard it all before, and they think surely it can't be that bad. I'd personally be more open to the psychology/TRT side of things now than I was four years ago (were I to do it all again, which I sort of am). I probably would have been a little less maladaptive in my reactions than I ended up being which may have made life easier, who knows?. Doesn't really matter now.
       
      • Agree Agree x 2
    5. AUTHOR
      AUTHOR
      Dubbyaman
      Angry

      Dubbyaman Member Advocate

      Location:
      Northern Indiana
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Excessive loud noise

Share This Page

Loading...