Lenire — Bimodal Stimulation Treatment by Neuromod

How do you measure MML when you have reactive tinnitus?

 

Would Lenire help people with hyperacusis?

 

Solution: stop taking the meds... during treatment. If the meds are for the tinnitus, you wouldn't need it afterwards if it worked anyway. I mean, the treatment doesn't go on forever. Unless the meds are life or death they can probably be temporarily stopped. Once the neuroplasticity does its thing, then go back on the meds if necessary. Once the mental rewiring is complete the meds won't be able to undo it.

Supposedly it works better for people with hyperacusis. But I'm not sure it actually reduces noise sensitivity per se. I'm not counting on it and it's the tinnitus that really stresses me out.

 

I didn’t read the paper, I was just replying to what you said and clarifying the difference between clinical significance and statistical significance. Ideally it would be both! But the authors should not mistake the difference regardless.

 

Bingo! The concern sometimes is with these clinical studies... Is 7 points or more improvement in THI actually a difference patients would notice...

 

Just to jump in as someone who has recently done this -- I think the above is too simplistic a view. You shouldn't just temporarily stop taking a medication. Believe me, it is very hard to judge exactly what they are doing for you and how much you need them. They don't just switch on and off like that anyway -- you have to taper very slowly over weeks, and it will take a while for it to be completely out of your system. If you then feel you need to go back on, it's about two months before they start working again. So not a decision to take lightly, and a very long time to be without them if you need them.

Also, coming off and on medication can cause spikes in tinnitus, so there's that to consider.

Maybe discuss with the ENT doctor before the treatment, but my advice is don't just stop.

 

I don't know. Some days your tinnitus could be actually the same as the previous day and yet it could be 10 THI points different.

 

I think they need to release this thing now, we have waited long enough =\

Hopefully the June leak is true.

 

What kind of ear spasms do you get? Ear drum spasms or inner ear spasms at the same frequency as your tinnitus?

 

Well, since the patients do report the THI and there is a 7 point difference those 7 points should be felt. Otherwise there is no difference between 37 and 30 point results etc.

Issue would be that if you have 90 points and get 7 points reduction it might not feel as much. Or it might feel more since it takes you below the insanity level.

There are some yellow flags regarding Neuromod's delays and non-communication which is worrying. Apart from that, there are quite a few good scientists tied to the project and hence Lenire is our best bet. And if it's efficacious for 80%, then it would be worth a shot for everyone I would say.

 

@Rafaa ear drum type spasms when I stop talking or am exposed certain sudden noises.

 

I don’t get how a 10 point decrease in THI is statistically significant. I’d hope most got MUCH more than that. And only 66% met this criteria. So the people for who it completely eliminated tinnitus are rare and we shouldn’t expect results like that. But they can happen.

But if a 17 dB reduction is about average like that Facebook post said then that’s pretty good.

 

Deborah Hall was involved in ACRN, for your information.

https://www.frontiersin.org/articles/10.3389/fpsyg.2017.01893/full

 

Can someone please share a working link to the Neuromod (Lenire) device or website?

 

https://www.lenire.ie

 

The relevance being?

 

I feel like they're getting ready. Just seen a post on Twitter from the Digital Hub, saying Neuromod met with them yesterday. There isn't a link I can find but have a look on Twitter if you can

 

That's the one! Thanks Markku

 

Leave it up to me to say this comment but... (giggling) Is it only me that thinks the purple pretty packaging looks great!? Even the laptop is purple. If it works as good as it looks we have a winner!!
Not that I care about the packaging, I'll rip that box open in a second the minute I have it in my hands...lol...

Great photo shoot.

Just throw it at us already please!

 

Is that why some women refer to men as dickheads?

 

I reckon so J1MT......x

 

Dumb question:

What do you all think about going for Lenire vs. Dr. Susan Shore - I have no hearing loss up to 8 kHz and have a history of TMJ. However I was exposed to a loud noise when it happened and I am not able to change the pitch of my tinnitus with any movement.

What if my tinnitus is one subtype and by using this machine it interferes with my neurons and gives me another type of tinnitus or messes with my pathways (I have a background in humanities rather than science as you can probably tell!!!), so that I can’t use the Dr. Susan Shore method later as by then I might have acquired noise induced tinnitus?

 

I believe it was mentioned somewhere that for those whose tinnitus increased during trials, the effect was only short term and this resolved shortly following treatment.

Don’t underestimate the plasticity of the brain! I’d say it’s unlikely that using Lenire will completely block any potential effects of another similar device.

 

I think the laptop might be purple because of the reflection of the box Once But don't let that put you off - I'm sure it's still good!

I also think the branding and marketing looks very slick. Here's hoping for a less than slick price point and a pic of Ann's boobs!

 

I think people are more excited about seeing @annV's boobs than actually getting Lenire.

 

Hey, purple's my favorite color. I'll take that as a good omen.

 

After so many pages I'm not sure if this version has something different from the previous one. If so, there are 1 or 2 comments in Irish Health which do not help me maintain optimism. The comments are old but is the device 100% the same?

 

The physical device doesn't determine whether it works. It's the parameters that are programmed into it, which have changed.

 

@OnceUponaTime such a lovely essay by your little one, you should send it to Neuromod.

It brought tears to my eyes. I have an 11-year-old who got quite upset the other day.

Anyhow, I’ll be on a boat to Ireland if I don’t get back to baseline the day it’s released, camped outside their offices.