My Mini Update

Discussion in 'Support' started by stacey, Nov 18, 2015.

tinnitus forum
    1. stacey
      Bookworm

      stacey Member

      Location:
      New York, NY
      Tinnitus Since:
      07/15/2014
      Cause of Tinnitus:
      Unknown
      I hope everyone on here is at least doing well. I wanted to update everyone on whats happened since my last post. It was a horrible downward spiral, I felt completely hopeless. T and H has taken its toll on me, during my difficult time I decided to see a neurologist, although I've given up hope on doctors I decided to see one more. The neurologist of course let me know as well as all the other docs i've seen. She said this was a "difficult condition" and nothing can really be beneficial, those comments made me feel more as if my life was over. Then she just prescribed a anti depressant and said there's no guarantees but that I should at least try it. For now i've decided not to try it. So i've had no luck in finding anything helpful and my T and H are even worse. Haven't had any progress. Sorry I don't have good news, :( but I hope everyone is well though and getting through this difficult time, especially with the holidays coming up.
       
      • Hug Hug x 2
    2. liquefact
      Balanced

      liquefact Member Benefactor

      Location:
      Seattle, WA
      Tinnitus Since:
      09/25/2015
      Cause of Tinnitus:
      Loud Indoor Rock Concert
      Do not give up please. Have you considered Phospatidyl Choline and/or 5-HTP? It can give you some relief, nothing to loose for trying that.
       
      • Like Like x 1
    3. stacey
      Bookworm

      stacey Member

      Location:
      New York, NY
      Tinnitus Since:
      07/15/2014
      Cause of Tinnitus:
      Unknown
      @liquefact no I haven't tried those supplements but at this point i'll try them, its worth a try at least. I will only take the antidepressant the neurologist gave me only as a last resort, I wanna first try supplements or anything more natural before diving into such harsh meds with so many side effects.
       
    4. billie48
      Sunshine

      billie48 Member Benefactor Hall of Fame Ambassador Team Research

      Location:
      Vancouver, Canada
      Tinnitus Since:
      03/2009
      It is nice to hear from you again, @stacey. You impress me with your exceptional kindness and compassion - thinking about others while you are having a hard time. We were really worried about you during your last post. T & H are not easy to live with, but there are many of us who have had both these conditions and have managed to live a normal life now. The H will usually fade over time for many. So don't rule yourself out that your H will not fade over time. Even if it stays, people have learned to live with it. Dr. Charlie is one who had posted that he still has H but manage to live his life by making some adjustments without letting it take over. Hope you can borrow some strength from his experience living with H or message him for support. Here is what he wrote about his T & H in his introduction:

      https://www.tinnitustalk.com/threads/dr-charlie-—-ent-specialist-with-tinnitus.6935/

      Are you doing any masking for your T? If not try these approaches or masking sounds:

      TT's own audio player with masking sounds:
      https://www.tinnitustalk.com/panic/

      If you need more masking sounds, here is free ‘aire freshener’:
      http://www.peterhirschberg.com/mysoftware.html

      Rain sounds are soothing indeed. How about making your own rain sounds with this rain generator:
      http://mynoise.net/NoiseMachines/rainNoiseGenerator.php

      And if you need DIY notched Acoustic Coordinated Reset Neuromodulation (ACRN):
      http://www.tinnitus.org.uk/acoustic-cr-neuromodulation
      http://www.generalfuzz.net/acrn/

      Have you taken some supplements to help your T? If not, you may want to try NAC, Magnesium, Zinc, B12, D3, Lipo-Flavonoid Plus, etc., etc. Often we read some one trying a new supplement which does magic to their T. So never hurt to try them if the supplement is available and affordable from reputable sources. Cut down on salt & sugar, caffeine, alcohol, MSG etc. if you haven't. You may need to try something to see if they can cut down T's loudness. Besides these, trying to stay more positive and calm can also help reduce stress and anxiety which are toxic to T.

      Also make sure you sleep well. Sleep deprivation is a sure way to fire up T. If you need something natural to help sleep, instead of sleep meds from the doctor, you can try natural alternatives such as Camomile tea, Hops, Valerian tablets, Melatonin etc. Check out this site on using natural herbs for sleep problem:

      http://www.christopherhobbs.com/lib...alth/herbs-and-natural-remedies-for-insomnia/

      Sure hope you will find something to help you cope with T & H. Reading the success stories can help your brain stay more positive & hopeful. Even if the doctors can't help, it is not the end. There are still many success stories from people who have found ways to help themselves without the need of doctors. So don't give up hope just because doctors can't help. We know not all doctors are trained to help T patients and without a drug which can tame T, most doctors are just clueless what to do. Try to put your hope on others who have battled with T & H and now live a normal or even enjoyable life. Of course, there is hope that some of those drugs on trial may be able to help someday. Hang in there. God bless.
       
      • Like Like x 1
      • Winner Winner x 1
    5. stacey
      Bookworm

      stacey Member

      Location:
      New York, NY
      Tinnitus Since:
      07/15/2014
      Cause of Tinnitus:
      Unknown
      Thank you so much @billie48 for your optimism, kind words and helpful information, I really appreciate! You give amazing support on here. God Bless you as well.
       

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