Pulsating Still Heard...

Discussion in 'Support' started by kelsey, Aug 12, 2016.

tinnitus forum
    1. kelsey

      kelsey Member

      Tinnitus Since:
      5 months ago
      Cause of Tinnitus:
      Not Sure...Pain under jaw by ear
      Its going on 6 months now.....It went away for like 2 weeks this last month it was great....my anxiety went down when it went away.... I had seen an ENT and told him about it he mentioned anersyms but never gave me an CT angiogram or anything...referred me to a neuroseurgeon....When it hums is pulsates with my heart beat...my ear really hurts with pressure and my jaw hurts as well....I have neck pain as well and possibly cervical instability.....Im so scared something bad is going to happen from this....No doctor has said anything was wrong with me...Ive had a brain MRI and CT of neck and nothing....Only thing that was noted was long styloids....and I know that is what is causing my pain so why the humming in this ear???!!! It vibrates my brain as well...I need reassurance I'm not going to die from this as I'm terrified beyond belief....Its hard to describe the sound but a VERY LOUD HUMMING ENGINE in the background...and when my heart beat it fluctuates the sound....god this can't be good :'( When the pain in my ear and jaw (styloid) gets back the sound gets worse....I noticed more at night too....Oh I do have regular tininnitus for years.....the shhhhhhhhhhhh sound.....this over rides it......God when will a doctor help me!! :( no one is taking this serious here in Canada....
       
    2. volsung37

      volsung37 Member Benefactor

      Tinnitus Since:
      2014
      You may have a middle or inner ear infection. These can take many months to clear up. I had PT last year which took 8 months to clear.
       
    3. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @kelsey,

      I agree with Volsung37, that it's possible you have an ear infection. Has a doctor checked you for that, to be sure your ears are clear?

      Another possibility: You could have a jaw-related problem. For that, you could try going to a dentist or TMJ specialist to be checked out. Do you have a good dentist that you trust? If not, perhaps find one that specializes in jaw issues.

      Please don't worry, and do let us know what you find out. I hope you are able to get some answers soon!

      Best wishes,
      Karen
       
    4. kelsey

      kelsey Member

      Tinnitus Since:
      5 months ago
      Cause of Tinnitus:
      Not Sure...Pain under jaw by ear
      Ive been too believe it or not 6 ENT in the las 2 years and 2 of them checked my ears in the last 4 months....nothing...no infection whatsoever....I wish it was....I think it has too do with my jaw and neck issues...problem is no one thinks I have an issue but me LOL..... Severe ear and jaw pain in an issue....Have you guys heard of eagles syndrome? Well its super rare condition and I have it....Styloid under the ear and base of skull is too long...needs to come out...No doctor around here even thinks it exists...exept one surgeon who took the other side out 6 months ago....well he doesn't want to take the other side out because he thinks its normal size which it is far from normal....especially when it causes severe pain and pressure...grrrr medical doctors....It I was rich I wouldn't be having this issue...
       
      • Like Like x 1
    5. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Wow! Kelsey, I'm so sorry you're having this problem. Maybe you need to send your scans out to another doctor to look at them.

      On Whooshers.com,they have several recommendations. If you need some names of doctors in the U.S., I can provide them. Don't know about the doctors in Canada.

      Karen
       
    6. Ron Robles
      Insomnious

      Ron Robles Member

      Location:
      Tucson arizona
      Tinnitus Since:
      Sept 4 2015
      Cause of Tinnitus:
      Not sure
      Hi karen it's Ron how are you doing today, do you ever go swimming with your tinnitus and how do you with it , does it get worse?
       
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Ron,

      No, swimming doesn't make my tinnitus any worse. How about you?
       
    8. kelsey

      kelsey Member

      Tinnitus Since:
      5 months ago
      Cause of Tinnitus:
      Not Sure...Pain under jaw by ear
      I went on Whooshes.com and noticed my sound in my ear is nothing like everyones I listened too...Theres sound more like a WOOSHING sound....Mine is like a LOUD ENGINE running in the background but in my left ear and it does fluctuate when my heart beats....What can this be a sign of.?? I see a Neurosurgeon in 4 weeks....what should I ask too get done??
       
    9. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Kelsey,

      There are so many possible causes of pulsatile tinnitus that it would be hard to say. Since you mentioned pain under your jaw, it might be a good idea to have your jaw checked to see if it is TMJ-related.

      My pulsating doesn't sound like a whoosh either; mine sounds like a drumbeat. I've had it for over 6 years now, and have had a lot of tests without finding a cause. However, in my case, it started after taking a blood pressure drug, so mine may be related to that.

      I'm glad you're going to see a neurosurgeon in a few weeks. Perhaps he can suggest some tests to see what the cause might be. I've had a CT scan of the temporal bone, an MRI and MRA, with and without contrast, and a Doppler of the carotid arteries. Your tests would depend on what the doctor thinks might be causing it.

      If you don't find any answers from him, you could try going to a TMJ specialist or dental surgeon to see if it relates to your jaw.

      Please do let us know what the neurosurgeon has to say. I wish you success in finding a possible cause!

      Best wishes,
      Karen
       

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