Swedish Research Study! Sign Up Fellow Swedes!

Discussion in 'Research News' started by SwedishSImon, Jan 15, 2016.

tinnitus forum
    1. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007
      Hi!

      Karolinska Institutet in Stockholm is conducting a study and needs people with tinnitus to apply for it. So far 662 people have signed up. I did so just now.

      Here's the page: http://stop.ki.se/

      Have a good weekend amigos!
       
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    2. Atlantis

      Atlantis Member

      Tinnitus Since:
      02/2014
      Can you translate for us? What are they studying? How are they studying? What are the trial participants subjected to?
       
    3. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007
      Yes of course, here's a pretty decent google translate of the Swedish description:

      STOP - Swedish Tinnitus Outreach Project is a study conducted at Karolinska Institutet about tinnitus. STOP is the largest tinnitus study carried out in Sweden. The goal is to collect new information about tinnitus that can help us to understand the causes of tinnitus, its mechanisms and to improve the diagnostics of more effective treatments. We would like to inform decision-makers about the need to improve tinnitus care in Sweden and provide recommendations and guidelines for tinnitus treatment.

      STOP investigate the prevalence of tinnitus in Sweden, its causes and possible genetic origin. To participate in STOP means that you will respond to questions in a questionnaire. Depending on the different responses in the questionnaire, a number of individuals with and without tinnitus will be selected for a visit to a STOP center to provide a saliva sample, various ear measurements and evaluation of possible tinnitus with a new and simple diagnostic method.

      Whether you have tinnitus or not, will your participation to help prevent tinnitus and better care for tinnitus patients.​


      This seems to be a well organized study, conducted by one of the most prestigious medical institutes in Sweden (I would say THE most prestigious). In classic Swedish manner it will take time and as with all science, the outcome will be discussed back and forth. But it's a great initiative; for us tinnitus sufferers to get some answers and for the society to raise awareness about tinnitus.

      Stay classy, wear your earplugs.
      Simon
       
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    4. RaZaH
      Barefooter

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I am kind of pissed at Karolinska for not stopping Antinitus for using their name . :p
       
    5. ady

      ady Member

      Antinitus is also using veterans in their marketing fiction, they spammed my e-mail address earlier

       
    6. RaZaH
      Barefooter

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Hope they burn in hell :p
       
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    7. Sailboardman
      Frustrated

      Sailboardman Member Benefactor

      Location:
      Florida
      Tinnitus Since:
      04/21/2014
      Cause of Tinnitus:
      Sensorineural hearing loss right ear.
      @RaZaH,

      Hell would be to comfortable, for those scumbags! There has to be something worse than Hell? Oh yeah, what am I thinking......give them all tinnitus! }:)
       
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    8. Aussie Lea
      Dramaqueen

      Aussie Lea Member

      Location:
      Melbourne Yarra Valley
      Tinnitus Since:
      01/09/2013
      Am I the only one or does this study sound akin to something that should have been done 10-20 years ago?
       
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    9. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007
      Yeah I get that but Karolinska is a really good institute and I have hope this could lead to something!
       
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    10. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007

      I know, feels like this is the kind of research that could find something really useful. Or they won't find jack shit, time will tell
       
    11. kristinsj

      kristinsj Member

      Location:
      Bodø, Norway
      Tinnitus Since:
      08/2014
      Cause of Tinnitus:
      No known reason
      i signed up yesterday, but all information in the email you receive is in swedish... might be nice to know before signing up. good for us scandinavians anyway....
       
    12. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      Well, the whole site is in Swedish, so at least I wouldn't expect English information coming in emails :)
       
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    13. starlite
      Amazed

      starlite Member

      Location:
      Sweden
      Tinnitus Since:
      2006
      Cause of Tinnitus:
      Work
      Well this is just a study, Nothing else.
      Like filling a form if you have tinnitus or not, I wass hoping for a drug or something.
       
    14. Samir
      Curious

      Samir Member

      Location:
      Sweden
      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Accoustic Shock
      I found out about this study today by reading an article in Dagens Hälsa. I have just signed up! I don't know exactly what to expect but anything that can help push tinnitus research forward is very much welcome.

      As of 5 October 2016, the tinnitus group consists of 2530 individuals, and the control group consists of 2529.

      For how long will this study go on? For how long will they keep the registration open? When can we expect to see the first results?
       
    15. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007
      Hey Samir,

      I dont really know how much longer the registration will be open, but I believe that they'll keep it open for some time, since more applications lead to more reliable science results!

      I registered last year in January, and since I completed the survey I havent heard from them.
      Anyone here have heard anything from KI?
       
    16. Samir
      Curious

      Samir Member

      Location:
      Sweden
      Tinnitus Since:
      12/2016
      Cause of Tinnitus:
      Accoustic Shock
      Hi Simon!

      I have forwarded these questions to KI. I will report back when I get a reply.

      Frankly, it's a good thing that they have kept it open thus far. It has allowed me to register myself. Hopefully, even more people will get registered.

      It's true that more data usually gives better measurements. So the more people they can recruit for the study, the results will be that much more accurate. But the recruitment seems to go slow.

      May I ask how you learned about this study?

      I suspect that the audiologists and ENT specialists who know about this study and who can refer people to it are in a minority. The physicians, audiologists and specialists who have the first contact with patients should know more about such studies and current state of research.

      You mention you registered in January. When did you get the survey?

      I suspect they will not begin processing the collected data and do additional hearing tests until the registration has been closed. Maybe they are awaiting to get a decent number of individuals in the study. What that number is I don't know. Maybe 5000? I don't know. But it may speed up the process if we all share the information about this study to other people. The audiologists and ENT specialists who have contact with tinnitus patients are best suited to spread the word about the study. But I think most of them don't even know this study exists.

      I would be most interested in having the in-depth, full spectrum hearing test done at their clinic. I think they are among the handful few in Sweden that have that kind of setup. Most "normal" audiologist and ENT clinics either don't have the equipment or just don't do it.
       
    17. SwedishSImon
      Joyful

      SwedishSImon Member

      Tinnitus Since:
      06/2007
      I dont really remember how I found out about it. I think I just googled something and found it!
      And I got the survey a couple of weeks later, it was quite some question I remember!

      And yes, please write here once you get the response from them! Im also interested in having a in-depth analysis at their clinic!
       

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