Pulsatile Tinnitus

Discussion in 'Support' started by sara, Aug 4, 2015.

tinnitus forum
    1. sara

      sara Member Benefactor

      Tinnitus Since:
      03/2011
      Hello. My name is Sara. I have already posted in the Tinitus part of this forum but really I think I have pulsating of rythmatic tinnitus. It's predominantly in my left ear. I have tinnitus in the right ear. But the left bothers me way more. I went through a horrible time where it was loud and pulsating. I heard whistles , crickets, screeching train , train breaks and heavy machinery. Around July 20-24 my tinnitus was changing minute to minute. I went to sleep on July 24 by taking a malatonin woke up after 4 hours expecting the ringing to be louder than ever but it wasn't so bad. Matter of fact it wasn't bothering me at all. It was almost gone. Well the roaring in my head is always there but that doesn't hurt me. Anyways that day I had to take a reactine as well. I went without crazy annoying tinitus for over a week. It was great. But alowly it crept back. Not as bad. But it's there now. I can hear it. The pulsating or rythmatic tinnitus is there but doesn't bother me as much. Unless I sit and listen to it which I try not to do. I just wonder what could it be ? Could it be because growing up my posture was always terrible or even is until today. Could it be that I was an angry child and that affected it ? Or could it be that some veins are messed up in my head ?! I have no idea. Any thoughts ?!?!

      Also I have to Mention that would excersize it gets worse. Hmmmmmmmm
       
    2. sara

      sara Member Benefactor

      Tinnitus Since:
      03/2011
      Hello does anyone want to come comment please ?!
       
    3. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Sara,

      I'm sorry you're having more than one type of tinnitus. I have pulsatile tinnitus, too, so I have some idea of what you're going through.

      It's hard to say what may have caused your pulsatile, or rhythmic, tinnitus. There are many possible causes, but usually it is caused by something vascular. I doubt it was caused by your posture, unless you have some specific neck or back issues. If you haven't already, you might want to consider going to a doctor to be checked out, just to make sure there are no problems.

      If you do decide to go to a doctor, you could start with an ENT. If the ENT doesn't seem to know what to do about your condition, consider going to a neurologist or neurotologist for a checkup. They may suggest additional testing, if it is warranted. As for myself, the tests I had included Doppler of carotid arteries, CT scan of temporal bone, and MRI and MRA of head and neck area. Most types of pulsatile tinnitus are not dangerous or life-threatening, but PT can be very annoying, so if you can find a cause, it may be very treatable.

      Good luck, and keep us posted on how you're doing.

      Best wishes,
      Karen
       
    4. Paul A
      Tired

      Paul A Member

      Tinnitus Since:
      Aug-15
      Hi Karen
      I'm new to this forum but I have seen you make a number of posts which are very helpful.
      I think I have had PT for a while may be a year I don't know as not been aware of it as it went away all the time. In Aug I had a noise trauma which gave me normal (high pitched and humming) tinnitus in my left ear. Subsequent to this I noticed my PT in my left ear. Had hearing tests which showed moderate high frequency loss in both ears but otherwise normal.
      The big problem for me is sleep. After about 4 weeks I started to get some sleep for a couple of weeks and then i started to not be able to get to sleep. At one point I hadn't slept for 5 days and I was suicidal. I decided how I was going to do it. The reason was that the PT had got worse. Palpitations and whooshing made sleep impossible.
      I went to the doctors and have only slept for the last 5 days on Zoplicone and Mirtazapine.
      Please let me know what strategies you use to sleep. I have tried maskers and none seem to work for me (brown noise, white noise, zen noise). I leave white noise on low volume on my bedside table. I've found I don't get to sleep if it is loud as nothing seems to mask the whooshing. I have appointments for an MRI scan but am realistic in my expectations that nothing will come up that can result in a cure as this seems to be normally the case (my PT is subjective).
      If I could sleep my life would be good but without it I can't see how it can continue once the sleeping pills run out.
      Bless you
      Paul
       
    5. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Paul A,

      Thank you for the kind words, and welcome to Tinnitus Talk!

      I know first-hand how hard it can be to get a good night's sleep, or any sleep, for that matter, when you have pulsatile tinnitus. Your experience is very much like mine was five years ago. I too had an experience that made my mild tinnitus into very loud tinnitus in my right ear. And not long after that, the PT started.

      I was totally distraught at that time, and I remember trying so many things to get a little bit of sleep, none of which worked. I was so desperate, I even tried hypnosis (didn't work!), and other alternative forms of treatment. Nothing worked until, some months later, I read about moringa oliefera, a natural supplement. I tried it, and after taking it for a week or so, I found that it actually helped me settle down and get a little sleep. That was the breakthrough that started my recovery. Today, I still have pulsatile tinnitus, plus a high-pitched hissing/ringing tone, along with some hearing loss in my right ear. But after getting a little bit of sleep, I was able to begin to adjust to this condition, and begin to heal. I learned that keeping busy during the day really helped my T and PT, and I gradually was able to play games, work crossword puzzles, and do other things requiring concentration. Today, I can read novels again, and I'm back at work. Some days are still a struggle, but I don't let it get me down, and try to do something active, such as exercise, to take my mind off my problems.

      Now, I take magnesium chloride tablets about 1 hour before bedtime, and it really helps with relaxation, so that it's possible to drift off to sleep naturally. This did not happen to me overnight, but I just kept working at it until I was able to sleep again. I don't know if these specific supplements will work for you, but the main thing to remember is to find something to relax you, to take your mind off the noises in your head, and to not listen for it (if that's possible!) You have to "train your brain", in other words!

      I hope my experiences will somehow help you find a way to get some sleep again, and to begin living your life more normally again.

      Please do update me on how you're doing!

      Best wishes,
      Karen
       
    6. Paul A
      Tired

      Paul A Member

      Tinnitus Since:
      Aug-15
      Thank you Karen
      That is very helpful. Can you let me know if you use noise masking and what volume you have it at? Do you use white noise etc? I find it hard to mask the PT and have even tried music but this does not work either. Last night I finally managed a little sleep without sleeping tabs (first in 2 1/2 weeks). I have the initial benefits of mirtazapan to make me drousy - no noise to mask the PT. The Mirt is probably very important because my anxiety levels are so high at the moment it hard to relaz let alone nod off - I'm hiper alert to any sound. I also tried a hipnotist and he didn't work for me at all.
      Kind regards
      Paul
       
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Paul A,

      When my PT first started, I tried all types of sound masking, but as you say, nothing really works to mask pulsatile tinnitus. The best masking sounds I've found are water sounds, such as the sound of a waterfall or a stream. I have a sound machine that I used to use at first, but I often found the sound more annoying than masking. Now, I don't use any masking sounds at all. However, at work, I do have a fan under my desk that I turn on if my tinnitus is bothering me. So, I would suggest water sounds or steady background noise, like a fan, to help with masking.

      I'm glad you have the Mirtazepan to help you relax. You should probably continue with that for as long as you need it to help with anxiety and calming.

      Did you say that you have been to a doctor and been checked for any physical problems that could be causing your PT? It's good to be checked just to be sure you don't have any serious issues that need to be corrected.

      Take care, and I hope you are able to get some rest!

      Best wishes,
      Karen
       
    8. Paul A
      Tired

      Paul A Member

      Tinnitus Since:
      Aug-15
      Hi Karen
      Sorry I didn't see your response.
      The pulsatile is such a hard one because it varies alot. One moment it's whooshing and the next is a small heart beat. Difficult to see how one can get used to it but people seem to get by. It is causing a lot of anxiety for me and so sleep is a really big problem right now. I don't notice it really in the day - its only when I lay down that it really gets going.
      I've almost given up on the maskers also as they are even more annoying. I'll keep going with the Mirt - its only been a week now. Seems like magnesium is good to calm it down. Why do you use Magnesium Chloride as opposed to just Magnesium?
      I've had a CT scan and am getting an MRI this weekend. I've had it for quite a while and it came and went and didn't really bother me. Then I had noise trauma and it went into overdrive. I spoke to an ENT specialist about this and he couldn't see how the trauma could have made it change. But it did. I noticed one other person on this forum who also had such an experience.
      Thank you for your kind support.
      Best wishes
      Paul
       
    9. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Paul A

      To answer your question about magnesium chloride, I use it because it is supposed to be more easily absorbed by the body. Also, with magnesium chloride, I don't have any bowel issues. It is very easy to take, with no side effects. I take two tablets per night, right before bedtime, and they really help me with calming and with sleep.

      I can understand how noise trauma could increase your PT. I think that tinnitus and pulsatile tinnitus may be more related than the doctors think, at least in some cases. In my case, I had regular tinnitus for many years (mild), until taking an ototoxic drug. Then, my regular tinnitus became severe, and my pulsatile tinnitus began. Since I've had a lot of tests with nothing found, I feel that the two types of tinnitus are related. Yours may be the same way.

      Take care, I wish you good luck with your MRI. Hope you get some answers soon!
       
    10. Paul A
      Tired

      Paul A Member

      Tinnitus Since:
      Aug-15
      Thank you Karen
      I've tried to start a conversation with @JustAName. She also got her PT through noise.
      I've seen articles which says PT is related with problems with the central nervous system which ENT's don't really deal with. How will anyone really know?
      I also saw you conversation with the person who got PT from Mirt. I've only been on it for a week and am going to taper it down to 7.5mg before coming off. I'm not happy being on meds like most of us.
      Given the similarity of your tinnitus to PT to mine I am impressed you are able to sleep with no maskers or meds. I'd love to know your secret! Was it a long journey? I'm trying classical music tonight. Anything to mask the hum I have.
      Kind regards
      Paul
       
    11. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Paul,

      Yes, it was a long journey to be able to sleep without any background sounds, or meds, either. After my bad experience with blood pressure drugs, I wasn't too keen on taking a prescription sleep aid or anti-anxiety drug for sleep. Also, when my PT first started, I ended up with adrenal fatigue. I think that's because I'm hypothyroid, and the blood pressure drugs did bad things to my endocrine system. It has taken me several years to get over the awful tiredness, yet lack of sleep, that comes with adrenal fatigue, but I did overcome it. I bought a book by James L. Wilson, called "Adrenal Fatigue, the 21st Century Stress Syndrome", and the information in that book helped me slowly get over it.

      So, all this time, I've opted to take natural supplements instead of Xanax, Ambien, Lexapro, etc. although I was given those drugs by well-meaning doctors in the beginning.

      The only thing I can say is that's a slow process of mind over matter. It's been over five years for me, and I have somewhat adapted to the pulsating and hissing/ring, but not totally. Some days and some nights are better than others.

      I will be happy to provide moral support to you on your journey, and I hope your tests go well!
       

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