Tinnitus Talk Teams — Awareness, Research, Tech, Trobalt

Discussion in 'Awareness & Fundraising' started by Steve H, Jan 10, 2015.

tinnitus forum
    1. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Hi everyone,

      You might have noticed that we started a Team Trobalt to work on getting the experiments that people have done out there. It's worked pretty well so we want to start some other teams.

      Please let us know if you have some time to help out and you would like to be a part of it. We're not asking for full time commitment but you need to be able to spend a little time on it, enough to make a difference.

      These are the teams, with a brief description:

      Team Research:

      Involved with things like finding / evaluating evidence for treatments, surveys and questionnaires, digging deeper into stories to understand things further....

      Team Awareness:

      Helping to spread tinnitus awareness, publicity, advocacy, working with charities, spokesperson stuff, communication with the forum about what's going on behind the scenes....

      Team Tech:

      Internet, SEO, code, any desktop apps, video / audio production....


      You can find more examples in the below post by @attheedgeofscience!​


      ---------------------------------------------------------------------------------------

      We are very open to ideas, suggestions, whatever.

      We want to do things that can make a big difference for us and also for the newbies so they don't waste as much time and money as we have chasing rainbows.
       
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    2. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      Do you have certain specific talents or a specific educational background? Would you like to put your talents to good use on an ad-hoc basis? If so, TinnitusTalk could use a few volunteers who would be willing to help out with specific tasks/projects, if/when the need arises. The tasks would typically be quite simple, non-time consuming, and time-bound. Examples include:

      1) A lawyer helping out with the wording of a disclaimer.
      2) A pharmacist reading a research paper on the pharmacological mechanism-of-action of a drug.
      3) A project manager overseeing a one week project such as a petition.
      4) "Number crunching" a simple data set

      It is not certain that there will ever be a need, but any volunteers with the following backgrounds would be highly appreciated:
      • Pharmacist
      • Doctor
      • Lawyer
      • Mathematician
      • Financial controller
      • IT Programmer
      • Internet marketing
      • Public relations experience
      • Project management experience
      • Video editing/production
      • Experience with political lobbyism
      • Knowledge of-/background in- politics at local- or government-level
      • Senior leadership role in large corporations
      • Veterans of the United States armed forces
      • Spreadsheet "gurus"
      • Graphic design
      • Web design/development
      • Social media campaign experience
      If you are interested in volunteering and would like to make a difference, then please consider this possibility and reply to @Markku with a comment or two about your skills.

      Thank you.
       
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    3. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      I'm available if you need an audio engineer.
       
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    4. Larry OT
      No Mood

      Larry OT Member Benefactor

      Location:
      NJ
      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Volume, meds and motorcycles
      @Markku
      Now that's two audio engineers. We can be the tinnitus twins of audio engineering RaZaH. It will be a scream…

      I can help with video edit and production as well as project management.
       
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    5. Mark McDill
      Curious

      Mark McDill Member Benefactor

      Location:
      Papillion, NE
      Tinnitus Since:
      03/2013
      Cause of Tinnitus:
      Likely stress, anxiety, an antibiotic and nsaids
      @Markku
      I'm a software developer; maybe I can pitch in somehow
       
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    6. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      @Larry OT , cool ! hehe
      I have a bit of after effects experience and I am ok with sketchup and can make /draw 3d images if that is needed?
      rack.jpg vinter.png
       
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    7. Lisa88

      Lisa88 Member

      Tinnitus Since:
      11/2013
      @Markku and all. I have a long administrative background in education - managed a music school. Good at researching. Or any other things you need help with. Hugs!
       
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    8. Mike34

      Mike34 Member

      Tinnitus Since:
      08/2014
      I'm a lawyer with more time on my hands than usual from dealing with T and H. I can possibly help.
       
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    9. OddV
      Assassinator

      OddV Member Benefactor

      Location:
      USA
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Ear Infection
      I've done Project Management and Political Lobbyism as well as worked on several campaigns as a volunteer. I'm also a wannabe programmer, but @Mark McDill would be a better choice unless you want the website to look like:

      worst-website-of-2013.png
       
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    10. marqualler
      Nerdy

      marqualler Member Benefactor

      Location:
      Minneapolis, MN
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Ear infection / Mild Noise Induced Hearing Loss
      I PM'd this to @Markku as well, but I am a financial controller by trade. With our combined controller/law/website design/audio mixing skills, we could build ourselves a pretty amazing one-stop shop for all things everything! And then we could all work from our home office with all the sound masking we desire. :D
       
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    11. Martin69
      Artistic

      Martin69 Member Benefactor

      Location:
      Germany
      Tinnitus Since:
      10/2013
      Cause of Tinnitus:
      (Health) Anxiety
      I am tech support engineer in IT.
      Primarily in virtualization products.
      I guess not of much use here.
       
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    12. valeri

      valeri Member Benefactor Team Awareness

      Location:
      Australia
      Tinnitus Since:
      09/2011
      I'm useless unless any of you need X-rays:)
       
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    13. awbw8
      Balanced

      awbw8 Member Benefactor

      Tinnitus Since:
      04/2013
      Absolutely fantastic idea @attheedgeofscience , thanks!

      @Markku

      Social Media/Internet Marketing:
      Managed social media/websites/CRM database/internet marketing at large NYC and regional company. Currently doing design/operations/E-marketing at another large NYC and international educational institution.

      Graphic Design/Fine Art

      (not on the list, but if you need it)

      If you need anything at all, just ask. I'm happy to dedicate more than just a little time to the cause.
       
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    14. Amelia
      Daring

      Amelia Member

      Location:
      Australia
      Tinnitus Since:
      08/2013
      I'm great at kid-wrangling ;) haha

      I do have a background in admin, and I'm pretty good with formatting etc. I'm constantly picking up the mistakes in menus, letters etc and thinking how to make it easier to read.

      Obviously that's not up there with doctors and lawyers, but if you need someone to cast an eye over something it could help out.
       
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    15. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I believe there was once someone who wrote the book "What They Don't Teach You At Harvard Business School"

      There is more to success than getting an MBA.

      Fortunately for me...
       
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    16. theekarwash
      Nerdy

      theekarwash Member

      Tinnitus Since:
      05/2014
      Cause of Tinnitus:
      Noise and/or Ear Infeciton
      I'm studying video & film in college so I could film/edit things!
       
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    17. UserID
      Lucky

      UserID Member Benefactor

      Location:
      Tampa, FL
      Tinnitus Since:
      05/01/1972
      Cause of Tinnitus:
      Artillery
      I'm a Navy veteran with seven years of experience as a newspaper reporter/freelance journalist.
       
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    18. tomm
      Thinking

      tomm Member Benefactor

      Location:
      London, UK
      Tinnitus Since:
      10/2014
      Cause of Tinnitus:
      Acoustic trauma (club drumming)
      DevOps & automation. Linux and Windows Server admin, computer networking (cloud and datacentre).
       
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    19. valeri

      valeri Member Benefactor Team Awareness

      Location:
      Australia
      Tinnitus Since:
      09/2011
      @attheedgeofscience

      Is there a particular idea that you have when you need all those skilled people?
       
    20. Mal
      Wishful

      Mal Member Team Tech

      Location:
      Denmark
      Tinnitus Since:
      02/2013
      Cause of Tinnitus:
      Cinema speakers
      I would love to help out, if I could provide any value. I would belong to

      Team Tech
      - .NET & website development (unfortunately no XenForo/PHP experience)
      - Computer Science degree and a bunch of years as consultant.
      - I could help with questions like "how can we build this?" or "would this technology be able to help us with goal X?" and do some coding.
       
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    21. Markku
      Inspired

      Markku Director Staff Benefactor Hall of Fame Team Trobalt Team Tech Team Awareness Team Research

      Tinnitus Since:
      04/2010
      Cause of Tinnitus:
      Syringing
      While I'm not ATEOS, I can answer this since this is a talent pool for Tinnitus Talk.

      No, we don't.

      It's just a talent pool that we hope to grow and hopefully these generous and talented people can be of help with future projects and needs we come up with and face.

      ----

      Thanks to everyone so far! I'm truly humbled by so many wanting to help out.

      This thread will never "expire", so new talents are always welcome!
       
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    22. Sound Wave
      Curious

      Sound Wave Member Benefactor Team Tech

      Location:
      Finland
      Tinnitus Since:
      12/2013
      Cause of Tinnitus:
      Probably headphones
      Business development, facilitation and IT/tech landscape here. Great initiative!
       
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    23. attheedgeofscience
      Uninvolved

      attheedgeofscience Member Hall of Fame

      Location:
      Denmark
      Tinnitus Since:
      Childhood
      Cause of Tinnitus:
      Head Injury
      I am just a TT-member here. So... essentially you would need to raise that question with the staff of TT. It's their website, not mine. They set the strategy and the raison d'être of the forum. But... anyone is of course welcome to add suggestions. And that's what I did with my original post, above.

      However, the underlying idea is that people can contribute with more than just a monetary membership donation; you can also contribute with your input and ideas. And while it does mean a bit of work in some cases (eg. contacting a professor or two, speaking with an otology pharma-CEO, or writing an e-mail to the health authorities), there is a "reward" in return: knowledge and influence. And yes, the knowledge and influence may be very small to begin with, but if a person is persistent and displays integrity with the contacts, that knowledge may well grow over time. I have been doing a lot of behind-the-scenes initiatives over the past year. A lot! And I have shared more detail about that in the off-line workgroups - and as a consequence, here are a brief couple of anonymous one-liners people have said in relation to information I have provided:
      So there is a reward for getting involved with TT-activities: you will get closer to some of the things that "really matter".

      As with anything in this world, influence is key. And influence can be obtained in several ways. One way could be to raise funding for the site. Money has a tendency to attract attention. Suppose TT was able to raise - who knows - $10,000 and hand out a research grant to a professor pursuing tinnitus research, that professor could probably be convinced to join the forum and provide insights on some of the research taking place (on an ad-hoc basis). Right now, the site does not have any researchers - and I have tried several times to lure professors onto TT, but for them, that would just mean more work, so... it is not really an attractive option (from their perspective). But money can change that. Because whether we like it or not, it is a capitalistic world we live in. And honestly, raising $10,000 would be a "piece of cake" for a dedicated fundraiser. Yes, I know that people always say fundraising is hard. And that may also be true, but if a hardcore fundraiser was to really dig in to all the possible grants that might be available out there or start a fundraising campaign, it can really start to add up. It just takes a bit of research, a bit of work, and a bit of persistence. "Piece of cake", really. And anyone can be part of such a process. Anyone. And I can guarantee you that Markku and Steve H would be most grateful for your work.
       
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    24. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Excellent, these things will be very useful. Thanks Mal.
       
      • Like Like x 1
    25. Mal
      Wishful

      Mal Member Team Tech

      Location:
      Denmark
      Tinnitus Since:
      02/2013
      Cause of Tinnitus:
      Cinema speakers
      Thank you too :) Feel free to poke me, when time is right.
       
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    26. FERNANDO GIL

      FERNANDO GIL Member

      Location:
      Lisbon
      Tinnitus Since:
      12/2013
      As a LLLT fan. I´m considering a lot to make compeling of everyone doing the tratament. In this case, the more importante fact would be compare te audiogram before and after tretament. Time, what laser, power used and what would important for the LLLT tretament. Doing a way more deatiled resume of the evolution of people doing LLLT.

      When I have all planned I willl get back to the Staff.

      Sheers
       
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    27. RaZaH
      Not amused

      RaZaH Member Benefactor Team Tech

      Location:
      Reykjavík, Iceland
      Tinnitus Since:
      2012/04
      Cause of Tinnitus:
      Benzo + loud noise
      Team Tech.
      Audio Engineering .
      Music For Video.
      Video Editing.
      After FX.
       
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    28. OddV
      Assassinator

      OddV Member Benefactor

      Location:
      USA
      Tinnitus Since:
      09/2014
      Cause of Tinnitus:
      Ear Infection
      I can do awareness or research
       
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    29. Kelli
      Question it

      Kelli Member

      Tinnitus Since:
      07/2010
      Cause of Tinnitus:
      viral infection
      I'd love to help. I'm a speech language pathologist with SSNHL and severe tinnitus
       
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    30. Steve H
      Creative

      Steve H Director Staff Benefactor Team Trobalt Team Tech Team Awareness Team Research

      Location:
      York, UK
      Tinnitus Since:
      2003
      Cause of Tinnitus:
      Flu, Noise-induced, Jaw trauma
      Awesome. Thanks everyone so far, we'll get the groups sorted and contact you off-thread.
       
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