Smart Meter

Discussion in 'Support' started by whale, Aug 6, 2016.

tinnitus forum
    1. whale
      No Mood

      whale Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      04/25/2016
      Cause of Tinnitus:
      Myofascial crap Bruxism, a jackhammer, stress who knows
      When I first got T, H and vertigo I had just moved into my new home. Someone had suggested I remove my smart meter from the power company company. I had googled something about that so I pulled the trigger.

      Well, I got my smart meter removed it and had no effect on any of my systems. I did get diagnosed with TMJ and sleep apnea as well as anxiety issues so those seem most likely at this point since my hearing is good.

      Troubleshooting the root of my T is one of the most expense endeavors I have taken. its crazy since most say, it's not until you give up and relax can we heal.
       
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    2. PaulBe

      PaulBe Member Benefactor

      Location:
      Cairns
      Tinnitus Since:
      11/2013
      Cause of Tinnitus:
      Probably sound, though never proven
      But we don't heal. We rarely know a cause, thus we never know our likelihood of recovery vs progression, and we never know what puts us in danger of worsening and what doesn't. We are always guessing, and reacting to fears that can't be validated. So many threads on this forum are rooted in fear of the unknown (and so far unknowable).
       
    3. The Red Viper
      Angry

      The Red Viper Member Team Research

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Leftover infection ETD + neck muscle injury
      I wouldn't mind not healing at this moment in time. What I really want is a giant scanning machine capable of pointing out the exact problem. Then we wouldn't be on these wild goose chases.
       
    4. Marlino
      Cowboy

      Marlino Member Team Research

      Location:
      Germany
      Tinnitus Since:
      02/2016
      Cause of Tinnitus:
      unknown
      To be honest when it comes to T we are no more than starving stone age people dancing around in a circle to appeal to god of rain to have mercy.
      The give up to heal thesis I can confirm for mild T. For severe T I don't know yet.
       
    5. GregCA
      Frustrated

      GregCA Member

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      This is one of the most frustrating things for me. As an engineer, I'm used to "go down a debugging path" whenever I have to chase a bug. It's sometimes more of an art than a science, but there's at least some path of execution to follow to try to narrow it down and finally catch it (hopefully, but not always).
      With T, it seems nobody knows how to even begin to drive a debugging effort. Before we know what therapy may work, we need to know what's broken! Why would I want to spend time (months if not years) and $$ on sound therapy (ACRN, Neuromonics, etc) if my T is not due to maladive neural reconfiguration?

      In my case, because I suffer from otosclerosis (which may still be in an active phase) my neurologist thinks that there is a chance my T comes from the irritation that the hair cells endure from the enzymes released by the bone remodeling process. Fair guess, but then I need to wait for 6 months of Fluoride treatment to see if it made a difference, but I could be blowing a window of opportunity for another treatment.

      But I always wonder: isn't there a way to confirm or at least get slightly more confident in the root cause, even if it means going to see a top-of-the-line-T-guru (let's say there's only a handful of them around the world), that'll take the debugging effort and tell me "do this test", "ok we got that result so it shows X, now do this other test" etc... so we can narrow down what we think it is (even knowing with reasonable confidence what it's NOT is very very valuable information)? That's someone who is well versed in alternative/experimental treatments too.

      Right now we're shooting in the dark, and with each bullet taking 6 months to see if anything "sticks" it makes for an awfully poor debugging process.
      What does the totem pole of T debuggers look like?
       
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    6. The Red Viper
      Angry

      The Red Viper Member Team Research

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Leftover infection ETD + neck muscle injury
      I think the problem is the lack of sufficient resolution in medical diagnostics. Even a magnetic resonance angiogram using contrast won't show every blood vessel. Therefore for someone with pulsatile T (which in my opinion is far easier to cure at this time so long as the abnormal blood vessel is identified) is told "your blood vessels look fine." Clearly there's a mismatch.

      A standard MRI barely shows the cochlea. All the doctors say is "your cochlea looks pretty good." Don't even get me started on what is considered "normal." The only way for medical diagnostics to really help someone with a mystery illness is if the whole gamut of tests is run every six months in a person's life to establish a baseline of what this individual person is normally like.

      I understand your frustrated perspective as an engineer. In medicine, the mechanism seems to be the last thing on people's mind. That happens in engineering too I might add (think of the Wright brothers); however, shortly thereafter everyone in the field tries to pinpoint the exact mechanism for the observed phenomena. Imagine the engineers who designed the 747 said "I don't really know how this thing flies but it flies well most of the time so we'll go with it." They would be considered crazy and a danger to the public. Well this is exactly what's going on with many drugs, especially drugs that purport to work on the nervous system. Amazingly, scientists still don't know exactly how acetaminophen (Tylenol) works!
       
    7. GregCA
      Frustrated

      GregCA Member

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      Yes this is indeed one of the reasons why our debugging efforts are limited, but I claim there's other avenues we could explore even with current technologies.
      Case in point: to know if your T is generated by the brain vs the cochlea: we do have a way to measure brain wave activity on the information superhighway path out of the cochlea. We could see if there's any bogus signal coming out of the cochlea, or not. I believe we do have the technology to do this (I've seen T researchers use this tool).

      That in itself would be very valuable to me for example, and to many others. What's the point in delivering a numbing agent to the cochlea (say lidocaine), if that's not where T is generated? I don't need neuromodulation if my brain mapping is fine and T isn't generated there. Etc...
       
    8. The Red Viper
      Angry

      The Red Viper Member Team Research

      Location:
      US
      Tinnitus Since:
      March 15, 2016
      Cause of Tinnitus:
      Current Theory: Leftover infection ETD + neck muscle injury
    9. linearb
      Psychedelic

      linearb Member Hall of Fame

      Location:
      East Coast USA
      Tinnitus Since:
      1998
      a relatively recent imaging study in animals demonstrated that following an acoustic trauma, the input from the auditory nerve to the DCN suffered signal loss, but the output from the DCN to the auditory cortex did not. So, that seems pretty indicative that the current prevailing wisdom of tinnitus being an artifact of auditory gain in the DCN, is on the right track.
      "The Neural Bases and Neuroengineering of...
       
    10. GregCA
      Frustrated

      GregCA Member

      Tinnitus Since:
      03/2016
      Cause of Tinnitus:
      Otosclerosis
      That's a good path to go down for this specific type of root causes, but T is a symptom that can stem from many different causes.
      In my case, for example, it's not an acoustic trauma, and I don't know where "the problem lies". I don't even know what tests to do to narrow it down. Apparently nobody does.
       
    11. Vicki from NZ
      Depressed

      Vicki from NZ Member

      Tinnitus Since:
      01/2012
      Cause of Tinnitus:
      I believe smart meter
      Whale, my tinnitus started within 12 months of getting a smart meter. Unfortunately I didn't know it had been installed. Went & saw an ENT - nothing wrong, just told to deal with (he wasn't at all empathetic, in fact he was a real arsehole). Sometimes I didn't notice it at all but that was always when I was somewhere else and for quite a long time I didn't realise I wasn't aware of what wasn't there. I didn't discover I had a smart meter for about 4 years by which time I was nearly going insane with the constant screeching. Tried to get it removed but the power company would only remove the communications chip. Didn't help. Then went to audiologist who specialises in tinnitus and he introduced me to sound therapy (listening to nature sounds minimum 6 hours/day or night). I think it was finally starting to improve things - I'm sure about 6 months ago it was somewhat improved. Then I had to relocate about 2 months ago to a house with a smart meter and it flared up to a whole new level of hell overnight. And now I have to live with that 24/7 and I am convinced it's because of the smart meter (and all the other EMFs around us). Been diagnosed with severe electromagnetic hypersensitivity so makes sense that emfs would affect me. Problem is, once you get tinnitus, especially if it's caused or aggravated by smart meters, does it ever go away? Does anyone know or have experience or an opinion about this? It just seems so wrong that we have to pay our power companies to poison us with their toxic wares in order for us to have electricity
       
    12. valeri

      valeri Member Benefactor Team Awareness

      Location:
      Australia
      Tinnitus Since:
      09/2011
      I know another person in Melbourne who claimed his t was caused by smart meter.
      He was thinking of moving to the country away from EMR.
      He also had his house "shielded" but I don't know many details.
      Haven't heard from him in a long time so not sure if it helped.
       

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