Please Create Your Success Story Instead of Just Leaving

Discussion in 'Success Stories' started by RobertFahey, Dec 11, 2018.

    1. RobertFahey

      RobertFahey Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Maybe sinus infection
      I see countless cries for help in the "Introduce Yourself" string, from people who have just come down with tinnitus -- but very few take the time to return and update. If you've gotten used to tinnitus and moved on with life, everyone needs to know that. If the newbies read enough stories like that, they'll feel better about it. Instead, we get desperate cries for help and then . . . nothing.
       
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    2. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Don't encourage this
       
    3. New Guy
      Doh

      New Guy Member Benefactor

      Tinnitus Since:
      3/18
      Cause of Tinnitus:
      Noise Induced Hearing Loss
      Great point Robert. I've kept a thread with my progress, or the opposite, for the last 9 months for that very reason.
       
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    4. PDodge
      Cowboy

      PDodge Member Benefactor

      Location:
      Woods of Alberta
      Tinnitus Since:
      01/2017
      Cause of Tinnitus:
      Bear ate my Cochlea
      On days my tinnitus is good, I DO NOT visit this site. I want to forget and I can't blame people who get better for never returning.
       
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    5. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      If you decide to leave this forum while still suffering from tinnitus, or if you decide to commit suicide as a result of your tinnitus, please make sure to post about it too before stopping posting here. Otherwise we will end up with a biased picture.
       
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    6. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      I have shared several times now my story of habituation only to be shot down in flames by some who find it inconceivable that it is possible for someone with loud, intrusive tinnitus to do so.

      So here I am ... habituated ... and probably about to face the firing squad for announcing it.

      But, it is important (as you've pointed out) for members like myself to continue to offer hope and our personal journey with tinnitus and hyperacusis.

      In the beginning, I clung to positive stories, which did help me look to the future with more confidence. 5 years later I am still here ... (to pay forward the compassion and support someone else offered me in my earliest and darkest days).

      There are several other long term members here who have shared and would be willing to share their positive stories with similar motives.

      Before the cynics begin to dissect this post, I am not NOT advocating for a cure. ( I am an advocate here). I am simply stating that my brain has decided to ignore/not react anymore...x
       
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    7. dougwarby

      dougwarby Member

      Tinnitus Since:
      11/18
      Cause of Tinnitus:
      unknown
      Thank you for your post, it is reassuring to know there is hope, I have only had it in ine ear for just over 3 weeks but it is hard to tolerate
       
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    8. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      Early days for you Doug...

      I'm sorry you have tinnitus...

      Happy to share if it helps x
       
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    9. coffee_girl
      Innocent

      coffee_girl Member Benefactor

      Tinnitus Since:
      All my life, but got worse 2016
      Cause of Tinnitus:
      Noise induced / Concert
      PLEASE please do not let that handful of folks silence you into submission, stories like yours are not only inspiring but also important as it gives hope to many (not to mention those teetering on the edge of suicide). The people who are vehemently against it are always the same people, they are very outspoken but also very few in number (No one takes them seriously any way). Your success story is one of courage and strength; no one can take that from you.
       
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    10. Agrajag364

      Agrajag364 Member Benefactor

      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Unknown
      Didn't you say your tinnitus had actually gone? If you want to see stories of it actually going in the Success Stories section rather than habituation ones maybe put your money where your mouth is and post your own story if your tinnitus really did go.

      Agree OP, any positive story is good for newbies.
       
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    11. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      No, I will continue to encourage where I can. I will never forget the depths of despair from my earlier days with tinnitus. I really appreciated those who were there for me (are still there for me). I know how important support is. I desperately needed hope and reassurance that eventually I would move past my tinnitus, and that I have. It doesn't mean my tinnitus can't worsen one day (hope it doesn't) but for now, my lot with tinnitus and hyperacusis have dramatically improved due to habituation/stem cells. I am grateful for this, but continue to feel rubbish for others who are struggling. (which of course is why we need the ultimate: a cure or at least an intervention that can lessen the distress/volume)

      The debates on here about loudness and habituation are not new.

      I don't want to enter into that. What I do want to offer is an opportunity for those who are having a hard time to read some positive and sincere thoughts on one person's long and rocky road to reaching habituation.

      What does my day look like now with tinnitus?

      . I can sit in a quiet room for hours and read. I can hear my head hissing now, but it isn't bothering me. It is more of an observation that it is there. (Previously, I couldn't do this. I would try to force myself to listen to the noise and within a short time, felt so trapped inside my head that I considered decapitation.)

      . I work as a midwife. My job involves a lot of mental concentration. I need to be focused. I was anything but that in the beginning. Between the severe tinnitus, hyperacusis, and spikes, I couldn't at the time, see myself ever returning back to work. (especially around screaming babies). I have returned to work with tinnitus very much in the distant background. It fluctuates in volume, but my perception and reactions to my tinnitus have shifted, so it no longer interferes with my ability to do my job.

      . I don't mask. Tried it 5 years ago at my onset. I loathed trying to sleep listening to another annoying noise layered over my existing tinnitus. I know many of you don't recommend this, but what really worked for me was learning how to lose my fear and anxiety about hearing the noise. (CBT, mindfulness) I soon learnt I had no control over the volume of my tinnitus, so it was really the only next logical step for me; to alter my reactions. It was either sink or swim. I chose to swim (story of my life).

      . I have a few sounds; hissing, whooshing, white noise pulsating, frequent fleeting 'eeeeeeeee', and an engine noise (engine noise has disappeared). I was experiencing very nasty spikes, but that along with the reactivity of my tinnitus (hyperacusis) has largely improved I suspect because of stem cells (had for joint pain)
      I call it my orchestra. These days, Ill either hear these noises and not be bothered by it, or I simply wont hear it. Id be baffled by others who would say they only heard their t when they talked about it, but now I am one of them, and I get it.

      I never thought my brain was capable of filtering out this %&#* but it has ...
       
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    12. DebInAustralia
      Fine

      DebInAustralia Member Benefactor Advocate

      Location:
      Geelong, Victoria
      Tinnitus Since:
      30/12/13
      Do you know the cause of your tinnitus?
       
    13. jjflyman

      jjflyman Member

      Location:
      Michigan, USA
      Tinnitus Since:
      09/2016
      Cause of Tinnitus:
      noise (Concert)
      If you read his posts, you will realize he (@threefirefour) is mentally unstable.
       
    14. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      He said he can still hear it in a quiet room...
       
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    15. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      Thank you very much for sharing about your habituation @DebInAustralia. Stories like yours are so encouraging to me. I feel like I’m starting to make some good moves in the right direction with habituation myself after nearly 5 months of despair.
      I don’t get the venom on here directed against habituation. I want my life back - there is no cure for tinnitus, if habituation means I get my life back I’ll take it gladly rather than live in misery for 5, 10, 25 years until a cure is found. The people who are so vehemently anti habituation are obviously never going to habituate because their focus is solely on a cure or nothing.
       
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    16. sirhand
      Jaded

      sirhand Member

      Location:
      Bethlehem, PA
      Tinnitus Since:
      4/20/2018 4:30 pm
      Cause of Tinnitus:
      4 hour (apparently too loud) headphone session
      I guess success depends on your goal. My goal ever since the first second of my tinnitus was to hear silence again. I guess I could move the goal posts, but is that really success?
       
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    17. emmalee
      No Mood

      emmalee Member Benefactor

      Tinnitus Since:
      03/2018
      Cause of Tinnitus:
      hearing loss
      Yes, this sums it up beautifully, Deb.

      One thing to keep in mind is this.....When someone tells us that it is impossible, what they mean is that it is impossible for them.....

      On a personal note, I have come a long way in nine months. I have said from the very beginning of this journey that I needed to remain as positive as I possibly could, and I have.

      I will never, ever let anyone make me feel that I should not talk about this and share it all.

      My tinnitus, my story, if you will.
       
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    18. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      I’d love to hear silence again too, we all would. But sometimes you have to accept things have changed and what you dearly want may not be possible. So for someone who has lost a limb, they would love to “regrow” another but it’s just not possible - and you have to accept it and make changes to live the best life you can in a new way. That’s not to say the same for tinnitus though - it is possible for tinnitus to stop so we have much more to be hopeful and positive about! Living a fulfilling and happy life with tinnitus is still a success! Nothing in life is totally perfect
       
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    19. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      All of that is fine - just don't call it a success. As long as the amputee is still missing an arm, he is an amputee and an invalid, he is not a healthy, fully functional person.
       
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    20. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      I’m not sure I agree @Bill Bauer. My brother in law is an amputee and is healthy and fully functioning. It’s a matter of how you look at your “disability” - some people never get over what they’ve lost, others go into to win Olympic records in spite of what they’ve lost.
       
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    21. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Surely he can't carry heavy objects, arm wrestle, work with his hands (e.g., be a sculptor, a brain surgeon, etc) and do other things fully functioning people have an option of doing.
       
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    22. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      No of course, but he wasn’t a brain surgeon before his accident!
       
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    23. Agrajag364

      Agrajag364 Member Benefactor

      Tinnitus Since:
      12/2017
      Cause of Tinnitus:
      Unknown
      Depends on the person. I prefer to read stories of tinnitu actually going or reducing in volume, but if someone says they have come to terms with their tinnitus and feel happy again that's a success for them.
       
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    24. Shelly75

      Shelly75 Member

      Tinnitus Since:
      20/07/2018
      Cause of Tinnitus:
      Noise induced
      He’s lost his leg so he could actually do all of the things you listed
       
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    25. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      Yeah it is. But everyone knows it here and I don't wanna rub it in lot everyone's face.
       
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    26. threefirefour
      Rebellious

      threefirefour Member Benefactor Hall of Fame

      Location:
      California
      Tinnitus Since:
      5/15/16
      Cause of Tinnitus:
      140dB B R U H moment
      With earplugs. Otherwise I can't.
       
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    27. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Newbies who got T as a result of TMJ, might not know what they can do to get the good outcome that you got (and such a long time after the onset too). Your post would benefit them.
       
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    28. AUTHOR
      AUTHOR
      RobertFahey

      RobertFahey Member

      Tinnitus Since:
      2011
      Cause of Tinnitus:
      Maybe sinus infection
      Sirhand, there is no silence. You’ve never experienced it and wouldn’t like it anyway. Google “anechoic chamber” and you’ll see that a truly silent room is extremely, um, disquieting.
       
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    29. Bill Bauer
      No Mood

      Bill Bauer Member Hall of Fame

      Tinnitus Since:
      February, 2017
      Cause of Tinnitus:
      Acoustic Trauma
      Please speak for yourself. I Had experienced it (and continued to experience it in my good ear for the first 9 months after onset). Perhaps extroverts might "not like it anyway." But introverts like me like it so much that we think that it is the only thing that makes life worth living.
       
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    30. Alue
      No Mood

      Alue Member

      Tinnitus Since:
      01/2016
      Cause of Tinnitus:
      Acoustic Trauma
      I don't think you can reasonably expect an unbiased picture on a forum like this.
       
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