Pulsatile Tinnitus

Discussion in 'Support' started by Lhora, Apr 2, 2014.

tinnitus forum
    1. Lhora

      Lhora Member

      Location:
      Jeddah, Saudi Arabia
      Tinnitus Since:
      8/2013
      Hi! Im lhora , 26 years old.. I've been experiencing this whoosing sound in my right ear for 8 months up to present. .. I went for ent check up and my doctor told me to do ct mastoid , carotid ultrasound and mri. All results was normal.. I checked my hemoglobin which is within normal level.. My ent doctor advised me to remove my braces to release the tension because he is suspecting that this may be the cause my tinnitus.. I told my dentist about my condition and gave me an appliance and planning to put an expander in my upper and lower jaw or teeth... I don't know now what to do now or do i have to consult another specialist for my case?... Thnx!
       
    2. billy43
      Lucky

      billy43 Member

      Location:
      nj usa
      Tinnitus Since:
      9/28/13
      hi Lhora.is the whooshing in sync with your heartbeep?
       
    3. Lhora

      Lhora Member

      Location:
      Jeddah, Saudi Arabia
      Tinnitus Since:
      8/2013
      Yes.. And when i press my neck, it will disappear..
       
    4. Lhora

      Lhora Member

      Location:
      Jeddah, Saudi Arabia
      Tinnitus Since:
      8/2013
      My doctor said what i heard is a venous hum...
       
    5. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Lhora,

      I have pulsatile tinnitus, too, and have had the same tests you've had, and all came out normal. So, where do you go from here?

      Well, first of all, it is possible that your pulsating has something to do with your jaw alignment. You could wait and see how you do without the braces, and after your dentist puts in the expander. Then, if after those changes, you are still having the pulsating tinnitus, you might want to seek out a specialist for further testing. You could make an appointment with either a neurotologist or a neurologist.

      I did not know until after my MRI and MRA (arteries) that they can also do an MRV (veins), so that is one test you could consider. Another test that the doctor might order would be a CTA (CT scan with contrast dye). Some people go on to have an angiogram, which is considered the "gold standard" of tests for pulsatile tinnitus. There is, however, some mild risk of stroke involved in this test, so your doctor wouldn't recommend it unless he felt it would be helpful in diagnosing your condition.

      Also, you might want to check out Whooshers.com. It is a website for people like us, who have pulsatile tinnitus. There are stories of cured whooshers, information you can give to your doctor, etc. There is also a Whooshers.com Facebook group you can join to learn more about what other whooshers are experiencing. There are stories of people who have been cured after they went to various doctors for further testing.

      We're glad you've joined us here at Tinnitus Talk, and hope you'll update us after your dental procedures.

      Best wishes,
      Karen
       
      • Like Like x 1
    6. RyanJayDayv

      RyanJayDayv Member

      Location:
      Britain
      Tinnitus Since:
      07/20/15
      Cause of Tinnitus:
      I don't know
      Hey, I also had pulsatile tinnitus for about a week in which it then went away. I'm not sure how I got rid of it, but it's now gone and it will be the same for you. If you do have pulsatile tinnitus then one of the causes could be that the blood vessels on your ear aren't getting the blood flow that they need, thus causing pulsatile beats. What could cure this is if you get your blood thinned, thus giving blood flow back through your ear which would then stop your pulsatile tinnitus. Hope you're okay and I'm here if you need any further support. Peace.
       
    7. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hey ryanjaydayv, did you have this done and it stop your tinnitus, my names is Ron.i also have pulsating and wooshing sound , or what did you do I had open heart surgery 16 months ago and doing well tills this started with I believe sinus infection in ears I think .
       
    8. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Ron Robles

      I'm so sorry you've found yourself with pulsatile tinnitus. There are many causes, so what works for one person may not work for another. The fact that yours started after open heart surgery may be a clue to what could have caused yours. Also, are there any new drugs that you started taking after the surgery? It's possible that one of them could have caused the pulsating and whooshing to begin.

      It might be good to check with your doctor about the pulsating, and also to see if you might still have some ear infection.

      There are tests that you can take that can help to determine a cause for the pulsating, so if it doesn't go away, you might want to check with a neurologist or neurotologist to see if they might have suggestions for diagnostic testing.

      Take care, and I hope you are able to get some answers.

      Best wishes,
      Karen
       
    9. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi @Karen, what test do you suggest I have my doctor do ? Do you have the same problem like I said it's been 17 months and started sept 4 , 2015 only med that would cause tinnitus is metoprolol I take 25 mg a day and he won't change you know how they are they say that's not it , but don't you think he should work with me on this .

      They did that test on my neck arteries and he said very little plaque not enough to cause my pulsating tinnitus , very common he said with patients after opened heart surgery to have some plaque but he assured me no problem there I really believe it's the metoprolol I take since it is one of the side effects.
       
    10. If you have talked to your surgeon about it, I think karen is right to suggest a neurotologist.
       
    11. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @Ron Robles,

      Very interesting that you're taking metropolol! My pulsatile tinnitus started right after starting blood pressure drugs, too. The doctors insisted that it couldn't be caused by them, but I still believe (after 5 years of this) that is was the drug. I was first on an ACE inhibitor (Lisinopril), and then my doctor switched me to propranolol, and then Toprol XL (the same thing as metropolol). I've had an MRI/MRA with contrast, a CT scan, and Doppler of the carotid arteries. All tests were negative. I think the blood pressure drugs do something to change our veins or arteries, that could have brought on the pulsating tinnitus.

      I am no longer on blood pressure meds, but I still have the PT. However, after 5 years of this, I have habituated to it about as much as I am able to, and I can live my life pretty normally again. I wish the same for you!!

      Do you have any other symptoms? How has the metropolol affected you, other than the PT?
       
    12. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi karen, well today my doctor took me off metoprolol, and ask me just to watch my blood pressure which has been anywhere from 112,117,118,120 over 80,75,76, , and just let him know how it is going . I hope my tininites will change . So let's see what happens , do you get headaches from your tinnitus.
       
    13. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Ron Robles

      I'm glad your doctor is taking you off the metropolol, since your blood pressure seems to be in the normal range. I had to taper off the Toprol XL very gradually, and it took me about a month to get totally off it. After that, I had some withdrawal side effects. I hope your withdrawal from it goes well.

      No, I don't have any headaches from my tinnitus now. However, I think I do remember having a few headaches back five years ago when this started.

      Please update me as you're going through the withdrawal from the metropolol. I'd like to know how you're doing.
       
    14. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi karen , just a update still fighting with doc , now he told me to get off baby aspirin for 6 weeks to see what happens then if no change get back on them then 6 weeks off metropolo to see what's up .my tininites is paulsating and sometimes changes noise , I don't believe he is really interested enough in . Neurologist wants mri and ct all that done but my insurance wants 700.00 dollars up front because my deductible is not up there yet to crazy , have you heard of paulsating tinnitus going away or something that help it .
       
    15. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Ron,

      Thanks for the update. Well, I have heard of a very few cases where the pulsating goes away, but for most, it doesn't, unless a cause can be found. If there is a specific cause, sometimes surgery is successful in stopping the pulsating.

      In my case, I stopped taking the blood pressure drugs, but my PT didn't go away. However, it has gotten somewhat better. I now take a natural supplement called Carditone (available online) in place of blood pressure drugs. That has helped control my blood pressure, which results in keeping the pulsating a bit lower.

      Some things that may help the pulsating (it depends on the individual case, however) would be watching your diet, limiting caffeine and salt, exercise, and controlling your blood pressure. I tried acupuncture, craniosacral therapy, reiki, etc., but they didn't help. Instead, watching my diet, exercise, staying calm, and keeping my blood pressure lower have helped the most.

      Good luck, and please keep us posted on how you're doing.

      Best wishes,
      Karen
       
    16. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi Karen, been a while but nothing has changed, been off baby aspirin for three weeks now to see if that did it but no change it is loud today any ideas how to lower it please
       
    17. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Ron Robles ,

      I'm sorry that nothing has changed for you regarding the pulsating. The best suggestions I can offer are to watch your diet, get enough sleep, keep your blood pressure as low as possible, and exercise (unless that causes any problems with your PT getting louder).

      As for me, I take a supplement called Carditone that is supposed to control blood pressure. That seems to help me, and I also take magnesium chloride tablets each night, about an hour before bedtime. Aside from that, I don't know of anything else.

      It's kind of a day-to-day struggle for me. Mine is always calmest in the morning, and builds up during the day. It's at its worst right now (late afternoon), then seems to calm down after dinner time.

      If you can identify a pattern for your PT, it will help you cope with it a little better.

      Best of luck, and thanks for the update!

      Karen
       
    18. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi Karen, my t is real loud right now , what do you think will actually lower it it is 3 18 pm here in tucson arizona , rainy and cold don't know if that spikes it up. Is there nothing else that helps you.
       
    19. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Ron,

      I think changes in barometric pressure do affect tinnitus, and I'm sorry you're having a spike right now. I don't know of anything else, other than what I've already suggested. Have you tried taking magnesium? It is calming, and it seems to help keep my tinnitus on an even keel.

      Another calming supplement I've tried that works pretty well is moringa oliefera. Both of these supplements are subtle,and take a little time to work. You might have to take them for a couple weeks to notice a real difference, but I do believe they help.

      Also, I take NAC (N-acetylcistene) every day, and I think it helps, too. It is also a natural supplement that you can buy online, or at health food stores.

      You could experiment, and see if any of these supplements work for. But --- please be sure to give them a little time to work --- take each one for at least two weeks.

      Good luck, and I hope that your spike begins to subside soon!

      Karen
       

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