Should I Be Worried? Pulsatile Tinnitus Started in One Ear, and Is Now in Both

Discussion in 'Support' started by Qwerty, Aug 26, 2015.

    1. Qwerty
      Curious

      Qwerty Member

      Tinnitus Since:
      10/2013
      Hi, I have had PT diagnosed in my right ear for nearly two years. Two months ago it started even louder in my left ear. It now prevents me from sleeping properly which is effecting my husbands sleep too. Should I assume that it is also PT? Getting very frustrated and low, I can even hear and feel it whilst watching the TV as it is now a off centre whooshing in stereo in my head! I had the Doppler scan on my artery for my left ear and camera up my nose and down my throat. Also I had an MRI before my diagnosis for my left ears PT. Has anyone else had PT start in one ear and the occur in the other at a later date? many thanks - Leah
       
    2. SoulStation
      No Mood

      SoulStation Member Ambassador

      Location:
      New York
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      Noise / Possible Medication
    3. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Qwerty,

      I don't have that situation myself (my PT is only in my right ear), but, yes, I have heard of other people whose pulsatile tinnitus started in one ear, and then later began in the other.

      Did your doctor give you any sort of diagnosis as to what might have caused your PT? Are you scheduled to go back for any additional testing? Have you considered going to another doctor for a second opinion, or sending a copy of your scans to another doctor for evaluation?

      I hope you have a peaceful evening, and that you're able to get some sleep. I've been taking magnesium chloride tablets at night about an hour before bedtime, which are calming and help me get to sleep naturally.

      Take care, and I'd like to hear more about your condition.

      Best wishes,
      Karen
       
    4. Qwerty
      Curious

      Qwerty Member

      Tinnitus Since:
      10/2013
      Hi Karen

      After reading back my previous message I have noticed a mistake. I have had no testing on my left ear. All those tests were done over too years ago for my right ear. I was never given a reason for the PT. I have made an appointment at my Doctors for next Tuesday for my left ear. I'll keep you posted.

      Does your PT appear worse when you are stressed or anxious?

      Many thanks

      Leah
       
    5. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, again, Leah,

      Thanks for the update, and I'm so glad you've made a doctor appointment to have your left ear checked out. Maybe he will order some testing for you. I'll be interested to hear what he has to say.

      Yes, my PT does appear worse when I'm under stress or anxious. When I get really stressed, sometimes it feels like my whole head is pulsing. Then, when I calm down again, it goes back to baseline.

      Good luck, and please do update us next week after your doctor visit.

      Best wishes,
      Karen
       
      • Agree Agree x 1
    6. ruben ruiz

      ruben ruiz Member

      Location:
      Tucson, AZ
      Tinnitus Since:
      2012
      Cause of Tinnitus:
      I believe it was meds and stress
      Do you take meds? My theory is when the meds wear off the pulsing starts. Does true Pulsatile T mean there is a chance for an underling cure? Im not sure.
       
      • Genius Genius x 1
    7. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, Ruben,

      No, I don't take any meds except Synthroid, for underactive thyroid, and I'm afraid I'll be taking that for the rest of my life. However, I do think your theory may be correct, because my pulsating started right after I took a blood pressure drug for the first time, then tried to get myself off it because of the horrible side effects.

      I'm told that there is an 80% chance that most people can be cured of pulsatile tinnitus, but I'm not convinced it is true of everyone. However, for many, pulsatile tinnitus is very curable once the cause is found.
       
    8. Mike Lee

      Mike Lee Member

      Tinnitus Since:
      09/2014
      Mine started in right, then both, now back to right
      I can stop it for a couple days if I am good
      NO alcohol
      I can control it if no stress or lifting ice, massage, relaxation
      I'm lucky I can sleep on one side with just the right pillow
      Test different positions, types of pillows
       
    9. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      @Mike Lee,

      It's good that you are able to sleep. For me, it helps to sleep on two pillows, at least. Propping the head up seems to help.
       
    10. Joan A.
      No Mood

      Joan A. Member

      Tinnitus Since:
      2000/ spike 2006/ massive 2009
      Cause of Tinnitus:
      unknow
      Interisting thread. Recently (1 years) i've developed another tinnitus on the left side that sometimes is pulsatile if i'm orthostatic.... if i lay supine it became louder, not pulsatile and in the whole head. Awful. MRI and others clinical examinations dosn't show anything of abnormal. Currently on TCAs + clonazepam. All the doctors told me that all depending by a tensive/depressive/anxiety status...

      it is a mistery for me...

      p.s. Avoid the trt brain retraining therapy
       
    11. Engie
      Depressed

      Engie Member

      Tinnitus Since:
      10/1013 tinnitus; 2/2016 PT
      Cause of Tinnitus:
      cafergot
      Why should I avoid the trt brain retraining therapy?
       
    12. Lola in Ohio

      Lola in Ohio Member

      Location:
      USA
      Tinnitus Since:
      Jan 2015
      Cause of Tinnitus:
      unknown
      Hi there. I have pulsatile Tinnitus in both ears. I use the neuronomics 'sound retraining therapy' as a way to cope with the distraction. It's not a cure but it's an aid I can get relief from. Sometimes my tinnitus is so strong I can feel the vibration inside my head. I've had MRIs and a cerebral angiogram. Aside from severe tortuiosity found in my cerebral vertebral arteries nothing vascular was found. My next step is to be tested for intercranial hypertension. Has anyone been tested or treated for that?
       
    13. Jamclem
      Fine

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      @Karen Hi Karen, just out of curiosity because you also have PT in just one ear. Do you have mild hyperacusis now and then in the same ear? (my H seems to be aggrivated more by vibrations than sounds i.e of a sitting in a train carriage with a diesel engine or a the vibrations of a bus stationary but engine on.

      Hope you are well :)

      James
       
    14. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @Jamclem,

      I have both pulsatile tinnitus and a high-pitched regular tinnitus in my right ear. I'm not sure I have hyperacusis, but I do have trouble listening to certain sounds/vibrations, such as the TV set, for long periods of time.

      Is that similar to what you have?
       
    15. Jamclem
      Fine

      Jamclem Member

      Location:
      Switzerland
      Tinnitus Since:
      02/2015
      Cause of Tinnitus:
      Flying then Sport (Probs)
      @Karen

      Yes I think your symptons are similar. I do have PT and T aswell.My PT always stays in the right ear and I suspect my T (a dullish sound drifts to my left/centre when I sleep on the left said of my head. I think it is all been generated in the right ear only though.

      Have a nice evening :)
       
      • Like Like x 1
    16. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Thank you, @Jamclem, and I hope you have a good evening, too!

      Please stay in touch; it sounds like we have a very similar condition.
       
    17. ARC

      ARC Member

      Location:
      France
      Tinnitus Since:
      04/2013
      Cause of Tinnitus:
      Venous Stenosis
      @Lola in Ohio

      Hi,

      I've been experiencing pulsatile tinnitus in both ears since 2013 intermittently in "crisis" lasting weeks to a couple of months. I'm also suspected to have intracranial hypertension. My first MRI showed absolutely nothing, while a more specialized second MRI that produced images of the cerebral veins showed bilateral transverse sinuses stenosis (large veins). Apparently, there is a chicken-egg kind of relationship between venous stenosis and intracranial hypertension. However, so far I haven't done any test to confirm the hypertension, typically tested through lumbar puncture.
       
    18. Karen
      Talkative

      Karen Manager Staff Benefactor Hall of Fame Ambassador

      Location:
      U.S.
      Tinnitus Since:
      05/2010
      Cause of Tinnitus:
      First time: Noise 2nd Time: Ototoxic drug
      Hi, @ARC

      Are you going to consider a lumbar puncture if it continues, to see if you might have the intracranial hypertension? If you find out that you do have it, there are drugs to keep it under control. I'll be interested to hear what the outcome is.
       
    19. ARC

      ARC Member

      Location:
      France
      Tinnitus Since:
      04/2013
      Cause of Tinnitus:
      Venous Stenosis
      Hi,

      for the moment I've decided not to have the lumbar puncture but to take act by controlling better the factors that can influence on intracranial hypertension(weight, cervical vertebrae alignment ,etc) . In any case the link between the latter and venous stenosis if almost sure, but in my case I believe it is mild since I have rarely headaches as usually reported in high IH. I also have a lot of variation in my tinnitus with neck movement suggesting possibly that if I improve this aspect I'll have a better outflow of my cerebro-spinal fluid.
       
    20. Tommi_boi
      Relaxed

      Tommi_boi Member

      Tinnitus Since:
      01/04/2013
      Cause of Tinnitus:
      Noise Induced
      I think I've had em all ( normal tinnitus, pulsatile , sentive hearing ) but if there is one thing I learnt from all this , just don't think about it and get on with your life. It only gets better ( well most of the time) with time whether you have to habituate or not .

      I have begun to regard T as my little friend in life now lol, how sad is that .
       

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