Late SSHL Diagnosis and Now Tinnitus. Scared.

Discussion in 'Introduce Yourself' started by Jarod, Jul 24, 2015.

tinnitus forum
    1. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      I just lost my hearing driving home july 6th 2015. I went to my gp the next morning and told him what happened. They did a quick hearing test that showed i could hear and looked me over and told me to take afrin. Couple days after that i called back because it turned to ringing and then they gave me nasacore. 9 days after i panicked and called an ENT. They got me in right away and did injections and oral prednisone. It was to late to have significant improvments and still have one more to go. I feel so dumb not going to an emergency room or calling a ENT right away. Like everyone else i feel hopeless and in dispair about my future. The T is the worst part like for everyone else. I cry daily and fight just to get up and go to work. I feel really stupid getting wrong care and i feel a burden to everyone around me. I cant sleep now either. I am just looking for any hope i can. I lost 60db in the bottom three hz. Im around -20db in the top three. Fans and such dont seem to work at all. The only hope i see is if they can make this stem cell rejuvination work. I havent found a single story of anyone recoverying after 9 days of onset.
       
      • Hug Hug x 3
    2. billie48
      Sunshine

      billie48 Member Benefactor Hall of Fame Ambassador Team Research

      Location:
      Vancouver, Canada
      Tinnitus Since:
      03/2009
      Welcome. Sorry that you are suffering so much, but that is typical of most new sufferers. In fact if you read the success stories, you will find what you describe quite common for those who get better. It is almost like a T recipe of suffering at the initial stage. T is also quite unpredictable. Some do recover and T just fade or disappear. Some have T staying on but learn to habituate to it, like in my case. A few years back I was in a mess with ultra high pitch T and severe hyperacusis, plus I had relentless anxiety and panic attacks daily form the moment I woke up by my loud T. Life was dark and hopeless. Like you I struggled mightily and had no energy, lost weight, feeling doomed. I never thought I would recover and made the mistake of projecting the future based on the immense suffering at the start. I paid dearly for that. Today I live a normal, productive and absolutely enjoyable life. Quite amazing turnaround. But I am not alone as many members posted their success stories. I include a few here and hope you will read as many as you can. Get some masking going asap so you don't get freaked out so much and perpetuate the suffering. So don't panic. Stress and anxiety are bad for T. Try stay positive and calm as much as you can. Take good care and may God bless you with speedy recovery.

      TT's thread with tips for new sufferers and many masking sounds:
      https://www.tinnitustalk.com/panic/

      Autifony Quiet-1 success story, new drug on the way:
      https://www.tinnitustalk.com/thread...he-autifony-quiet-1-study-great-results.9743/

      My success story:
      https://www.tinnitustalk.com/thread...w-i-recovered-from-tinnitus-hyperacusis.3148/

      The most read success story ‘Back to Silence’ with a simple effective strategy:
      https://www.tinnitustalk.com/threads/back-to-silence.7172/

      Jade’s success story with super loud T:
      https://www.tinnitustalk.com/threads/6-months-tinnitus-still-going-strong-but-so-am-i.3226/

      Even doctors have T, like some of those at the Doctor's Corner.
      Dr. Hubbard’s success story:
      https://www.tinnitustalk.com/threads/how-cbt-helped-me-live-again-dr-hubbards-story.4608/
       
    3. Nucleo

      Nucleo Member Benefactor

      Tinnitus Since:
      02/2011
      Prednisone may still have effects. Don't beat yourself up by what you did or didn't do - the bottomline is that you didn't know. Not anyone's fault here. In any case you should look into the AM-101 trial which aims to treat tinnitus in its acute stage, up to 3 months.

      More info can be found here : http://www.tinnitus-study.info

      If you do decide to go on with the trial, don't wait too long. Time is an important factor here, it is always best to get treatment early.
       
    4. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      Thank you for your encouragment. SSHL Doesnt seem to be allowed in am 101 trials. Dont see that as a choice.
       
    5. Thongjy
      Balanced

      Thongjy Member

      Location:
      Singapore
      Tinnitus Since:
      11/2014
      Cause of Tinnitus:
      Unsure
      What is the cause of your SSHL?
       
    6. 1MW
      No Mood

      1MW Member

      Cause of Tinnitus:
      ssnhl
      Take immediatelly corticocosteroids.
      High doses.
       
    7. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      My SSHL is unkown causes. Doctor thinks it was a virus. I already had 3 weeks of the staroids in my ear and oral with no results started 9 days after onset. It seems if you do not get right treatment within 3 days your life becomes ruined until you can find a day that you rebirth from the ashes you are left with and accept your miserble fate. Thank you for joining my mind Mr. Tinnitus and making me break down everyday. You are my soul mate if i like it or not. I wish i could atleast hear well from my crap ear to give you more noises to join the party. Even though i am sinicle and depresseed I love God and my faith will not stumble. Even though im in a really dark place. I known in my heart he will give me just enough of whatever I need to carry on with my life.
       
    8. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      Another thought..i cant join am101 trials because i got tinnitus from SSHL.
       
    9. 1MW
      No Mood

      1MW Member

      Cause of Tinnitus:
      ssnhl
      Iv steroids 120mg methylprednisolone for 4 days and then lower.
      The doctors you went are dangerous ssnhl needs iv corticosteroids big doses
      from first minute.
      Also the protocol for ssnhl says and other drugs like
      Valacyclovir
      Piracetam
      Nac
      Vitamins b/c/d/e
      Magnesium
      Hbo
      Etc
       
    10. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      I guess it is to late for that im 24 days in
       
    11. RB2014
      Confused

      RB2014 Member Benefactor

      Location:
      US
      Tinnitus Since:
      12/2014 became noticable
      Cause of Tinnitus:
      Loss of hearing and then stress and anxiety
      Its going to be hard at first, but eventually you will adapt and lead a somewhat normal life again. Everyone here shares you pain and we have all been through what you have in one way or another. Masking T with noise is even harder when you have lost some hearing. You will get better. Its just going to take time. Read up on the stories and you will see what works and what doesnt. Dont let this get the best of you as it just makes the T worst. You cant change whats happened, but you can change whether you get better or worst.
      The more you agonize over this the more you will concentrate on the T the longer it will take to get better. I know its not that easy. Been there done that, but just letting you know what my experience has been. Its probably not going to go away with the hearing loss, but you can habituate or learn to live with it, or do a 50/50 split like me where some days its loud and others its super faint. Important thing is to start the road to recovery now.
      I'm sure you will read, Anxiety and depression and fear fuel T. Make it loud, and can make it super loud if you continue down this path.
      Start all of the techniques to get better. You cant change whats happened, but you can change how long you will live with loud T. Some people can get better in a month, some people like me it took 7. The more you give in to the emotions/fear/anxiety, the longer it stays with you.
      You want to get better faster, you want to get it out of your head as soon and as much as you can. Calm down and start the road to recovery. If you need advice just let us know.
       
    12. 1MW
      No Mood

      1MW Member

      Cause of Tinnitus:
      ssnhl
      I have passed ssnhl and is the worst type of T.
      I got from first day big doses corticosteroids and recovered my hearing 99%-100%
       
    13. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      You got lucky and got right treatment right away. I didnt start treatment till day 9.
       
    14. 1MW
      No Mood

      1MW Member

      Cause of Tinnitus:
      ssnhl
      You lost hearing from one or both ears?
       
    15. Leodavinci
      Wishful

      Leodavinci Member Benefactor

      Location:
      Kansas
      Tinnitus Since:
      6/26/2015
      Cause of Tinnitus:
      Acoustic trauma
      Many people SSHL spontaneously improve hearing over the long term, the degree of improvement goes down with the severity of symptoms and the degree of hearing loss. See here; http://www.dizziness-and-balance.com/disorders/hearing/shl.htm
      Your reaction time and the fact that you saw your GP should have been enough to alert the health care system and get prompt attention. We have a very poor health care system and none of this is your fault.
       
    16. Leodavinci
      Wishful

      Leodavinci Member Benefactor

      Location:
      Kansas
      Tinnitus Since:
      6/26/2015
      Cause of Tinnitus:
      Acoustic trauma
      Also intratympanic injections of corticosteroids are now routine up to 3 months after onset. You should go to your ENT preferably an Otologist and ask about intratympanic streoid injections. I'm over 5 weeks after SSHL onset and my ENT wants to give me three intratympanic doses of dexamethasone over the course of three weeks. I'm reviewing the research on this treatment to help me decide if I want to try it.
       
    17. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      I got the injections 9 days after onset. First week i got a minor improvement on my higher side. Second week nonimprovements. Third week wont know until appointment. Gotta get an mri and blood work done. mentally i have been doing better copping for now without meds. I sleep half decently. I wake up a lot, but my stress is high from this and personal life, hopefuly i can bring the stress down and not wake up so much. I have had wierd things happen to me the last 3 years from mono, to getting sick to often, eye floaters feeling unwell. I cant wear contacts anymore because of inflamation behind eyelids. Gastritus. Lipomas. Body rash earlier thisbyear. Upper respitory month befor loss of hearing in one ear. And sick with tonsils out a week befor loss ofnhearing. I have been tested 4 times for lymes and western blot earlier this year. Negative so far. All blood work says im healthy as an ox. Wondering if i possibly have a lyme type that cant be detected or everything is coincidence, or a parasite.
       
    18. Leodavinci
      Wishful

      Leodavinci Member Benefactor

      Location:
      Kansas
      Tinnitus Since:
      6/26/2015
      Cause of Tinnitus:
      Acoustic trauma
      Thats a strange coincidence. I got cytomegalovirus 2 years ago, had floaters flashes on two occasions briefly within the last 7 years. My blood work is great as well. I do wonder if a mono virus, which is what cytomegalovirus is, could reflare. If so I have only ear symptoms. I should see if there is an antibody test for cyto that can indicate if it has "flared". You would have a bullseye red sore if you got a lyme through a tick bite. Glasses are much healthier than contacts. Once you get accustomed to them I think you'd prefer them if you haven't worn them recently. Keep searching and inquiring about your conditions and what you can do about them. Looking after your health in general with whole foods, cooking at home, walking outside etc should help..
       
    19. Jarod
      Sad

      Jarod Member

      Tinnitus Since:
      07/06/2015
      Good to know, thanks for the infomation concerning your own problem. also look into lymes more deeply, you dont need a bulleye at all. Also, there are sub groups of lyme you can get without lyme. They are called co-infections but i talked to a fee docs that say there patients had the other infections wihout the lyme titters. Also there are new strains being found that there is no test for yet. I have a lot of friends and loved ones that got lyme and the other infections you can also get from ticks. Scary world..
       

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