Tinnitus Gone

Hi everyone

This is a recovery post as I am completely rid of my tinnitus. I've hesitated to even log on to the forums again, as I feel very done with everything tinnitus related... But I knew that when I got well, I wanted to share it - because the rare stories of recovery was what kept me going when I used to have it.

(This is gonna be longer than I thought ... It's the writer in me )
My story:

Tinnitus appeared out of nowhere, maybe due to pressure, extremely loud music and stress in my life. I still have no idea. I lay in bed one night and got this ringing/static noise. I thought nothing of it until the next day on my way to work when it still hadn't gone away. It was difficult to focus at work, and the following weeks I couldn't sleep. I'd doze off by 6 AM for a few minutes and wake up again.

I took a sick leave off work as my mental health began deteriorating. I googled tinnitus and was horrified by the stories. At this time I lived on my own and had no one to turn to. I lay in bed all day and couldn't eat food. It was like I was shutting down out of pure fear. I've NEVER felt this weak, and on this very day I can't recall exactly how I felt back then.

I got fired from my job due to downsizing and couldn't pay my rent. At the age of nearly 30, I had to move back home to mom. I couldn't care less of the transition though, as all I could feel and think of was terror and panic of the tinnitus not going away. I went to different ear specialists, with their main response being: don't worry, at least it's nothing serious. I recall wanting to rather lose a limb than to have tinnitus for the rest of my life. This too terrified me, because I love life, and it felt like it had been taken away from me. It's hard to explain the exact sorrow that came with the tinnitus. Everywhere I read, it said the best thing you could do was get in touch with a cognitive therapist only to learn that even though it's permanent, you can still lead a fulfilling life.

I remember watching a TV show on decorating. There was a woman there who laughed a lot, being carefree. I felt I'd never feel that feeling again, but seeing as she was so happy, I chose to hang on to that as a proof that life can be something good as well. As if she was a source or proof of happiness, and that it can be reached.

Randomly, on my frantic online research, I found an article written by a Norwegian tinnitus researcher, now in her 60's. She meant that tinnitus is a natural thing happening due to all sorts of reasons, that we can habituate to and in the end be rid of entirely. The solution: just focus on something else! I contacted her by text just to tell her that there's no way this thing goes away by focusing on something else. And even if it does help, so what? You'll still have it, even though it lowers from time to time. It's still an eternal prison. She told me to focus on other sounds though, and stay in touch to tell me how it went. She knew plenty of people who'd gotten rid of their tinnitus.

PATH TO RECOVERY
Due to not having a job, I began venturing out at cafés during the day. I got out my pen and paper and got writing. Writing a book is my biggest dream. After some weeks of café visits (not daily) I managed to not hear the tinnitus for about 30 seconds at a time, sometimes a couple of minutes. This was a big deal to me, and I knew that if it stopped for just some minutes, it meant that it could stop all together. I realised that as long as I can have these small moments of happiness, I won't feel like dying 24/7.

I got sleeping pills from my doctor but I'm sceptical of anything pill-related and didn't want to take them. I guess mostly I was just upset that my brain couldn't ever get tired enough to just faint or something. I tried different tinnitus apps and a certain type of hearing phones beneath my pillow to fall asleep but none of that helped.

I focused on the old timepiece we had in the living room at night (I couldn't bring myself to sleep in my bedroom because the silence, and hence the tinnitus, was immense). At some point between the hours of 3 and 4, I had focused so much on the tick-tick-ticks of the clock that it was all I heard. This lasted a few seconds. Again, I saw it as proof that it's possible to hear other sounds only, without the tinnitus. Though this was a dark time overall, and my parents took me to the emergency room the next day because I was fatigued and didn't eat. It's sad to say it, but I was desperate, endlessly sad and overall tired. 29 years old and your parents take you to the emergency room because you're not mentally strong enough to even deal with tinnitus... great.

The doctor was a great one, though. He didn't speak much of the tinnitus, only about things in life and how it can impact us. That most things come and go, even cancer, and that our bodies keep us safe in the strangest, most unknown ways. Also, he was quite handsome, and the fact that I noticed was another sign that life could involve good feelings despite the pit I was in. I took ANY positive as a sign it would get better.

IMPROVEMENT
By the next weeks, I could forget about tinnitus for several minutes during the café visits. Stepping out and hearing the tinnitus would be nerve wrecking each and every time. It meant it was still present. Oddly, reading an article I found one of the forums about the reason of tinnitus, helped relax me a bit. It explained it as a noise coming from the brain and by simply focusing off it it disappears from your awareness even though the noise itself still exists within the brain. This is exactly what the Norwegian researcher had told me, but for some reason the new article felt more explainatory. I needed to personally understand the goings of tinnitus.

This was the first night I managed to get a few hours sleep rather than minutes. The mere explanation of tinnitus helped me relax, and I realised that if I can manage to fall asleep with tinnitus, at least my body and brain will be able to get much needed rest in the midst of it all. I was still anxious every night before bed, but learned that I did fall asleep eventually. In sleep, it was gone.

I began taking the researcher's advice seriously. I distracted the tinnitus all I could. I had the radio on, the TV, I took plenty of showers to drown the sound, stayed longer at cafés, tried taking genuine interest in the conversations I had. I explored pubs in the early evening, as the volume is a bit louder then, but not too loud. Coming home after that, the ringing in my ear would increase as if to compensate for the sudden stillness on my walk home. This was annoying but felt trainable, so I kept visiting pubs in the evening and going home to low radio afterwards. The pub's were never extremely loud, just a bit amped up in volume compared to my radio at home. I didn't overdo it, and was always careful to go after what felt right for me. I wanted my mind to adjust to other things but the tinnitus.


THE HARDEST PART
... is ignoring the tinnitus, because the act of ignoring means there's something to ignore, meaning it's always in the back of your mind. I'd get very defeated by the end of the day when I noticed it hadn't gone away at all. It's like there's no end in sight. Even then, you have to continue. Sometimes I'd get so tired mentally that I'd give up and just hear the tinnitus. But like a muscle, my mental focus grew stronger. This is a beautiful, strange part about the brain. What feels like a struggle becomes a habit you don't even notice.

I'm not sure what exact moment the tinnitus stopped. It could be silent for a few days and then a certain screech off the train station would trigger it for the rest of the day. It all happened gradually. I don't have any tinnitus now what so ever. No ringing, no static noise streaming from the inside of my brain, and it's been like that for a long, long while. I'm sure I can pick it up if I focused intensely on it, such as when writing this post, but why would I? It's seriously not here. It's truly, truly possible for it to be gone!


THE AFTERLIFE
My life now is completely normal. I thought that without tinnitus, life will feel like a brand new paradise, but it's really just back to basics and the everyday activities, lol.

My main points are these:
* Get out of the forums unless you search for success stories

* Ignore tinnitus even when it feels hopeless. Don't stop. Try again every single day.

* To anyone who tells you you'll never get rid of it: that's bullocks. Maybe I could pick it back up with really listening in to it, but why would I. I have heard silence again. I can be in stillness. I have no need to bring it all back.

* It's not a magic trick. Our heads are filled with noise, and it is our awareness of it that helps sustain its connection to our conscious state. That sentence won't mean squat if you have tinnitus as it's all consuming. It's important to realise that with the brain, it doesn't help that you yourself feel it's horrible and that it should stop. The brain learns by direct feedback, meaning that ignoring tinnitus over and over gives the brain a direct answer: "You can stop now, I get it. I've already moved on to completely different things."

I tried acupuncture and reflexology and noticed some relief, but quit after a few times as I didn't have the will or energy to do anything in life at that point. All though these treatments helped, they were in no way the essence of the tinnitus going away. To others it might be. Go do whatever you sense is working!

Tinnitus can have so many origins. Acoustic trauma, medicinal side effects, physical injury, shock, stress, etc. According to the researcher, the cause doesn't really matter. The noise is still coming from the brain. It's still tinnitus. It's still a noise being channeled the "wrong" way. And it's this noise itself that you can train to not be in your awareness. In that sense, the origin of the tinnitus doesn't matter.



The way I felt it, these were the stages of tinnitus:

* First, you ignore the tinnitus and find that it's not working. You try for hours and days and weeks and maybe months. You realise that maybe it will never go away. Cue depression and endless hopelessness. It's important not to stop here. You should still try to ignore the tinnitus by putting on music, going to the cinema, a café, a social gathering, anything.

* Defeat. It still hasn't stopped and you are mentally tired from alle the ignoring. I would be terrified of ending up in a silent room. This is VERY tiring. You are never truly relaxing. It's like running away from something.

* Something changes. This is the hardest part to explain. Ignoring tinnitus felt like so much of a habit that it went on automatic sometimes. I genuinely did not hear the tinnitus, not because I was busy listening to other things, but because I'd actually forgotten there was something to ignore. I would then remember it, and it'd be back again.

* The habit has physically settled somewhere inside you neuron pathways and it stops being an effort. This act in itself can take months or maybe years. Despite having a degree in psychology I've never thought it would be possible for something so strenuous of a mental exercise could actually grow habitual in the end. As in: there's no pretending. There's no trying.


My personal survival points who may be of no interest but meant the world to me:

* The woman on the TV.

* My parents, who despite having had a crap relationship together, joined selflessly to be there by my side when I was at the emergency room, when I needed a place to stay, when I cried my eyes out in a feetus position on the floor by the kitchen table etc.

* One evening my closest family came by to have coffee. They never come as a group so I sensed they'd might be doing it to show they're there for me. I felt a swell of gratitude for the family I'd been born into (despite sitting there with a static ringing in my ears, lol).

* Certain songs would feel like pure beauty (like Philip Glass - Metamorphosis Two).

* Stories. It was like a crutch I leaned onto, and I could mold it whatever way I wanted.

* Driving, taking the bus, the train. Movement. Planes. Getting drunk on occation.

* Cafés. This was when I was in pure survival mode and did barely care about getting rid of the tinnitus; it was more about making it through minute after minute.

* Inner realisations of who I was as a person. Never before have I felt my goals and dreams so vividly as when I felt I couldn't ever have them again. I am more confident now, and I know myself a lot better. I love life and the fact that I'm here on earth to even exist. I feel like everything is more alive, and that time is precious and it's all just a short glimpse anyway.

* Moments of beautiful visions. At 6 AM one morning when I couldn't sleep, I was crying. The sun shone through the window, and outside was a bird chirping. I couldn't believe how precious that bird felt to me, and how beautiful that morning light was, despite my sorrow and fear. It probably didn't matter to my tinnitus, but on a soul level, it was important.


Health/food

* I did quit coffee and alcohol at first because I read somewhere that it's not smart to have during tinnitus. At least I got to know all the great benefits of silver tea on a detailed level And true enough, I had wine on the second week and the tinnitus DID go louder that night. After 3-4 weeks I went back to both coffee and alcohol, and decided not to have a strained relationship with it. Again, it's intuitive and you should try to feel what's best for you. It's not like I have wine everyday anyway.

* As with any unbearable illness, you'll be desperate to try out any solution. My advise is to put it into perspective and not overthink the food/drink situation. I've read about people who did a yeast elimination routine with food and got rid of tinnitus. Or just eating healthier in general, working out, etc. I think that is awesome. There are many different reasons that tinnitus occur, and for those inflamed/yeast induced healthy food is definitely a way to go. My point is that no matter the reason, do what you want to fight it, and remember that for EVERYONE it's a signal coming from inside the brain. Nothing more. Nothing less.

 

Congrats Norway girl, could not be happier for you.

Really nice way of putting your thoughts Into words. Thanks for sharing your story and coming back on here to give us a bit of hope.

 

I see that you developed this in sept 2017 (same month as me). How many months would you say you had it for before you began to notice improvement in the actual volume of the tinnitus?

I've wondered for a while whether habituation actually promotes proper healing for some people, perhaps those in the earlier stages. I think this is what you are saying?

 

I'd say three-four months. But during this process I've learned of many other people who may not be active on forums, but who've had tinnitus for years even and still been able to habituate (if that's the word?). So the length of it itself shouldn't matter. I read somewhere that if you have tinnitus after three months it won't ever go away. I suggest not focusing too much on those "rules"... It's so individual, and it's my belief that everyone has it in them to combat this, but when I had tinnitus nothing anyone said would make me feel better so it's hard to motivate someone who has it. Also, considering the actual physical changes that needs to happen in the brain to habituate back into non-tinnitus mode, it might take longer the longer one has had tinnitus. Like having walked a trail until the grass is gone, and then you need to walk elsewhere so to let the grass grow back. It can take a while, but it's fully possible. If I make sense

 

Thank you. Feel free to ask me any questions!! I don't have all the answers to tinnitus so it's just my personal view, but I'd love to talk about it

 

Awesome post, thanks for sharing your story. Almost shed a tear of happiness for you, congrats on getting over this crap.

 

Thank you so much for writing about your journey. It really gives me lots of hope!
I wanted to ask you though, was your tinnitus somatic by anyway? Were you able to manipulate the sound with your jaw movement for example?
Because I have tinnitus for 15 months in my left ear ( of unknow cause ), and I can increase the volume of it by protruding my jaw. I just wonder if you had that too?

 

Thanks norwaygirl for posting this! I'm in the middle of trying to do same thing as you did and I've noticed some improvement after a few days. So it might be that my tinnitus is not directly due hearing damage (which I did suffer though), but from the stress of knowing that I did some damage and it causes auditory "hallucinations" which is my tinnitus in this case.

 

Hi! I'm so glad it gives you hope! I still don't know the exact reason for the tinnitus, as both stress and loud volume on music was part of my life at that moment. I couldn't manipulate the sound in any way.

I've heard of your type of tinnitus. Going to a reflexologist might be beneficial, it has helped me gotten rid of other illusive illnesses in the past and I'd never even heard of a reflexologist before that. I also saw a post on here about apple cider vinegar and some had recovered because of it. Maybe because it reduces inflammation. Also, the body always changes, and over time it could just go away on its own. There are many solutions, so no matter what you try I suggest also doing the ignoring tinnitus part, which is essentially just letting the brain know you don't need to hear the sound anymore no matter the cause. Best of luck to you, and keep me updated if you want!

 

Are you? Cool! How promising that you notice improvements already. It could either be a genuine physical damage or just stress. Along with my tinnitus I had auditory hallucinations as well, probably due to lack of sleep, and thought I was going insane at one point.

The researcher, and the article I read on tinnitus, was about it being "curable" no matter the reason. It's purely the brain being taught not to tune in on the sound. She said we already have lots of noise in our brains, and sometimes things occur that makes these sounds become audible. I don't know about tinnitus to know enough about it, I just chose to try the ignoring part because I had no other hope. Best of luck to you

 

Mine seems to be gone too! I'm not making a separate post yet, since I want to be sure. But this is day 3 of waking up tinnitus free! I don't know if I just habituated or it's actually gone? Either way, I'm cool with this result. Got mine from anti-depressants I think 6 months ago. It's amazing what the brain can overcome eh?

 

@norwaygirl Do you remember if your tinnitus slowly faded before going away?

 

Thank you so much for sharing your success story. I really needed this! You have accurately described all the emotions and stages so perfectly and it gives me so much hope! I believe this will help me and many others. Bless you!

 

I never had a real feeling of it fading, but after a while of ignoring it would still come back, but then at a lower volume, yes.

In general I suggest not keeping track of tinnitus fading or increasing, but to just ignore it all the same The tinnitus shouldn't be given an ounce of attention.

 

What a wonderful post! So happy for you.

 

Your post really spoke to me— I’m really struggling and it’s so hard to get “out of my head”. Did you have a counselor who helped you with TRT? Some mornings I’m positive that I can get rid of it— had an MRI and there’s nothing medically wrong with my ear so I know it’s a faulty brain connection. How did YOU do it???? Any positive support would be extremely appreciated. Kyle (KVfitpro) I’m a 69 yr old female and this started suddenly one day August 2017.

 

Hello KVfitpro

No, I didn't have a counselor, but did reach out to people who might be able to help me or who had already succeeded in their attempts to recover from tinnitus. I got away from forums completely because anything reminding me of tinnitus as a lifelong thing made me want to die but doctors told me it would never go away either, so I felt very stuck. Nothing I write onwards will probably make you feel better, because having tinnitus, you feel deep inside nothing will work and that recovery is only for the lucky few.

I did an MRI in addition to various ENT tests, the conclution from several doctors was that it was tinnitus but nothing fatally wrong with the brain itself, though I felt it was fatal because how could anyone live with this static buzz in their ears. As to how I did it, I focused away from tinnitus, which will feel impossible because you're being sent a signal that's not up to you to shut off. You're being sent it because something has happened, either from the outside or inside, and it's sent as an alarm. Its entire intention is for you to realise something's up, so it doesn't matter if you want it to be there or not. It's there for sure. It can uphold itself with loud noises, extraordinary events, going to loud places weekly etc. (esp. if it's acoustic trauma, in which case I was told to vane off loud sounds for a good while and then begin venturing onto habituation).

When you ignore it CONTINUOUSLY, the brain learns it's not important. This is reality, not belief. In your head is a huge amount of static and noise. We hear with our heads, not our ears. Stuff happens in life that 'wake' these sounds. They're not normal and aren't supposed to be there, which enhances their alarming presence because clearly something's wrong and you need to be aware of it. Say it's a fire alarm and you are telling your brain not to worry because you know it's not a fire. This can't be believed. How can you know, anyway? Why aren't you checking for smoke? Those are the forces you're up against; the body's response system, and in many ways, recovery will be impossible unless you remain stubborn and guide your thoughts to detach. It's the reality aspect of not bombarding your hearing with loud noises, which I was careful of, but also to meet in a middle where you yourself are training for strenght and refocusing from within. Strangely, I could go from a louder venue and feel fine, while coming back home was torture. The tinnitus would be so loud compared to straight after a pub visit/loud gig/whatever, as if the discord was too big and too disrupted for my hearing to adjust normally. It was like a tinnitus on top of a tinnitus.

Signals reverberate from somewhere, they are real and tinnitus is not an imagined thing. None of the ignoring/training will make sense to your logic or conscious self, maybe not even after you've recovered. It's like breathing, blinking your eyes or walking. You do it, but you don't think about it. It's a habit. To force yourself not to focus on tinnitus even though it's banging loudly in your ear, low or high, is in itself impossible. Again, something's actually wrong with your hearing. It's not as easy as "forgetting" about it and go on with your day, not at all. Even then you have to continue.

One person in the world told me it was possible, but how could I believe that one person? Who had probably never experienced this hell herself? I wanted to die, and for me the only way out was forcing myself to believe something I didn't really believe. And I never did believe it. I only tried because the other option was horrible. Even after I started experiencing "forgetfulness" (not a word probably) it took me a while to eat normally, relax and be normal again. It was to be desperate, not hopeful. Logging off forums doesn't make it better, but it does shut you off from other peoples' minds, which is important. More important than I can understand even now. You can't trust yourself. I guess stop trusting anything all together. You have to force your attention onwards at all costs, and at some point your brain picks up and forgets on your behalf. This is natural. We do it with most things during our daily routine, though it doesn't normally require this amount of focus. Just go on accord and see the mission through. It's more mechanic than it is mysterious.

Go up when you pay attention to tinnitus, get moving, put on music, ponder about life and death, call someone, do anything to occupy your attention off tinnitus if only for one single second. You could call someone and maybe be able to distract yourself, but then get hold of the person and start a conversation while, fuck, the tinnitus is ringing loudly again. That's fine, those milliseconds of dotting the numbers are important enough. Everything is important enough. Don't judge. Keep on. Distract always. It's exhausting and it will feel like you can never relax again. Always, always distract. Stop being here (forums), stop googling tinnitus, stop comparing the volume intensity from last week to this, distract only, get away. If say, driving a car helps your refocus, then drive for as many hours a day as you can. It will be endlessly sad to feel a tad of recovery only to return to someplace quiet and notice your tinnitus, but that's how it is. It doesn't mean you should stop the process.

I've had tinnitus come back if I've called an ENT doctor to cancel an appointment because I considered myself "healed". I've visited mom again feeling fine and dandy for the first time after recovering, but suddenly experienced tinnitus again laying in my childhood bed at night where I used to have tinnitus to begin with (LOL). At first it would freak me out, but then I realised it was because my mind was reminded of it again. So what to do? Exactly what I'd been doing to get rid of it in the first place. Suddenly, it would take only two days for it to be gone again. Then, mere minutes. Now it doesn't return no matter what I do. I sleep at mom's, I call ENT doctors, any doctor, get involved with any tinnitus forum... It doesnt' return. Return is maybe a wrong word to use... If the brain contains plenty of signals, I assume there are tinnitus signals in bounty too, and that it doesn't vanish or return but just exists, just like a million other signals exists and you're not made aware of them. So in the beginning it won't take a lot to wake the beist. It would be weirder if there was a black and white, or on and off switch. This is all a gradual and slow process, genuinely like training a muscle. It doesn't suddenly appear and suddenly disappear. It's not erratic or strange. You are the person deciding what to accept as signals. Keep focusing and re-focusing. When you feel safe enough, you could preferably challenge the tinnitus and see if you pick it up, try to bring it forth again only to re-train it away. Don't be afraid of it. Tinnitus is old Latin (I believe to remember) for 'tinkling, or ringing a bell'. Try to view it with new eyes. It's not a life sentence of any sort. Looking back, I'd say my main advice is to log off forums. x

 

Very inspiring and if I can, I will work on ignoring mine. Thanks.

 

Norway girl,

Thanks so much for posting. So good to read success stories. I’ve had ringing for about 6 weeks now and just randomly came on. Curious how long it took you to habituate? I’m having a really hard time.

Thanks!

 

Hi! I can relate 100%. It is pure hell and a completely claustrophobic feeling. I'm not sure whether habituate means to have gotten used to it, or that it's gone. For me it's gone, and I did that by trying intently for as much as I could to focus through tinnitus onto other sounds in order for the brain to learn that tinnitus was not important. I think it all in all took 4-5 months, give or take. Many people ask me how long it took, and it's important to know that it doesn't matter how long it took for me personally. We're all different. I don't care if it would've taken me 5 years or two weeks. The main point is just to do the "training" as much as humanly possible. When you're depressed and feel hopeless due to tinnitus, doing training like that is the hardest thing to do. I haven't given birth but feel tempted to say that getting rid of tinnitus is worse...

 

Habituating to the tinnitus means that the tinnitus is still there, but is not bothersome.
It is an option not available to everyone, due to tinnitus not always being of one single type, and nerve-wiring being different among different individuals.